Cancer Diagnosis 2026

追加: 2026-05-22

[00:00:00]Hi guys, Assalamualaikum. Welcome back.

[00:00:03]So, I actually woke up actually around 4:30 something a.m. and I was actually doing editing, finishing the editing for you guys before diagnosis, before I could go to hospital appointment today for diagnosis or the result or whatever it's going to be today. I don't know. I don't have any Like I'm not able to expect anything. I have to go with the flow, honestly. I'm feeling really nervous like excited finally reached here and then also feeling like nervous and so scared at the same time cuz I don't know what to how I'm going to deal with the news.

[00:00:36]I just hope it's not that bad news that I can't tolerate the news. I hope it's something that I can tolerate the news or is if if it's not even that I'm just scared, right?

[00:00:47]And you know what?

[00:00:49]I have diarrhea issue. I think I ate the wrong food yesterday.

[00:00:59]All right. We are here. It's 11:31. We are late. 10 minutes late. It's fine because the transport came late.

[00:01:09]I'm waiting for the left as usual.

[00:01:14]Just see my smile first before diagnosis. I have no idea what's going to happen. This face is changed and I'm finished. I'm done with the blood test. I need to go to consult the mom soon.

[00:01:57]This cost me 4.99. Expensive.

[00:02:03]Oh, I just eaten.

[00:02:09]Look at the weight as far as 56.something kilo which I'm so happy.

[00:02:13]Really better than 53 kilos of what I weighed before I went home.

[00:02:16]There's a bell and minus three. This is minus three downstairs but do you see the bell? That is when your treatment's done you can do that and I can need that bell for my treatment on my side.

[00:02:30]This is suspense killing me. What is the result?

[00:02:34]I just pray it turns well. I don't know when is my turn but there's so many people here.

[00:02:40]Try not to show anyone.

[00:02:48]I'm done guys. So Good news is that it's low grade.

[00:02:54]Involving stroma of the bone marrow.

[00:02:59]The treatment is only one and this is in capsules.

[00:03:03]I don't know how to swallow it but it's for a long term.

[00:03:08]They don't want stable. They want NED until I take it until it's NED.

[00:03:16]So I've got to tell you it's stage three.

[00:03:19]S.

[00:03:20]I was like what's S? Spleen. I'm like cool.

[00:03:24]So it's stage three S. We are in stage three guys.

[00:03:28]Like we were stage four and now we stage three. I mean fabulous. Fabulous. Like I am so proud of myself like how we waited for five months and we hearing good news. If I don't take this tablet now, I will be in the worst like no treatment then I will be in the worst situation and we don't want that. Your your numbers are falling down. Your blood cells many will be blood transfusions and stuff.

[00:03:49]He said the alternative is chemotherapy and then stem cell transplant.

[00:03:53]Literally, he was saying high grade for that.

[00:03:56]But he said it's not appropriate because it's best to do targeted, you know.

[00:04:00]It will help you to shrink the spleen size. And I think when I'm actually duration is like infinite but infinite indefinite. I'm like, uh.

[00:04:08]>> [clears throat] >> Quite overwhelming information. So, they will always give you in the first day a lot of information. As I said, she said there's a lot to take in. Which obviously here says Brukinsa 80 mg hard capsules. She was making sure that she would show me how it looked like, but then she said I can't show you because then we have to prescribe it and we can't prescribe it yet. And it's first of all you need to get PET city scan then you get the but then we got to get do ECG before and then we're going to do all the test.

[00:04:40]I don't know what I'm going to say to myself right now.

[00:04:44]She said, "Don't think too much. You'll get used to it, you know."

[00:04:48]Used to it? I'm not even getting used to it now and you're telling them I'm going to get used to it.

[00:04:57]Uh tomorrow I will be in a better shape, yeah. Tomorrow I have a second opinion appointment. I need to actually write an email to my second opinion. Which I will do that now. All the information I have to I have to scan these in and stuff. And then hopefully I can explain to her what is exactly I've problem with this.

[00:05:16]22 ml in length. It's quite big 2 cm.

[00:05:21]It's like 2 cm 2.2 cm in length. Marked with Zanu 80 in black ink.

[00:05:27]That's what how big that is. Of course, I'm going to have a trouble and having those in four. They're not giving you one. I thought it's just one. I'm like, "Okay, fine."

[00:05:37]At least I can figure out how to swallow one at least. But four? Come on, four and then it doesn't come in a liquid.

[00:05:43]The Clatterbridge has given me now just one option for a treatment and there's no clinical trial available for me.

[00:05:53]Yes, I am tired. I'm frustrated. I'm actually angry, not going to lie. But, do I have a choice now?

[00:06:01]Do I have choice for my survival?

[00:06:06]And I want to have another a second opinion.

[00:06:12]I know they told me I went to Maggie's Cancer Center. They told me like not to think too much. I asked the hospital transport, "Can you, you know, drop me to Maggie's Cancer Center?" Because like I couldn't feel myself. I couldn't even cry over there.

[00:06:24]I need to make decisions about this treatment, guys.

[00:06:27]I don't I have only till next week.

[00:06:32]I don't want to cry. I'm just tired.

[00:06:35]I'm tired.

[00:06:37]Since January, [laughter] I'm tired.

[00:06:41]I've been waiting for >> [laughter] >> this. I'm just tired.

[00:06:44]>> [screaming] >> Why my life is like that?

[00:06:48]I didn't even explain biopsy. They also did the same thing and then they're like, "No."

[00:06:52]Is that why God was telling me to wait?

[00:06:55]Because there's no treatment available?

[00:06:57]Is that the one?

[00:06:58]These pills, that would be for long term. I don't be so many side effects. I won't be myself. And in fact, there'll be like no break. I'll be taking this every day.

[00:07:10]Long term. It's not fair.

[00:07:16]It's like, you know, like some people have t- like one day break. There will be no break, guys. This will be every day. Why would you expect me to take this? I don't even I don't I don't see myself taking this medication. I'm sorry.

[00:07:28]>> [snorts] >> I don't know.

[00:07:32]Why?

[00:07:34]I'm done. I'm I'm done fighting for this cancer.

[00:07:39]Yeah, no. I I cry. Because I'm not allowed to cry, is it? Is it? not allowed to just cry. You're not allowed to be You have to be strong all the time. Yeah. No. You know what? I'm going crazy right now.

[00:07:47]>> [snorts] >> Chill. Chill. You You need to eat a past.

[00:07:51]And don't bother about the people.

[00:07:54]I need to write an email. Don't lose yet. You still have second opinion appointment. Speak [snorts] to her.

[00:08:00]Explain to her what is exactly the problem you have with this medication.