Understanding Dementia & Alzheimer’s Care in India : Susheg Jivith, Mangalore

Added: 2026-05-09

[00:00:17]Hello all. In today's session with Senic, we have a very dynamic and young couple. We have Mr. Gerald Pinto and Miss Loretta Pinto who have been running Sushik Charitable Trust. Now Sushik Charitable Trust has two important aspects. One is that they run a suicide helpline and the other is they run a institute called JVIT. The Jvit Institute in which currently we are running this podcast from is for Alzheimer's and dementia patients. So in today's podcast we will have this conversation on how this facility has been run. What made this young couple start this facility at Mangalore and what is their future plan of expansion?

[00:01:06]Sir ma'am I welcome you to this show.

[00:01:08]>> Thank you.

[00:01:10]>> So Loretta ma'am I want to specifically ask this question to you. Uh what is that thing that inspired you to start Sushik Jit at Mangalore?

[00:01:20]See, after spending more than a decade in uh the US uh volunteering at uh hospices and uh homes for the aged and learning, I learned a lot there. And after I came back, Jerry and I decided that we should do something for the senior citizens in this um in in uh this locality or should should I say this region.

[00:01:44]>> Okay. And uh when we consulted with um a few individuals here who were in psychiatric care, we realized that there was not a single institution that was dedicated to dementia care. We Bangalore is known as the medical hub.

[00:02:02]>> Absolutely. But uh lots of hospitals, lots of uh uh homes uh for the aged and uh but not a single dementia home, not even a department in any uh major hospital >> have uh has a dementia care unit and that's when we decided that we'll go ahead with dementia.

[00:02:25]>> Dementia care. Oh, that's something interesting ma'am because uh I was you know just checking on the internet as well. This is only such facility which is focused on dementia for people of Mangalore, Udupi, Kasle and the neighboring districts as well.

[00:02:41]>> Yes.

[00:02:41]>> So this is something unique that you as a couple have founded and started.

[00:02:45]>> Yes.

[00:02:45]>> Interesting and very good for the society over here. Uh Jar, we as audience would want to know what is dementia and what is Alzheimer's? Is there any difference between these two uh these two symptoms or these two diseases that we see in people?

[00:03:03]>> What is it?

[00:03:04]>> So dementia essentially is a brain disease.

[00:03:06]>> Okay.

[00:03:07]>> It is different from psychiatry which is emotional.

[00:03:10]>> Okay.

[00:03:10]>> Whereas dementia is physical.

[00:03:12]>> Okay.

[00:03:13]>> In the sense that in dementia the brain cells either get damaged >> or die.

[00:03:18]>> Okay. Mhm.

[00:03:20]>> So if you know about the brain how the brain works just like as in the case of computer. Mhm.

[00:03:25]>> The brain brain has got something like 50 to 70 billion >> 5,000 to 7,000 corres of neurons >> neurons. Mhm.

[00:03:34]>> So they always talk to each other.

[00:03:36]>> Okay.

[00:03:36]>> They convey the message. When when you see something the photo is taken, it is sent to the brain from the brain it goes to various centers where it is analyzed >> and then I know that you are you.

[00:03:49]>> Say for example recognition comes from the storage.

[00:03:52]>> Yeah.

[00:03:52]>> Of the brain. So in case of dementia the brain cells die and the and then when the number of such dead brain cells is large >> Mhm.

[00:04:03]>> for example so there is no connectivity.

[00:04:06]>> Okay.

[00:04:06]>> Connectivity is lost.

[00:04:07]>> Lost. Mhm.

[00:04:08]>> So when the picture comes it doesn't go to the retaining area.

[00:04:11]>> Okay.

[00:04:11]>> If the retaining area if it goes it doesn't go to the processing area.

[00:04:16]>> So there are no results.

[00:04:18]>> Okay.

[00:04:19]>> So I cannot recognize you.

[00:04:20]>> Mhm. or if I have to hear I cannot recognize your name name. Okay.

[00:04:25]>> So all these things happen in in dementia because of the death of the brain cells.

[00:04:30]>> Okay.

[00:04:30]>> Most of the death of the brain cells have in most cases happen because of certain protein deposits.

[00:04:37]>> Okay.

[00:04:37]>> In the brain it's not always I'm not I'm generalizing protein.

[00:04:41]>> Yeah protein for example. So I'm generalizing.

[00:04:44]So it's not for medical professionals which I'm talking to.

[00:04:47]>> Yeah. Correct. So, >> so what we are going what we are describing over here is a generalistic view.

[00:04:53]>> Yes.

[00:04:54]>> Okay. Yeah. Viewers have to you know understand that the views because I'll clarify once again that the couple are not medical professionals but are running the >> charitable institute. Okay.

[00:05:07]>> We have done a reasonably good study of correct sir. So but uh uh so so once the brains die what things are lost >> you lost thinking power >> you lose reasoning >> correct >> your behavior changes >> yes sir >> and the nothing is processed in the brain properly >> correct >> so as a result the initial signs >> of dementia for example is memory loss >> so many people confuse memory loss is dementia >> okay >> it is not >> okay >> memory may be the beginning of dementia Eventually it leads to behavioral changes, >> hallucinations, >> aggression, it can lead to forgetfulness, disorientation. I do not know where I am. Okay. The the way the way where I am or what I'm doing, I do not remember eventually it and it's a progressive disease.

[00:06:00]>> Progressive disease means the disease goes on increasing day by day.

[00:06:05]>> Okay. Okay.

[00:06:06]So as a result you have more and more dementia as the time passes.

[00:06:10]>> Time passes. Okay. Mhm.

[00:06:12]>> And there is no cure.

[00:06:13]>> Okay. Now this is concerning.

[00:06:16]>> No cure. So it is now going back.

[00:06:19]>> Mhm.

[00:06:19]>> There is only when >> we can either arrest it or >> it's not floats down to space.

[00:06:26]>> It cannot be arrested.

[00:06:27]>> Aa.

[00:06:28]>> So as a result as you there it's a oneway street.

[00:06:31]>> Eventually you are going to a death.

[00:06:33]>> Mhm. All right sir.

[00:06:34]>> Okay. So that is how dementia what is the difference between Alzheimer >> and Alzheimer's.

[00:06:39]>> So dementia is the umbrella term. When you say umbrella term it means many kind of dementias like when you say cancer.

[00:06:47]So we say cancer of heart, cancer of brain, cancer of liver, cancer of skin there are so many things. So similarly in dementia there are different types of dementia.

[00:06:57]>> Dementias. Okay. Uh so Jerry sir we have now a fair understanding of what dementia and Alzheimer's is. Now within the society okay there is a sort of a taboo or a you know hesitance hesitance to seek help. If any family member has got dementia or Alzheimer's which is diagnosed by the doctor then there is a you know hesitance to seek help. What should people do in such cases? how they can you know reach out to this facility or why should they reach out to a facility like this?

[00:07:35]>> India is a family oriented country.

[00:07:37]Okay. So we have we think that our people should be with us.

[00:07:41]>> We should we are bound to take care of my parents or my uh wife or husband.

[00:07:46]>> So that is the basic feeling which is good.

[00:07:51]But with what they what people do not understand is that in case of dementia it is a disease which has to be addressed correct >> in a different manner. It is not just looking after a old person.

[00:08:02]>> It is not looking after just a backbound person or a deceased person.

[00:08:07]>> Okay. So that is one of the reason how can I put my loved one my husband or wife in a old age facility that the the places where they send are old age homes. Okay.

[00:08:22]>> The concept of dementia residential care was not existing.

[00:08:26]>> Correct.

[00:08:26]>> Number one. Number two then they feel that what people will tell talk about.

[00:08:32]Yes, I completely agree with this.

[00:08:33]>> People say okay I want to have maj I want to have fun so I have just dumped him.

[00:08:40]>> Yeah >> somewhere.

[00:08:41]>> So the society feeling of society status in society.

[00:08:46]>> Yeah.

[00:08:47]>> Stigma.

[00:08:47]>> Mhm.

[00:08:48]>> People think he has gone mad.

[00:08:51]>> Yeah.

[00:08:52]>> Absolutely sir. Because in if I can use Canada when we were kids people used to say Okay. The thing is it was not diagnosed at that time that is actually either dementia or you know Alzheimer's >> but people have not taken >> actually the awareness about the the dementia itself is growing only recently recently since about 2 3 years 4 years we are talking looking at all the people talking about dementia correct and dementia was not mentioned correct either it was psychiatric >> Mhm. Mhm.

[00:09:31]or it was this one. The third thing is cost.

[00:09:34]>> Okay, >> dementia care actually is costly business because you actually if you want to go to a dedicated dementia, it is going to be costly because you need lot of staff nearly like in our case for example we have one is to one that is number of dementia patient is less than the number of nurses we employ to look after them.

[00:09:57]>> Okay. Because usually it is the other way around. Yes, in old world age the ratio is 1 is to six 1 is to 10.

[00:10:04]>> Okay.

[00:10:05]>> One caregiver for >> six people or 10 patients. Okay.

[00:10:08]>> Because what they do they give you food they make you sleep they give you bathing and they help you to move around. That's all the job they have to do.

[00:10:16]>> In dementia care you are having a fit body and unfit mind.

[00:10:20]>> Mind. Mhm. Mhm.

[00:10:21]>> So body is fit.

[00:10:22]>> Correct. Correct. So the person will move around, person will walk around, person will do this, person will grab this, grab that.

[00:10:29]>> Yeah.

[00:10:30]>> And person has to keep complete vig on the person.

[00:10:34]>> Okay.

[00:10:34]>> 24/7 vigil.

[00:10:35]>> Vigil is required.

[00:10:36]>> Yeah.

[00:10:37]>> Okay. Okay.

[00:10:39]>> If uh the people think that okay go to the doctor go doctor gives them putin or gives some calming down medicine the patient sleeps you are happy.

[00:10:50]>> Mhm. But actually are you giving your life to them?

[00:10:53]>> You're not.

[00:10:55]>> Is the is the patient's condition improving in such cases? No. No. It is only degrading.

[00:11:02]>> Yeah. Technically. So So there is one the the cost is the another question.

[00:11:06]>> Okay.

[00:11:07]>> So all these factors make people do not like take the >> patients to facility.

[00:11:15]Now even if I want to take the person to the facility, are there enough facilities available? Then as we said earlier said we have got one in Bangalore ours we have got limited >> capacity >> capacity >> in Bangalore there is one or two maybe >> there are no other in whole of Karnataka which is essentially for >> dementia >> dementia >> in Kerala there may be couple of them >> if you go to north you cannot see any any facility okay >> for dementia I do not know about di but otherwise >> the facilities are few and far so >> so that makes people hesitate to take Lord ma'am this question is to you. So uh the residents who are here okay the families have voluntarily brought them over here you know what are the circumstances under which they decided to bring them to such facilities.

[00:12:04]>> There are various factors. First of all uh some of the uh uh children are abroad.

[00:12:11]>> Okay. Uh so a lot of countries do not encourage uh >> they think it's a burden >> on their health system >> on their health system to have someone like that. Some of them have even tried taking their uh parents uh abroad and brought them back because of that factor. Medical insurance is very expensive there. Secondly, yeah, for the uh uh siblings or the children who are here or maybe even the spouse, >> they need to work.

[00:12:45]>> Correct?

[00:12:46]>> You know, and uh they a lot of times they de they rely on caregivers from outside like they hire uh caregivers from outside >> home nurse if I can call it in a colloial way >> quote unquote home nurse. Home and what does a home nurse do? M home nurse nowadays the cell phone plays the most important part in our lives. So the resident may have fallen down on the floor >> but uh >> they are unaware of uh those surroundings. They are on their cell phones or on TV >> or uh and the uh >> uh the patient gets neglected.

[00:13:26]>> Correct. Correct. Uh sometimes they do not they make bungle up medicines you know not not give med medication all the time sometimes they're not given at all >> okay >> uh then uh the main thing with u Alzheimer's is >> they are they get physical >> okay >> they can uh just just now there was mental abuse >> to one of our nurses >> okay >> they call you all sorts of letter words and all that so what happens is Um when you look at your parent >> who has raised you and uh the person calls you all kinds of names and all that >> that becomes u >> difficult to digest >> difficult to digest. So these are a few factors that you know uh would like they would like but mainly it is I cannot do anything my social life is gone my everything is gone because I'm looking taking care of >> the >> okay and that can also lead to a burnout sort of a situation.

[00:14:27]>> It's it's a total burnout. I mean a an Alzheimer's caregiver >> Mhm.

[00:14:33]>> is it's a 24/7 job.

[00:14:35]>> Correct. Correct. And that most are not willing to do and may not be able to do >> correct >> today because of health or other reasons.

[00:14:43]>> As Jerry had earlier told the body is fit. It is the mind which is >> the mind that is >> it is not uh in the in its place.

[00:14:51]>> It's like yeah it's like a child in a in a in an adult body >> body. Okay. And do you have any you know coping mechanisms over here? So you have caregivers over here. So do you >> caregivers need to be cared for?

[00:15:07]>> Okay. Okay.

[00:15:08]>> So that that is that is the line >> also to be cared for.

[00:15:11]>> Yes. That is the line we uh we underline in this in in >> sushi jvit.

[00:15:16]>> Number one uh every month we have like you know uh >> a celebration.

[00:15:23]>> Okay.

[00:15:24]>> Like May 13th we're going to have a celebration where we celebrate 3 years of this facility. So everybody has a song, dance, whatever games kind of a thing. So we always and they are we encourage them to dress well. All of our uh careers caregivers here are young. So they love to dress well. They love to we have a special meal.

[00:15:46]>> Mhm.

[00:15:46]>> Uh that is one of the things we do here.

[00:15:48]Then we engage them in a lot of uh counseling um activities.

[00:15:54]>> Counseling for caregivers.

[00:15:56]>> For caregivers.

[00:15:56]>> Okay. This is very important because >> Mara >> we have uh Mariela ma'am. Okay. and sister Mari Evelyn.

[00:16:04]>> Okay, >> she she is not here today but she is also one of our counselors. Mariela ma'am has 32 years of counseling experience and >> we are employers.

[00:16:15]>> Uh it is also what should I say uh not correct for us to counsel our employees.

[00:16:21]It's a conflict of interest.

[00:16:23]>> Yeah. They may not open up to you.

[00:16:24]>> They will not open up to us. And that's where Mariela ma'am steps in >> and she does a wonderful great job. I'm very grateful to her and that's how uh burnout is there definitely earlier we we uh they had 12-hour shifts >> okay >> when we went onto the floor and we realized that you know 12 hours is not happening uh I tell people who come here I say you spend uh 8 and 1/2 year hours on our shift here without complaining and I'll give you a gold medal >> oh okay >> so you know it's that difficult >> okay it is okay it is difficult And that is where counseling comes into play.

[00:17:03]>> Very much into all like they say all work and no play makes Jack a dull boy. So we have all these festivities also picnics, outings.

[00:17:14]>> Um >> yeah. Now that is something which I want our viewers also to take note that it is not easy for a person to take care of their loved ones with these problems Alzheimer's and dementia at home >> because they themselves will get burned out.

[00:17:29]>> Okay. their social life is getting affected.

[00:17:32]>> Okay. So it is always ideal that they >> loss of sleep.

[00:17:35]>> Loss of sleep. Yes. Yes. Because I'll loss of sleep. Okay. Uh just to add to that we have this saying no uh that people once they grow after certain age they become childlike.

[00:17:48]>> Yes.

[00:17:48]>> Okay. [clears throat] >> So what happens is for a mother a child say from 1 to three or four okay she may lose her sleep for the first four years.

[00:17:57]>> Yes. But after that the child becomes independent.

[00:18:00]>> Correct.

[00:18:00]>> But whereas here it is degradation.

[00:18:02]>> Yes.

[00:18:03]>> If somebody is diagnosed with dementia or something or Alzheimer's at 75 >> then that condition is going to continue for 85 or another 10 10 12 years >> maybe 10 >> the child is growing in in the in the in the first case. Okay. And here it's going down. Here it is going downwards and you cannot afford to lose sleep at uh at that time when you yourself are now 40s and 50s.

[00:18:29]>> So over here so the situation is when a person is having a newborn okay the mother is in her 20s okay and she has that energy and the capacity to take care. But in this case when people are having dementia okay people are in their 40s and touching 50s and at that time expecting such you know the kids of those parents to know lose sleep but to take care of the dementia you know patient becomes very very difficult.

[00:19:01]This is something which I would request our viewers to note that you are in your 40s and 50s and if you are now thinking about taking care of your parents who who are there in the 75s and 80s, it is going to become a problem for you. Okay.

[00:19:16]Their their health may also be in jeopardy. That is something which people should take care.

[00:19:21]>> Woman can lift a child in their arms.

[00:19:24]>> Yes. And move around a 70 kg man.

[00:19:29]>> Man or person. Yeah.

[00:19:31]>> Okay. Secondly, if the child defecates, >> Yeah.

[00:19:34]>> it's it's nothing.

[00:19:35]>> Correct.

[00:19:36]>> It's like >> Okay. But if a person defeates, it's dirty.

[00:19:42]>> Correct. Correct.

[00:19:43]>> So this these are this is how our psychology is built like that. Our society is built like that. So we cannot change it.

[00:19:49]>> Yes.

[00:19:50]>> It's always that in at home >> Mhm. If one person is burdened with dementia, >> his or her life is much more difficult and painful than the patient.

[00:20:02]>> Okay. Okay. The caregiver is actually >> doesn't know what's happening. Unaware >> of whatever is happening.

[00:20:10]>> Whereas you as a caregiver as the person the caregiver is aware of everything which is happening to you and to the patient.

[00:20:18]>> Very valid point sir. Captain, I would also like to add this thing that once uh the caregiver's job is over that is the patient is no more uh the caregiver has to be treated with utmost respect.

[00:20:33]>> Mhm.

[00:20:34]>> Uh there are cases where someone comes from the US or wherever uh and says and shoves a bunch of uh papers under the caregivers's uh nose and say sign these.

[00:20:46]>> Mhm. Mhm.

[00:20:47]>> And uh the caregiver you know who suffers who who uh grieves the most >> most >> it is the caregiver >> because he suddenly he's like what am I going to do with my life I need to start >> the sense of purpose >> is over >> is over >> I need to start get onto the road >> all over again >> and if you are coming from the US Timbuktu >> Mhm.

[00:21:13]Make sure that the caregiver is well cared for until he or she gets onto the >> so back to back to his own life his or her own life because there are cases where caregivers have lost a lot because of their caregiving whereas it should have been the other way around. very valid partner. Ma'am, in in such context, do you want to give some real life examples of people who have come over here with dementia or the caregivers uh you know a real life example without absolutely naming them?

[00:21:47]>> Yeah, I never mention uh the caregivers's name. It happened that a friend of mine who took care of her uh mother-in-law, >> okay, >> for almost 10 to 12 years.

[00:21:59]um she was a professional. She was an IT professional and she gave up her uh career to take care of uh her mother-in-law despite her husband h having three other brothers, three or four other brothers.

[00:22:14]>> And uh >> once the uh the mother-in-law had gone, she died. Uh everyone came for the property, everyone came for her uh her belongings, jewelry, whatever. And they even went to the extent of telling the doctor who uh diagnosed her with dementia, please give us a letter saying that she was absolutely normal.

[00:22:40]>> Okay, that's Mhm.

[00:22:42]>> So this is what happens to caregivers.

[00:22:44]>> This is a big example in front of my eyes. It was shocking >> and it was disgusting.

[00:22:50]>> Yeah, absolutely.

[00:22:51]>> Downright [clears throat] disgusting.

[00:22:53]>> Any other examples, ma'am? Any other examples of >> We recently had an incident.

[00:22:58]>> Uhhuh.

[00:22:59]>> We we have cameras all around and in the guise of a birthday party.

[00:23:05]>> Okay.

[00:23:06]>> The son-in-law of a resident tried to get a power of a general power of attorney >> from one of our residents.

[00:23:15]>> Okay. Okay.

[00:23:16]>> Shameful.

[00:23:17]>> Mhm.

[00:23:18]>> We have barred him from entering the property. But this is what he did in the guise of a of a birthday party. party >> he tried to do something like this. So we've got to be very careful >> careful.

[00:23:29]>> Okay. Yeah. So it is like this the way I understand it.

[00:23:33]>> You're not only taking care of the patient but the overall interest of the family over here >> because the other siblings can then you know reach out to you and say we had >> sent our you know parents to you and one of the siblings would have >> Yes.

[00:23:48]>> No.

[00:23:48]>> Yeah. It happened can can yeah can >> has played a dirty trick and you were not aware.

[00:23:54]>> Yes.

[00:23:55]>> So you have to take care.

[00:23:56]>> So when the resident comes to meet the family, >> the social worker or the uh two nurses, two people we have accompany the resident so that something like this does not happen.

[00:24:07]>> Understood. Understood. That's a false safe measure that you're >> keeping in place. In fact sir uh you know very valid point and I would also want to bring to people's notice that there have been some inhumane conditions where people have been >> yes >> kept with dementia at home. I was reading an article the other day where a gentleman was chained.

[00:24:31]>> Yes I have rescued >> I have rescued a patient who was chained to his bed.

[00:24:37]>> Correct.

[00:24:38]>> Feces urine.

[00:24:39]>> Correct. Why? Why they chained? because otherwise he will wander away.

[00:24:42]>> Not only that, >> I don't want my neighbors to know that.

[00:24:46]>> Correct. Correct.

[00:24:47]>> More than that, when you when the guests come, you have a party today at home and you have invited some 10 12 people >> and uh you are having some something to eat, something to talk and this gentleman comes and sits. What is your name? You tell your name again. You ask what is your name? You ask 10 times the same question. So it's embarrassing. He ask some irrelevant talk. So you get mad. So you are destroying my party.

[00:25:12]>> Party.

[00:25:13]>> So what to do? Put him in your room.

[00:25:14]>> Room. Lock him up >> in the lock.

[00:25:16]>> Cage him up if you have to.

[00:25:18]>> If you if he makes noise there, >> put belts, >> tie him up >> for 2 hours. He lies there >> or else go to some doctors which will give you sleeping medicine or some medicines. Give him he sleep.

[00:25:33]>> He sleep. Okay. So these are >> tying up is a very very common thing for dementia >> dementia people not to be done sir not to be done >> we have done we have seen patient come here with >> marks marks >> on the arms >> literally yeah >> literally >> legs also >> okay okay that's sad sad ma'am sir though we have spoken on your jit facility there still may be people who would want to take care of their loved ones with Alzheimer's or dementia at home. Okay.

[00:26:08]To these people or to such people, what would be your advice?

[00:26:13]>> See, first of all, there uh there shouldn't be just one caregiver.

[00:26:17]>> Okay.

[00:26:18]>> Because the caregiver can fall sick. The caregiver may have, you know, uh other things to do. Uh maybe work at home or stuff like that. It happens sometimes.

[00:26:28]>> So, >> it's ideal to have two caregivers.

[00:26:31]>> Two caregivers. We take we take turns in uh doing stuff.

[00:26:35]>> Okay.

[00:26:36]>> Uh another thing that caregiving is like you know look look for breaks.

[00:26:44]>> Okay.

[00:26:44]>> Look for breaks. Uh maybe watch a movie >> when uh the >> when the the patient is maybe asleep >> or something some engage in some kind of a hobby. Maybe you could knit, >> crochet or something like that when you're as you're sitting at the bed bedside.

[00:27:02]>> Reading, you can read, you can do you know many things when uh the patient is not active.

[00:27:08]>> Okay, >> that is one thing.

[00:27:09]>> Okay, there are people who are now getting retired. Okay, the term retirement is now moving from 60 to 50 because you know people because of AI coming in and other technological advancement people would want to take early retirement or you know for some other reason force retirement if I can say that so in such cases you have time now at your disposal and how how do you think people should spend their time after retirement so that they don't get into a loophole of dementia or Alzheimer's for that matter >> office people are the most one.

[00:27:43]>> Yeah.

[00:27:43]>> Are terrible.

[00:27:44]>> Okay.

[00:27:44]>> If you are going to the office daily, >> okay, when you say terrible, it is the people who are susceptible to dementia.

[00:27:51]>> Once you are out of the office, >> Uh-huh.

[00:27:54]>> you suddenly find nothing to do.

[00:27:55]>> Nothing to do.

[00:27:56]>> What do I do with my life?

[00:27:57]>> Yeah.

[00:27:59]>> Read it. I never read a book in my life.

[00:28:02]>> Okay. Games var time.

[00:28:04]>> Time to >> Okay. I did not know. Okay. You go initially you go to some friend's house sit there gossip >> after some time the friends also become sick.

[00:28:15]>> Yeah.

[00:28:16]>> They also do not are not interested.

[00:28:18]They don't have time.

[00:28:19]>> Okay. Whatever happens >> other than that you don't have any activity. You do not have aim in life.

[00:28:25]You don't have an object. You don't have purpose.

[00:28:27]>> So develop a purpose before you retire.

[00:28:30]>> Yes. Mhm.

[00:28:31]>> Do I will do something?

[00:28:33]>> Correct.

[00:28:33]>> I gave up my job at the age of 54.

[00:28:35]>> Okay. Okay. Came back, bought a land which was a forest.

[00:28:41]>> Okay.

[00:28:41]>> Worked for 4 years without a car.

[00:28:45]>> Mhm.

[00:28:46]>> Without a TV.

[00:28:47]>> Without a computer. I said I do not want this because in my childhood I did not have >> have it. Yeah.

[00:28:52]>> Okay. I should learn without it.

[00:28:54]>> Though despite him being from IT profession that is >> okay.

[00:28:58]>> He never had a cell phone. He didn't have a cell phone.

[00:29:01]>> So I said why I do this? Why I give this punishment to me? Mhm.

[00:29:06]>> Punishment told me tomorrow if I don't have this I should not grieve.

[00:29:09]>> Yeah. Yeah. Regret you know I had such kind of a life and >> regret and grief >> are the worst killers.

[00:29:15]>> Yeah.

[00:29:15]>> Number one. Second. So be happy.

[00:29:17]>> Mhm.

[00:29:18]>> Laugh.

[00:29:18]>> Yeah.

[00:29:18]>> Talk to people.

[00:29:19]>> Okay. Okay.

[00:29:20]>> Most of it which I have been reading recently is that walk.

[00:29:24]>> Okay.

[00:29:24]>> Walk at least two minds a day.

[00:29:26]>> Mhm.

[00:29:28]>> And that is one of the best exercises not only for the body, it is also for the mind. I do not know how. Okay.

[00:29:35]>> But they said that walking 2 miles, 3 miles a day is the best exercise for the mind.

[00:29:40]>> Mind. Okay. Got it, sir.

[00:29:42]>> Got it.

[00:29:44]>> Right. I think we have had a very fruitful conversation on dementia and uh Alzheimer's care >> and uh you know a very noble job that you as a couple are doing sir and ma'am.

[00:29:55]>> Thank you. we would want to have a tour of the facility and also engage in conversation with the caregiver staff because that is also very important >> that we we speak to them and understand their perspective as well.

[00:30:08]>> So I think we'll uh take a short break and get on with the activity go there.

[00:30:14]>> Great.

[00:30:15]>> Thank you. Thank you so much.

[00:30:17]>> Can you just brief us on the and give us a walk around?

[00:30:20]>> This is the foyer and uh area. to see uh we try to make this we tried to make this very spacious >> spacious >> airy as well.

[00:30:28]>> Okay.

[00:30:28]>> And uh well we we did uh succeed in >> to some extent.

[00:30:33]>> Yes.

[00:30:34]>> Uh these are our donors.

[00:30:36]>> Okay.

[00:30:37]>> So these are the good Samaritans who made this facility possible.

[00:30:41]>> Possible. Yes. Uh majorly the late Patrick Masprainus. His sister donated us to us 4 crores and more. And then we have Mr. Michael Buzza whom everybody knows.

[00:30:53]>> Okay.

[00:30:53]>> Yeah. And he has given us that amount.

[00:30:56]>> So yeah, it was thanks to these people that we >> have this facility.

[00:31:01]>> Yeah. Have this facility today.

[00:31:02]Sometimes I wake up and I'm like, "Okay, we did it."

[00:31:05]>> Yeah. You know, >> great. Great.

[00:31:07]>> Uh this is our um foyer. Uh this is the actually the visitors lobby. visitors lounge >> when uh residents are brought here and uh the exchange takes place between the family and the residents.

[00:31:21]>> Okay.

[00:31:22]>> And uh >> there are quite a few moments that you get to witness here.

[00:31:28]>> Okay. Okay.

[00:31:29]>> You know, and they're very touching.

[00:31:31]>> Okay. Ma'am, >> this is our pharmacy and uh our head sister Shoban.

[00:31:37]>> Hello, sister.

[00:31:40]So you have a pharmacy to cater for some of the basic requirements >> all all the medicines and we also have uh you know if you've noticed that >> this is um screwed into the wall.

[00:31:54]>> Okay.

[00:31:54]>> So these contain narcotics and stuff like that the necessary >> uh medicines required.

[00:32:01]>> Okay. So >> and sister Shoba takes care of all that.

[00:32:04]>> Okay. those who um come from outside that is the housekeeping and all that have a restroom as well as a changing station >> over there. Okay.

[00:32:14]>> And this room >> uh this this is the doctor's room.

[00:32:18]>> That's a doctor's >> not in uh we don't use it because Dr. Praba who is our CMO goes straight to the uh >> patient >> lobby.

[00:32:32]This is >> Yeah. This is where all the administrative duties take place. We have Frenita ma'am and Sahana ma'am who who take care of our >> administration >> all our administration accounts.

[00:32:43]>> Okay.

[00:32:44]>> And stuff like that.

[00:32:45]>> Right.

[00:32:46]>> And also they monitor our residents >> uh the exteriors and the interiors.

[00:32:53]Yeah.

[00:32:54]>> The top and >> Okay.

[00:32:57]>> That is very necessary.

[00:32:58]>> Yeah.

[00:32:59]>> Also thank you.

[00:33:04]This is our resident floor. It's >> the resident floor, ma'am. Yeah. Okay.

[00:33:08]Uh there's some activity going on here.

[00:33:10]>> Okay. No, let the activities go as they are planned, ma'am. We will not disturb the activities which are going on.

[00:33:15]>> We'll take a tour of the floor.

[00:33:16]>> Sure. We'll take a tour of the floor.

[00:33:23]>> So, this looks like a reception area.

[00:33:25]>> This is the lobby. The activity lobby.

[00:33:28]You'll see some of them here.

[00:33:30]>> Okay. Okay.

[00:33:30]>> And then uh I'll also uh show you the patient rooms.

[00:33:34]>> Okay.

[00:33:34]>> And uh >> this is the reception area where you have the CCTV men.

[00:33:38]>> Yes. And >> CCTV monitor is here and the nursing station.

[00:33:42]>> Nursing station. Yeah.

[00:33:43]>> Okay. Okay.

[00:33:48]>> So being a facility which takes care of dementia patients, this would have some special features which are not there in a regular building or a regular hospital. We have to have such >> we have to have such facilities.

[00:34:02]>> These are restraining gates.

[00:34:04]>> Restraining gates are there. Okay.

[00:34:06]>> So they are usually locked in the in the nights it is >> even daytime.

[00:34:10]>> In the daytime also it is loud. Okay.

[00:34:12]>> But we have ramps.

[00:34:14]>> Okay.

[00:34:14]>> With grab bars so that in in case a resident even wants to kind of wanders.

[00:34:20]Okay.

[00:34:20]>> Yeah. Can hold that and walk. But basically restraining gates is a necessity.

[00:34:27]>> Necessity >> for uh >> Okay. Okay.

[00:34:29]>> Now, if you also notice >> Mhm.

[00:34:31]>> there are switches outside the rooms.

[00:34:35]>> All right. Yeah, I'm seeing switches over here.

[00:34:37]>> You will not see any switches switches inside.

[00:34:39]>> Okay. So, is that to ensure that >> the person on the inside does not mess with the lighting?

[00:34:45]>> Correct.

[00:34:46]>> No meddling with switches.

[00:34:48]>> Okay.

[00:34:48]>> You know, so >> so the light switches, the fan, everything's controlled over here.

[00:34:53]>> Yes.

[00:34:54]>> Okay. So, these would be antiskid tiles.

[00:34:56]>> These are antiskid tiles. All the tiles, >> all the tiles are >> on the patient floor are >> Can we go inside please?

[00:35:14]>> If you notice uh our tiling is right up to the bottom uh to the top >> almost 8 ft >> because uh >> patients mess up sometimes.

[00:35:25]>> Okay. Okay.

[00:35:26]>> Because easier to clean >> clean.

[00:35:28]>> Yeah.

[00:35:28]>> We have anti-skit uh floor.

[00:35:31]>> Floor.

[00:35:32]>> These are our fowler scots.

[00:35:33]>> Mhm. What? What?

[00:35:35]>> Fowlers.

[00:35:35]>> Fowlers.

[00:35:36]>> Fowler. Fowler Scott.

[00:35:37]>> Fowler. Yeah.

[00:35:38]>> Okay.

[00:35:39]>> Then uh we have two residents sharing a room.

[00:35:44]>> Okay.

[00:35:44]>> Sometimes it is one depending on uh the aggressiveness >> or compatibility. They're compatible >> you know in some way or the other they do kind of help one another >> understood >> uh talk >> based on the security of condition and their >> response to other person >> other person. Yeah. So uh they and then these are their uh >> where you keep your diapers and stuff like that. And then we also have this which is hidden.

[00:36:13]>> This is hidden. Yeah.

[00:36:14]>> Oh okay.

[00:36:15]>> So that this is for the oxygen concentrator.

[00:36:18]>> Uhhuh. and uh other electrical uh equipment that would be probably required in course of time.

[00:36:26]>> Okay. So this is in case somebody needs oxygen or uh some other heavy equipment.

[00:36:33]>> Yes, >> this will be used but the residents should not misuse it. That is why it is locked up and hidden.

[00:36:38]>> Keep it locked.

[00:36:39]>> Okay. Okay.

[00:36:41]>> Understood.

[00:36:42]>> And I see you have CCTV camera.

[00:36:44]>> Every room. Every room has a 16° >> and they are monitored from the nurs's lobby.

[00:36:48]>> Okay.

[00:36:49]>> Uh the nurses station and down in the office. So there are two sets of monitoring.

[00:36:56]>> Okay. Okay. Okay. So there are two eyes to watch over.

[00:37:00]>> Yeah.

[00:37:00]>> Okay.

[00:37:01]>> And yeah we really >> anything on the door ma'am? Any special feature on the door?

[00:37:05]>> Not really.

[00:37:06]>> Uh locks over here or no bolts over here?

[00:37:09]>> No bolts. No locks.

[00:37:11]>> No bolts. No locks.

[00:37:12]>> Correct. These are all safety features that we have for residents with dementia.

[00:37:17]>> Okay. Got it.

[00:37:18]>> They don't so that they don't lock themselves in.

[00:37:21]>> Correct. That is important because if they have this tendency of locking themselves then becomes a problem.

[00:37:26]>> Yeah.

[00:37:27]>> Got it.

[00:37:27]>> Then we also have like sometimes if the door is closed we have this >> a peep hole. Okay.

[00:37:32]>> A peep hole. A bigger one so that we know what's going on.

[00:37:36]>> Okay. Okay.

[00:37:37]>> Without disturbing them. Mhm.

[00:37:41]>> We have wide corridors because uh residents wander.

[00:37:47]>> Wandering is a big uh problem I would say with with all who have dementia.

[00:37:55]>> So even if they cross each other in the corridors and all that we don't have a problem. So this is the one >> because of the width people can freely move about.

[00:38:04]>> Yes. And it is they need to walk.

[00:38:06]Correct. So this is very welcoming also.

[00:38:08]>> Yes. And having a having space gives you a sense of freedom as well.

[00:38:13]>> Freedom as well. Yes.

[00:38:14]>> Mhm. Okay.

[00:38:18]>> Got it. Ma'am.

[00:38:19]>> Okay.

[00:38:20]>> And I understand there's a evacuation plan also that you have.

[00:38:24]>> Yes, we have one on every floor and then uh on the ground floor there are four exits.

[00:38:29]>> Four exits on the ground floor.

[00:38:30]>> On the ground.

[00:38:31]>> Okay. And uh it has never happened but just in case something >> correct correct you have a drill which has been conducted >> we'll uh check out the activity room which was >> so we have Amrita and Smith with us both are MSW graduates and they are working with Sek Jit for the past couple of years we will ask them what inspired them to you know join the social cause and what are the challenges that they're facing when taking care of the residents at uh at Sushi. Welcome both of you.

[00:39:05]>> Thank you.

[00:39:07]>> Yeah, thanks. So uh you said there are several activities which happen here.

[00:39:12]What do you think is one very important and unique activity which is conducted with people who are having dementia and Alzheimer's than the normal rest of the people?

[00:39:21]>> Yes sir. Uh first uh prominent and very important activities that is conducted to the dementia care patients are uh sensory um activities. Sensory activities.

[00:39:35]>> Sensory activities.

[00:39:36]>> What are can you explain that in >> sensory activities are the activities where uh the individual are tied with a blindfold and they'll be given a object >> uh like for example a fruit or a vegetable. Okay.

[00:39:51]that will be given in their hand. They have to sense that, touch that and they have to guess what kind of vegetable it is or what kind of fruit it is.

[00:40:00]>> Okay.

[00:40:00]>> Then we can go to this one uh the powders like masalas like we can go to cinnamon powder.

[00:40:07]>> Interesting. So they have to smell it.

[00:40:09]>> Yeah. They have to smell it and they have to say that what is that exactly?

[00:40:13]>> Okay. Okay. Okay.

[00:40:14]>> So that helps in the >> memory recction.

[00:40:17]>> Memory recall.

[00:40:18]>> Okay.

[00:40:18]>> Okay. Not most in every cases but okay it can help them.

[00:40:23]>> Okay. And any other activity with respect to sensory or other?

[00:40:27]>> Yes. Next activities that we conduct here for the dementia care is uh physical activity. Physical activity include physiootherapy. Physiootherapy what we social workers psychiatric social workers do is there will be already a physotherapist. Okay. But these dementia patients what they will do is they can't adjust with the physiotherapist. Okay. They don't know the coping mechanism with them. So what uh we do is we convince them. We sit and talk to them. We convince them to the physical activity that is physiootherapy and we'll be giving them physotherapy.

[00:41:02]Physotherapist will be there but the psychiatric social worker must be present there.

[00:41:06]>> Okay. To guide which act which physotherapy activity can be done by a dementia patient. Yes.

[00:41:11]>> Okay. Okay. threat.

[00:41:13]>> Then the most uh important one comes as cognitive stimulating activities.

[00:41:18]>> Cognitive stimulative activities. What are they?

[00:41:21]>> That is a activities given to the brain.

[00:41:23]>> Okay.

[00:41:24]>> To activate the brain cells and these activities uh include puzzles, word puzzles, picture puzzles, crosswords, >> figures and many more. like uh uh for at first they'll be not that easy to cope up with that after giving a lot of practice daily after doing all those things they'll be able to do the puzzles most of them were not knowing to solve the puzzles promos and all now most of the residents here they are doing that >> all right so this will stop any downward trend of dementia and arrest that stage is it >> yeah it uh it can pre we can prevent them to go to the verse.

[00:42:06]>> Okay, >> that's it.

[00:42:07]>> Got it. Got it. Thank you. Thanks so much, Amita.

[00:42:10]>> Thank >> Yeah. So, we have Smithita with us.

[00:42:12]Smita, uh what has been your experience with the Sushi and how many years have you been working over here? Can you brief on that?

[00:42:20]>> Yeah. Uh I have been working since 4 years.

[00:42:25]>> Okay. For the past four years.

[00:42:27]>> Yeah. my experience uh yeah it is nice nice experience because it is different uh different profession >> I have other experience also earlier I was working in uh senior citizen helpline Pandeshwara police station so I like to work with senior citizens so I chose this uh profession profession >> so uh so I have many experience comparing to other this It is one challenging profession.

[00:43:00]>> Mhm.

[00:43:00]>> So it is nice.

[00:43:02]>> Mhm.

[00:43:03]>> Initially the the person affected with dementia they come here mute >> some of them >> somewhat mute. Okay.

[00:43:13]>> So because they don't get people to communicate uh at home.

[00:43:18]>> Okay.

[00:43:19]>> So uh after coming here we have nurses and uh psychiatric social workers and other staff.

[00:43:26]uh they get company here.

[00:43:28]>> Mhm.

[00:43:29]>> So uh and we conduct many activities as Amrita said uh we conduct uh cognitive stimulative activities, physiootherapy and we take them to outside uh for walking.

[00:43:41]So this make them uh to communicate well.

[00:43:47]>> Well, okay.

[00:43:47]>> Yeah.

[00:43:48]>> Mhm. So uh what we can say uh after after few days not few days few weeks they start to mingle with us.

[00:44:01]>> Okay. So there is improvement.

[00:44:02]>> Yeah.

[00:44:03]>> They feel you feel there's a sense of change in their behavior attitude.

[00:44:07]>> Exactly. And they think that we are the family of them.

[00:44:12]>> Oh okay. That's nice.

[00:44:13]>> Yeah. So and we we feel that we no uh we think they are our parents second parents. See that is that is the bonding and the thought process which we have and uh if their family doesn't come sometime if they won't come sometimes >> uh our staff tell that I'm your son I'm your daughter daughter uh uh they take their son's name >> okay >> and they believe that because >> so if they want to if they're feeling that they have to meet their son now >> and some of you will re you make an enactment of >> yes that person.

[00:44:50]>> Yes. Then uh sometimes uh few of our families are abroad.

[00:44:58]>> Okay.

[00:44:59]>> So uh they cannot celebrate their birthday.

[00:45:02]>> Mhm.

[00:45:02]>> Our staff um yeah few staff bring cake from outside and they celebrate their birthday >> their birthdays >> just like they can they celebrate one of the parents' birthday.

[00:45:14]>> Yeah. Correct. Yeah. So uh they they think that patient think that uh we are their family.

[00:45:22]>> Mhm.

[00:45:22]>> We are their uh I am their daughter.

[00:45:26]>> They think like that.

[00:45:27]>> Understood. So because that is very important having that bonding >> bond. Yeah. We have that >> that sort of a relationship where you look up to these residents not just as residents but something more.

[00:45:40]>> Yes.

[00:45:40]>> That is something we treat them as a parent.

[00:45:42]>> That is really good ma'am. That is really good.

[00:45:45]However that however while running this place you have encountered any challenges because you manage such a vast place you have about >> 30 odd people over here.

[00:45:58]>> Yes challenges are lot.

[00:46:02]>> Mhm.

[00:46:04]We have staff from north Karnataka, North India, North Kataka, South Karnataka like uh uh South uh sorry Kerala. So we cannot give long leave for them.

[00:46:18]>> Okay.

[00:46:18]>> But we give okay >> I I I adjust >> people and I give OT our nursing super superintendent gives uh OT for them.

[00:46:28]>> So giving long leave that is big challenge. Okay.

[00:46:34]>> Uh if they want to go tremendum >> Mhm.

[00:46:37]>> we have to we must sanction 6 days leave.

[00:46:41]>> Okay.

[00:46:41]>> So we have traveling time is there.

[00:46:43]>> Yeah. And nurses we have BSC nurses, GNM nurses, assistant nurses. So BC and GNM nurses prefer to work in the hospital.

[00:46:54]>> Okay.

[00:46:55]>> This is not hospital. This is dementia care center. So they prefer to work in the hospital. So we have scarcity of nurses.

[00:47:04]>> So uh if we don't give they go to the hospital and join.

[00:47:10]>> Mhm.

[00:47:11]>> So we uh I have to I must adjust.

[00:47:14]>> Okay.

[00:47:14]>> Then I should give leave for long live.

[00:47:18]>> Yeah that is the big challenge. Still I agreed.

[00:47:20]>> That's nice. That's nice. That's wonderful. Smita. And I I must say on a lighter note that stint that you had with Pesha police station. No.

[00:47:29]>> Yes. I think that is also helping you in managing such a difficult task and that is showing in your way how you speak and in your attitude also.

[00:47:37]>> Thank you so much for your time. Thank you Sita. Thank you Amita.

[00:47:40]>> Thank you so much you >> [music] [music] >> So moving on with the podcast, we have Mariela Duza.

[00:48:09]>> Yeah, >> Mariela Duza is a professional counselor and she has earlier worked with the Manipal University for the past three decades and now she is associated with Sushik Jvit. So what ma'am does over here is she gives counseling yes >> to the caregivers.

[00:48:27]Now somebody's can ask why is you know counseling required for caregivers.

[00:48:32]Don't the patients need it or the residents need it?

[00:48:34]>> Yes.

[00:48:35]>> Okay. The idea is from what I understand is to avoid burnout.

[00:48:40]>> Yes.

[00:48:40]>> To avoid burnout of the caregivers. Yes.

[00:48:42]>> We want to understand more on that ma'am.

[00:48:45]>> Okay.

[00:48:45]>> Can you please tell us a bit more on that?

[00:48:48]>> Yes. See uh I like usually what I say is >> caregiving is an art with a big heart.

[00:48:56]>> Oh that's a wonderful phrase ma'am.

[00:48:59]>> An art with a big heart.

[00:49:01]Because uh the caregivers uh >> put in so much of their dedication, their compassion, their empathy, you know, they require uh loads and loads of all that.

[00:49:15]>> And the dementia patient is not aware as to what is happening around.

[00:49:19]>> Yeah.

[00:49:20]>> Okay. Sometimes the dementia patients can beat them and see if it is a child.

[00:49:26]Okay. With a child maybe you can just reprimand the child. But with these elders, you can't do that.

[00:49:31]>> Mhm.

[00:49:32]>> Okay. So, they might beat them, they might throw their feces, they might shout at them, anything. So then these caregivers can't do the same to them.

[00:49:41]>> Yeah. Yeah.

[00:49:42]>> They can't do the same. Absolutely. So they have to be very nice, try to be able to, you know, uh cajul them and you know try to >> so talk something else. Correct?

[00:49:53]>> So they can divert their mind towards something else and all that. So for that they need a lot of dedication. They need awareness about the illness.

[00:50:02]>> They need empathy. And at the same time when I have my own problems, let's say I've had a fight with my husband, my children are my son has failed in class.

[00:50:12]>> I mean caregivers also have their family. Correct.

[00:50:15]>> So when I have these problems in my mind, correct?

[00:50:17]>> How can I do caregiving properly?

[00:50:20]>> Correct. I understand.

[00:50:21]So to elevate my uh anxieties, my tensions, if I can talk to somebody, >> see a simple example is see when we are upset, don't we want to talk to somebody about it? You talk to somebody, you feel a little nice, you feel a little less stressed, >> stressed, >> it's just that that I do.

[00:50:40]>> Okay.

[00:50:41]>> Okay. So maybe talk to them, help them to elevate their anxiety, their tension sometimes. Uh you know, give them another way as to how they can solve their problem. so that they can give better care to the the dementia patients >> because you know when you mentioned things like you know physical abuse throwing feces >> yes >> these are all inhumane things and in fact there are laws >> of people >> you know if somebody does that in the outside civil society there are laws to protect that person >> but here you are willingly >> doing it >> doing it or you are you're becoming a caretaker willingly >> to take care of residents who have that problem.

[00:51:21]>> Yes.

[00:51:22]>> So that's a very different mindset.

[00:51:24]>> Very different mindset getting those people >> they are getting paid. Okay. But even for payment nobody would want to do >> want to do that.

[00:51:30]>> See and that too especially when she's not of your own family.

[00:51:33]>> Correct. Correct.

[00:51:34]>> Okay. When it's your own family also you'll have problems.

[00:51:37]>> Yeah.

[00:51:37]>> See if it's your own family when somebody does something you you just keep quiet mommy don't say that don't do that shut up daddy something you can say but not with another patient. Mhm.

[00:51:47]>> So for that they require a lots and lots of empathy. That compassion should be there. Dedication should be there.

[00:51:54]>> Yes ma'am. Yes.

[00:51:54]>> And how would they get it?

[00:51:56]>> Correct.

[00:51:57]>> Through maybe counseling. Through giving them certain skills. Correct.

[00:52:01]>> And they also need a lot of awareness about their life.

[00:52:04]>> Correct.

[00:52:04]>> Unless they're aware. See what happens is uh shouting at them saying some you would have just seen some patient saying something, client saying something.

[00:52:13]>> Uh it is not that they're doing it purposely wantingly. It is part of the illness.

[00:52:17]>> So these girls they have to the caretakers have to understand understand that >> that is important >> and also for the retention part because >> somebody would have been trained at Sushi. Yes.

[00:52:29]>> For a couple of months or years and now retaining them becomes can become a challenge.

[00:52:35]>> Yes. Yes. Now once they trained at Sushi they're working here I'm sure they will be able to take uh care of anybody.

[00:52:43]Correct. Because the training that they get here, >> see they get training in we have a doctor who comes here who talks to them about the medical aspects and all that gives them training there.

[00:52:54]>> Then there is uh physiotherapists who are coming you're doing exercises for the patients. So these caregivers also take part in that.

[00:53:02]>> I come here for counseling. You know we have a lot of people who come here to help.

[00:53:06]>> Correct.

[00:53:07]>> Uh the patients and the management also.

[00:53:10]Plus what I'm feeling is the residents would have built a certain bond.

[00:53:14]>> Yes.

[00:53:15]>> With the caregiver.

[00:53:16]>> Caregiver. Yes.

[00:53:17]>> And it is important for both >> to continue in that relationship so that their lives are >> you know more easier and smoother.

[00:53:25]>> Exactly. Exactly.

[00:53:26]>> Carry on that life.

[00:53:27]>> Yes.

[00:53:28]>> Otherwise because of issues like this if the caregiver then moves out.

[00:53:32]>> Yes.

[00:53:32]>> Then one resident is deprived of a good caregiver.

[00:53:37]>> Yes. And another one coming in will take some time. time to adjust to get to know the person.

[00:53:43]>> Yes.

[00:53:44]>> And then also this person the resident may find it difficult >> to adjust to the other person.

[00:53:51]>> Yeah.

[00:53:51]>> There would be some comparison.

[00:53:53]>> Correct.

[00:53:53]>> They would be asking for the previous person.

[00:53:56]>> Correct.

[00:53:56]>> You know that those sort of issues would be there but for which these caregivers have to be prepared for anything and everything.

[00:54:03]>> That's why I said it's an art with a big heart.

[00:54:05]>> With a big heart. That's that's a very wonderful way of putting it through ma'am and uh thank you very much I I would say from the from the society from I would really >> no that's very little that I am doing >> uh like at Kamshhat also was seeing patients for counseling okay >> I would just want to give you one example there was one patient I was seeing this was a 75 year old man okay his wife had dementia >> so he used to come and tell me that uh He's 75. He can't walk properly. She was physically fit but she she had dementia.

[00:54:44]She wanted to go to the other thing and they used to sit and fight every evening. So I told him one evening if she say yes.

[00:54:54]Say yes. Yes.

[00:54:55]>> Okay. So I then I said let her go to the room.

[00:54:59]>> She'll forget why she went there. Mhm.

[00:55:01]>> Okay.

[00:55:01]>> Dress up again. or even if she dress up just take her to the elevator and bring her back >> and say >> she will feel happy it's okay no >> that day no fights both of yall are fine you're feeling better >> then after few days he comes and tells me yes I did what you did it worked >> great >> see that way if you should know how to tackle them >> and for that you need a lot of dedication and come back >> so thanks for bringing out this as a real life example because uh there may be dementia patients who are there at home Yes.

[00:55:32]>> Being taken care at home.

[00:55:34]>> We hope that they get to see this conversation that we are having.

[00:55:38]>> Okay.

[00:55:38]>> And they can uh take this as an example and implement in their daily life there as well.

[00:55:44]>> Yes. Yes.

[00:55:45]>> Thank you so much for >> Thank you so much. Thank you so much.

[00:55:48]Yeah. Thank you for having >> Thank you all for listening to us on our podcast at Sushek Jit. Now at Syetu it has always been our endeavor to bring to you information on such facilities which take care of senior citizens. Last episode you have seen that we have covered Manipal Hospital and respect center and this time we are bringing to you Sus Jit and please uh subscribe to our channel and we will be bringing you such content in future and if you have any clarifications please do comment and uh we will uh reply to you suitably.

[00:56:25]Thank you all. Have a great day. Bye.