THEY CALLED MY SON A ZOMBIE - Loice Mwende ft Therapist Victor

Added: 2026-05-12

[00:00:07]Okay.

[00:00:16]And then my muscles were so tight.

[00:00:22]But due to doctor's negligence and your muscles are controlled by a certain gradient. So if the muscle is too tight that's what they call high tone.

[00:00:45]>> Okay.

[00:00:45]>> But sometime muscle can be too floppy.

[00:00:48]So then we call it a floppy tone.

[00:00:50]>> A floppy tone. If a child has a floppy tone, we say is floppy cerebo pulsy or hypo. Oh, hypo is hypo.

[00:01:13]TS show Hello. What's up beautiful people? How are you guys doing? I hope that you guys are doing great because I am doing great myself. It is yet another episode of the CS show and guys for the love, for the support. I truly don't take it for granted.

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[00:03:48]what I usually do best. All righty. So guys on this episode it's actually very educational but this topic it is actually very informative and actually very educational because I know most of us mothers like I mentioned make sure that you as a mother you and your kid therapist but before I introduce therapist So allow me to introduce Lois Muende from Tik Tok. Say hi over there and then >> Hi guys.

[00:04:27]>> Yes, that is Lois Mend. I know you guys know her from Tik Tok and actually honored to have therapist Victor Juma right on the other side. So doctor therapist doctor our therapist. You can do say hi on that camera.

[00:04:41]>> Hi.

[00:04:42]>> Yes. So guys that is Victor Juma therapist.

[00:04:46]I know you guys have seen you guys and it's going to be very educational, very informative and very encouraging.

[00:04:58]So do make sure that you actually do stay here for you to enjoy this conversation.

[00:05:04]So yes, I'm so honored to have you for a long time. But I do understand I'm so humbled. You're welcome.

[00:05:16]>> Yeah. Thank you so much for having me.

[00:05:18]>> Um, you guys should do intro. You're welcome. Introduce yourself on that camera.

[00:05:22]>> Okay. So, guys, yes, you all know me.

[00:05:24]I'm Louis Mende. I'm a mother. Not only a mom, I'm a mom to a special a very very handsome special baby. He has plastic cerebral pulsy. And we are on daily therapies, occupation therapy, physiootherapy, hydrotherapy, speech therapy, and phototherapy. Photo therapy. Okay.

[00:05:53]most of these things and it's very good actually to be informed condition. It's good to be informed and ready to learn. So we have therapist Victor Juma. Kindly do introduce yourself on that camera, what you do and where you're located.

[00:06:11]>> Okay. Thank you very much. Uh thank you for this opportunity to at least serve by sharing information.

[00:06:18]>> Uh professionally I'm an occupational therapist.

[00:06:22]>> But uh because of the families I also went ahead to become a counseling psychologist.

[00:06:27]>> Okay.

[00:06:28]>> And then finally a clinical psychologist.

[00:06:30]>> Okay.

[00:06:31]>> So entirely what I deal with I serve children all the way from birth >> to adolescent.

[00:06:37]>> Okay.

[00:06:38]>> Yeah. So we deal with a visit uh you know uh array of conditions >> but all that are neurodedevelopmental.

[00:06:46]>> Okay.

[00:06:46]>> So yeah thank you. And for profession I do a private uh entity. I run a early intervention center. It's located in >> Lington Lington.

[00:06:55]>> But yeah it's more of a a structured school. Okay.

[00:06:58]>> But that school deals more with uh autism and ADHD and other neurodedevelopmental conditions that affect school learning.

[00:07:06]>> School learning.

[00:07:07]>> Yes. Okay, that is very good. That's very good. So, Lo, you've told us that you have a special kid, a special special need kid, sorry, special need kid and I've seen him on TikTok mostly because you're so proud about it. I love the fact that you show how you actually do take care of him and you're so proud of, you know, karaoke as a child despite having the special needs. You're very proud of him.

[00:07:33]So please take us back and tell us how was your pregnancy journey because to do about you I would just like to learn more about you know CP and so how was your pregnancy and okay so my pregnancy journey was not that actually was not smooth at all I was a street child okay so what happened after we learned I was pregnant. My husband got sick and he was hospitalized into a coma and then things happened so fast and then for my husband's friend yes I was close to them but so after I went to my friend So I didn't have any elsewhere to go. I went back home but my mom so I ended up being a street kid.

[00:08:51]Okay. Yeah. Because even my first clinic month >> 7 month. Yeah. My first clinic was at 7 months.

[00:08:59]>> Yes. So my pregnancy journey wasn't smooth at all.

[00:09:03]>> It wasn't smooth at all. No. So you did clinic at 7 months?

[00:09:07]>> Yeah. My first clinic month because that's the time my sister Okay. Yes.

[00:09:25]9 months exactly 20 period of plus 2 weeks 2 weeks.

[00:09:43]So October 30th October 30th only insurance you don't have to mention first time mothers. So, okay.

[00:10:19]I didn't my muscles were so tight.

[00:10:42]until now the fourth day.

[00:10:51]Kgs >> 3.2 kg >> 3.2 2 kg.

[00:10:53]>> He was a healthy baby and he was so handsome.

[00:11:01]And then so after Oh, you waiting for the immediately.

[00:11:20]But now I fainted. Okay.

[00:11:28]So the whole night and I didn't have anyone to come and take me from the hospital.

[00:11:52]No, I didn't.

[00:12:07]Okay.

[00:12:25]So I was so naive. I didn't know.

[00:12:41]know you have hospitality for 2 weeks.

[00:12:51]>> 2 weeks.

[00:12:51]>> 2 weeks. Yeah.

[00:12:53]>> And then we were discharged but doctors failed to tell us that my baby has already complication.

[00:13:00]>> Oh, they didn't tell you.

[00:13:01]>> They didn't tell me.

[00:13:02]>> So when did you know that complication?

[00:13:04]>> 11 months.

[00:13:05]>> At 11 months. So 11 whole months. You didn't know?

[00:13:20]lose eyesight like he was partially blind.

[00:13:27]Okay.

[00:13:36]I'm a first time mom. I've never been around babies and then I didn't have again I didn't have anyone calling my son a zombie my baby one year.

[00:14:30]High muscle tone. High muscle tone. Yes, that's a condition or what? Okay.

[00:14:36]doctor maybe there that's a yeah >> okay uh thank you >> I think what she has already narrated there's a whole book >> uh that we need to define >> that is true >> yeah but uh briefly high m muscle tone is a type of cerebop paly you know cerebral paly >> is a a condition that affects posture and movement that's why the child was not doing anything >> okay >> so and your muscle are controlled by a certain gradient. So if the muscle is too tight, that's what they call high tone.

[00:15:11]>> Okay?

[00:15:12]>> But sometime muscle can be too floppy.

[00:15:14]So then we call it a floppy tone.

[00:15:16]>> A floppy tone.

[00:15:17]>> So if a child has a floppy tone, we'll say is floppy cerebo pulse.

[00:15:22]>> Or hypo.

[00:15:23]>> Oh, hypo is >> hypoppy.

[00:15:26]>> If you carry the child is just if you don't you don't carry them correctly, they may even dislocate.

[00:15:32]>> So we call it hypo. But the one high tone so the body is stiff and the child cannot you know do anything >> but there's another type where now that tone oscillates it's hypo it's it's hypo so that cerebral then it's called cereopy atoid >> yeah because the muscle tone does not stay there but both affects the children differently >> me surprisingly I thought like celebr it's it's it's just like one condition I did not know like a different I think it's good to be informed by the way and I hope that you guys are learning out there I didn't know so many types of celebrity anyone with so let me ask you Victor Dr. Victor when according to her I don't know you know according to me now let me talk as me I don't even have information when I when she's talking about prolonged labor for 4 days. I feel like maybe that could be the cause.

[00:16:44]>> Do you do you think that um prolonged labor as you make just what what what usually happens?

[00:16:52]What makes a kid get CP?

[00:16:54]>> Okay. So, uh first let me say Paul.

[00:16:59]>> Thank you. because a lot of things have happened there and what interests me is that you know she has mentioned that she was a first time mom. So I want because you've been talking about women and I think this is the the time. Yeah.

[00:17:12]>> Let me call the ladies here.

[00:17:13]>> Yes. And let me tell you that there's a lot of things when it comes to pregnancy because as she as she explains I can tell there's a lot of trouble that started during the pregnancy >> because I've heard her mention that she attended the first clinic at 7 months which is already a danger. So uh just briefly let me explain that uh pregnancy is very important and it is important even planning for it because there's so many conditions apart from cerebopal pulsy that come as a result of you became expecting without even checking does your body have enough iron >> does your body have enough nutrient to carry pregnant oh >> so there's other conditions such as spinobipida which come as result of the mom >> became pregnant but didn't have enough iron in the body. So it affects how the brain forms.

[00:18:09]>> Oh >> yes. So >> for every mother, every woman let's say for example if you didn't plan for pregnancy and it happens that's why they said the first thing once you notice you are pregnant attend the first clinic.

[00:18:23]>> So this first clinic is always important. The clinics are divided into three. There's the first trimester which takes the first 3 months and the second trimester again which takes another 3 months and the last trimester.

[00:18:37]>> So why is it important once you you you are expecting and you start attending clinics one it gives the doctors opportunity to start journeying with you >> first they will also tell if you are the first time mom and then they will know which precautions to start taking. If you are a second time mom, it gives them a history of what has happened with your first pregnancy. Was there any complications? Were you somebody who needed cesarian section? Did you have problem with labor type? Because there are those who will have prolonged labor.

[00:19:11]But at the end of the day, they will give birth to a normal child. But there are those who will have prolonged labor, but they also have some other physical or structural problem that cannot allow them to go through a normal process of birth. So then the doctors are given chance to save the baby and save the mother according to the history of who they are and their pregnancy.

[00:19:34]>> Oh >> yes. So mom say everything is okay.

[00:19:40]>> Immediately you realize you're pregnant kindly become a friend to the clinic.

[00:19:45]>> Okay. So cerebral pulsey now. So cerebop paly can be caused by a number of factors and these factors are both either during pregnancy >> or during delivery or immediately after delivery.

[00:19:58]>> Okay.

[00:19:59]>> Yeah. So during pregnancy for example when you're expecting and then something happen mostly second and third trimesters and something happens for example you get an accident you fall >> you know >> you can fall >> yes >> and stand up and you know feel some pain and you say everything is okay >> but that impact has to be analyzed if it has already caused any damage to the child >> because by that time the child's brain is very very delicate if somebody punchs you or somebody hits you anywhere around your your belly, >> the impact may affect the child. So that child yes they continue growing but already something has happened to their brain. So during pregnancy we want to check do you have correct nutrition >> or are you taking things that can interfere with that >> pregnancy? Are you smoking? Are you drinking? Are you eating things that you know >> things that can go and affect that pregnancy >> during delivery itself? You know, we have to check if are you able to push yourself.

[00:21:07]>> Are there conditions that can affect that process of you being able to push and deliver the Bible? If they that then means you need to be helped.

[00:21:15]>> So they need to plan for helping.

[00:21:17]>> So if that helping is not correct, it's not done correctly. For example, there are those children who are pulled out.

[00:21:22]>> If they are not pulled out correctly, that pressure affects the brain.

[00:21:26]>> So once the child is born, we have to take a history of did you deliver normally?

[00:21:32]>> Mhm.

[00:21:32]>> Did you labor for long to check was there distress for the child?

[00:21:37]>> There are those parents who deliver and they say when my child was born he had already ingested some food.

[00:21:43]>> Yes. That one has a problem. We have to check to which extent because what we are trying to do is to protect the brain of the child at that moment. If the child is born immediately and they don't cry, the reason why the doctors have to spank them >> is to introduce the first oxygen to their brain.

[00:22:00]>> Oh, >> the more it delays then it causes a condition we call hypo hypoxic condition which now affects the brain.

[00:22:08]So that one causes cerebop pulsy.

[00:22:11]>> Okay. If the child is pulled a lot may cause cerebral pulsey.

[00:22:16]>> Okay. So during delivery itself >> uh if for example you contracted some you know viral infections along the way can affect the child.

[00:22:26]>> Okay. And after the child is born there's other factors also. The child can be born but immediately they develop some some some turn yellow.

[00:22:35]>> So yellowish is a condition called jais.

[00:22:39]>> Jis. Yes. Jis ji or jice >> jice. So jaundice is a condition that explains there's a problem with the body >> that the liver is supposed to start you know uh you know purifying >> but the child's liver at that time is not function. Yeah that's true.

[00:22:57]>> So those substances move and go to the brain >> and they cause damage. So that's why immediately the child turns yellow they introduce light so that they can be able to to treat that >> of maybe their weight their child what do research it does not even cost anything but they only 20 you can afford that do research and learn it is so painful very emotional but like it's so it's so painful for real >> as much as I did not know like so much about CP I'm so interested like to know like Nico cuz I know there are people out there watch and they would want to know they want to understand those mind.

[00:23:51]It's it's really painful honestly speaking and you don't have to do that.

[00:23:54]So maybe the same condition they don't know where to go, how to start, who to talk to maybe just talk to them on that camera.

[00:24:09]>> Okay. So uh before we even know how where to go, it is very imperative that we all of us have a knowledge of how can you tell that your child is not developing uh normally. Like you see our mom here by year one by 11 months the child was still not sitting meaning there are so many milestone that the child was not achieving but she didn't know. So what happens is that once a child is born >> the first 3 months uh every child learns how to to put their head upright.

[00:24:46]>> Oh yes.

[00:24:48]>> So when you carry them you realize they can hold their head correctly.

[00:24:54]>> Yeah. M so when it comes for cerebral pulse pass that is the first sign that indicates that this child may not be developing correctly because for the child to sit they must have already achieve that head control and once they achieve head control and they are able to sit that's when they now start developing how to balance their body in space.

[00:25:17]>> Okay. Then from there they will start getting interested with things around them and then they will start you know turning falling down and waking up falling. So the more they fall and wake up or they assisted the more they are preparing themselves to be a walking creature.

[00:25:32]>> Okay.

[00:25:33]>> Yeah. So any mom out there if you you know out of any reason you have your child you're playing you give them a bath but by the age of 3 or 4 months you realize their neck seems not to be upright don't negotiate about that one run to the hospital and really insist that your child is is checked.

[00:25:56]>> Okay.

[00:25:57]>> Yeah. And once you realize that uh the child has such a problem, we normally say the first option will be for you to look for any public or government uh facility that around you.

[00:26:11]>> Okay.

[00:26:12]>> Yes. The government may not do a lot because of you know the pressure of how many people are coming in there the staff but the government facilities have one of the best protocols >> in identifying issues within the children. Okay.

[00:26:27]>> So they should be able to adise you >> as compared to a lot of private hospitals that are you know we have very well established private hospitals but we also have private hospital that are trying to establish themselves.

[00:26:41]>> Okay.

[00:26:41]>> So you may meet nurses or you know those who are there but they've been given condition of how much should come in. M >> so they may not be even concerned to let you know that your child has this problem and you need to seek >> that's true >> advice and we may not be able to handle it but you get >> so we normally say the first once you realize your child neck is not okay >> look for public facility and really get concerned >> okay >> yeah so from that is the basis >> okay >> but let me mention something >> okay >> clinic >> Mhm. is one of the best process that every mother out there should really put on top of their checklist >> because what happens is >> life out here begins inside.

[00:27:29]>> Okay.

[00:27:29]>> But none of us can know what is happening inside >> unless somebody who has uh you know expertise will be able to tell you because there's a lot of you know uh clinical procedures that are supposed to establish if this is a healthy pregnancy or not. And secondly, all those clinics are not just a check me and I go place.

[00:27:52]They're supposed also to be educative places where if you're first time mom, they really need to educate you on what to expect.

[00:28:02]>> You know, throughout the pregnancy and even when you give your first child and from there you also supposed to be educated about nutrition, you know, how to take care of yourself. Even as a mother, how do you come back to the shape? All those things are supposed to uh you supposed to be educated at those clinics. Yeah.

[00:28:25]>> Lo, I I'm so proud of you, by the way.

[00:28:28]>> Thank you.

[00:28:28]>> Continue raising karaoke with love, with care, like whatever you're doing, don't stop. No matter what you said, no matter what is done, don't don't stop.

[00:28:40]Is it reversible? Like are there like CP conditions that they can be reversed?

[00:28:46]>> No, cerebral is not reversible.

[00:28:50]>> Oh, >> it's a long-term condition.

[00:28:52]>> Okay.

[00:28:52]>> But depending with the severity. So this is what I will also want each one of us out there to understand. There is different severity levels. The severity comes uh depending on how long did this damage occur. Okay, >> you get >> uh and because of that there are those who will have a mild cerebo pulsy >> and then they will go through therapy and they catch up milestone >> and then most of the time such children becomes a level of reference.

[00:29:23]>> Every parent will be like oh the other child is walking I want mine to walk >> but maybe yours may be at a very different severity level. Okay.

[00:29:32]>> So, Cerebro pass itself has around five levels with level one being easily manageable. The child can pull through very easily. Level two, they will pull through but with some help. Level three it start being a bit difficult. Level four, five, they're very difficult.

[00:29:51]Majority of level five, four may remain >> dependent, heavily dependent on their caregivers entire of their lives.

[00:30:00]>> Yeah. But remember the types that I explained. Yeah.

[00:30:04]>> If you get a cerebral pulsy aratotoid >> even very severe they always keep their intellect. They are very intelligent because >> that jaundice does not affect other part of the brain that this person >> it goes to affect a place that controls voluntary movements.

[00:30:23]>> Okay.

[00:30:24]>> So they will have problem with voluntary movement >> but they are very clever. They understands everything. So they will do a lot of learning. They'll go to school.

[00:30:32]Some will remain on wheelchairs but verbally orally they will do all mathematics that you expect them to.

[00:30:39]>> Yeah.

[00:30:39]>> Is nearly the same as CP autism.

[00:30:42]>> No no no.

[00:30:43]>> Autism and CP they're two different things.

[00:30:44]>> Those are two different cases.

[00:30:46]>> Okay.

[00:30:47]>> Cerebop pulsy is a condition that affects posture and movement.

[00:30:52]>> Okay.

[00:30:53]>> But autism is a condition that affects >> brain.

[00:30:57]>> Brain.

[00:30:58]>> Yeah. and mostly autism children will just grow up typically they just achieve their milestones but when it comes to how their brain in uh interprets social experiences interprets learning concepts becomes totally different.

[00:31:15]>> So autism is clarified under what we call a neurodedevelopmental disorders.

[00:31:21]>> Okay. But cerebral pulsy is under posture and movement disorders. What we will say physical disability.

[00:31:29]>> Oh, so okay. CP is more physical is more physical. Autism is more neurodedevelopmental.

[00:31:35]>> Can a kid have can can they have two autism and CP?

[00:31:38]>> Yes. Yes. Yes. the coorbidities. They can they can remember a child with cerebral pulse is still a child >> and by the time the cerebral pulse happen maybe they already had a brain that is wired with autistic characteristics so they can exist together.

[00:31:55]>> How does the government help these kids?

[00:31:59]uh the government I think the first action that the government has done is to ensure that every department within every hospital has you know uh caregivers who can take care of this. So professional therapist, physiootherapist, speech and language therapist and I think colleges now initially we had very few speech therapists within our country but currently the colleges even Kenya medical college uh uh KU University there's programs that now have been developed to ensure that the government gets enough supply of of speech therapies.

[00:32:36]>> Okay.

[00:32:36]>> Yeah. There's something that I saw.

[00:32:45]What are those? What are they called?

[00:32:48]Okay.

[00:32:59]Okay.

[00:33:03]Okay.

[00:33:14]Ohible.

[00:33:23]Same applies to the hand.

[00:33:42]That's because Okay. Yeah.

[00:34:10]So Palm splint handintap.

[00:34:34]>> Maybe let me use analogy that will help you understand all those things you're explaining.

[00:34:39]>> Okay.

[00:34:41]uh your body remember I'm always saying it's a condition of posture and movement.

[00:34:45]>> Yes.

[00:34:46]>> So your brain >> controls your muscles, tendons and how your joints move.

[00:34:53]>> Okay.

[00:34:54]>> So it's like a very nice wiring of where the muscles and tendons knows which joint to move >> and which joint not to move. M.

[00:35:04]>> So if something happens to your brain that interferes with that wiring, your muscles then have no information.

[00:35:13]So for example, there's a muscle that allows you to pull your hand.

[00:35:17]>> Yes.

[00:35:18]>> But the same muscle knows when to release and allow the other one that is supposed to extend your hand >> come in play.

[00:35:26]>> So what cerebral pulse does once it happens it interferes with that synchron.

[00:35:31]>> Okay. So then you get for example if the child is plastic it means there's a certain muscle that pulls more than the other and may not release.

[00:35:41]>> Yes.

[00:35:42]>> So for example if the child pulls like that >> and the muscle remains there so they may not pull back.

[00:35:48]>> Okay.

[00:35:49]>> So meaning if that hand remains there >> this muscle will shorten >> these tendons will shorten and now it develop what she's calling contractors.

[00:35:58]>> Oh >> yeah. So all those splins are put there to help guide the muscles or help maintain the muscles to have the correct length instead of shortening and causing disability. In fact, what makes it difficult for that body to function >> when those muscles are not attended to and then they cause more contraurs that the body now cannot do anything. M >> so what we see at the end of it and say now this one is completely disabled is that we have now functional parts that never operated >> so you find the hands are here the legs are already locked so I can't >> I've seen such people by the way >> so I can't do anything >> oh >> yeah so the early intervention that was supposed to start 3 months after karuki was born >> is the one that now helps to utilize time because Remember your the child everybody's brain when you're born up to around 12 years your brain has high capacity to be challenged and you know transformed into something else training other part of the brain to be able to pick up. So that's why we want now the child to start therapy very early so that we can use this ability for the brain to learn so that it can learn and carry out some other functions.

[00:37:20]But the fact still remains we must know which level are we dealing with because very grossly affected brain may be maintained and not transformed to function.

[00:37:32]>> So there are those children who will be just maintained physically to be allowed to grow with dignity and esteem without a lot of you know flexed body and whatever. But there are those who will pick up bailing with with the level and go to school and be able to sit right and do all these things.

[00:37:51]>> Yeah. Lo, is it expensive to raise karaoke?

[00:37:55]>> Very expensive. Very very expensive.

[00:37:58]Therapy is expensive.

[00:38:02]>> Which is expensive.

[00:38:04]Sometimes when the baby is sick and the doctor realizes this a special baby.

[00:38:12]>> Oh yeah.

[00:38:13]>> Oh. Yeah, if you go to hospital and they see it's a special kid000 back.

[00:38:46]So these kids and how have you been managing it?

[00:39:10]>> It's hard. M it's very very hardful sometimes.

[00:39:40]I know.

[00:39:57]It shall Yeah. Doc, so these kids, they're supposed to eat food different.

[00:40:05]They can just eat anything.

[00:40:06]>> Yeah. So their nutritional intake may be a bit different. Remember I keep on saying this the severity level >> uh you see you'll have a child and you may not think that they are working but just the energy >> that is required to maintain the body the way it is is a lot.

[00:40:26]>> Yes.

[00:40:26]>> And then you will realize if they it means even their jaws as plastic. So they may not even chew the food >> you expect them to chew but you still need to give them nutrition. So you may be now be forced to go into formulas or other food that are already have are nutrient rich but they don't come easily you know for for just a child who's typically growing. You will bring some andali and they will enjoy.

[00:40:53]>> That's true.

[00:40:54]>> It's a good nutrition but this child may not do that. So you need to get a supplement or food that is rich in that kind of nutrition and then it doesn't become just very easily >> and it's expensive of course >> expensiveensive expensive month Y expensive for a hospital. Hospital per session 4500 3,000. Yeah. For how long?

[00:41:55]>> 45 minutes.

[00:41:56]>> 45 minutes?

[00:41:57]>> Yes. Expensiveensive stretches.

[00:42:18]on Wednesday.

[00:42:40]At the end of the day, there is nothing you can do unless You do it every day. Every day every day. Every day.

[00:42:58]>> Doc, is there like a way apart from Okay, I'm just trying to find a solution cuz some I know like it's a bit expensive.

[00:43:07]>> Is there like something that she can be doing at home that she does not have to go to to this to the hospital. So >> uh this is the information that I will wish many people to understand.

[00:43:20]>> Yes, >> the therapy is supposed to be a 24/7 thing.

[00:43:25]>> Uh but given the resources >> and time >> most hospitals will give you a number of sessions and just the way she has said >> uh the private hospitals will give you more sessions as long as you can afford afford them >> but it becomes very expensive. M. So the best rehabilitation model then says >> as a parent also you need to find out apart from hospitals are there community based programs that offer such processes and I can tell you yes within Nairobi we are very lucky that within Nairobi there's a lot of >> things happening which you may not compare to other towns apart from Nairobi. So the best models like I happen to be a member of one of the community model >> it's called seap >> seap >> seap is a special education professionals >> it's a good a team of uh consultants and professionals me being one of them >> okay >> that we really volunteer our time to work with communities >> so what the model does because we expect that like now kyuki do you know that karyuki needs around 25 hours of therapy per 25 hours.

[00:44:36]>> Yes.

[00:44:37]>> Uh-huh.

[00:44:38]>> And then per almost a month we talk about around 100 >> which now that is intensive therapy that is supposed to give some >> that's like 3 hours per day.

[00:44:48]>> Five five five hours per day.

[00:44:49]>> 5 hour per day.

[00:44:50]>> So this 5 hours per day it's not that now we will just be there doing therapy with >> the environment is modified.

[00:44:57]>> Okay. in a way that everything that kuk is doing is therapeutic and is addressing something. Ah, >> so then what we normally do or what is supposed to be done that when the parents come for therapy, >> you take time to train them >> on how to do this process all the way from everyday positioning. How do you feed them? How do you dress them? How do you leave them even if you for example I I've not met Kyuki but I would say maybe Kyuki spends a lot of time lying on bed or on whichever mat you've given.

[00:45:32]I don't allow >> a >> then you are you are very educated.

[00:45:38]>> So and if not you've gone somewhere and you've been given a positioning aid where he will be seated there most of the time.

[00:45:46]>> Yes.

[00:45:46]>> If you don't need have a positioning aid many parents will get a chair and they put the child on that chair but because the chair doesn't follow correct body alignment you start causing other deformities.

[00:45:59]>> Oh there's a seat for that. Yeah, there's we call >> not like a normal seat like >> no not a normal seat. So what normally do happen because it's post movement another technology exists that really develop positioning aids that are supposed to mirror how the body is aligned.

[00:46:17]>> For example, if you need to sit 90° that chair can be adjusted to that.

[00:46:23]>> Oh >> you can't you cannot sit for 90° more than 2 hours. Yes.

[00:46:28]>> So that chair is given fabrication to a way you can tilt it back, you can put it, you can raise it up for the child to stand. So why those? So that you can keep these postures into different normal postures >> throughout the day and so for so doing you help the brain to start learning and you know uh retraining itself.

[00:46:53]>> Okay. But besides that this parent must be trained to know. So what SE does for example >> it invests a lot into training mothers on how to become their therapists and that is the model where all of us are you know advocating.

[00:47:10]>> Yeah.

[00:47:12]>> Yes. Me I feel like that is actually the most important because it can be do you usually charge for that?

[00:47:17]>> Uh because it's it's more of a community based uh there's no charge.

[00:47:22]>> There's no charge.

[00:47:23]to locate which project exist that se works with like I had her mention she comes from >> so around there's a project there in one of the Catholic >> where seps trains you know what what it does it trains the therapist other therapist that are doing therapy and also trains the parents >> and also it keeps you know updates of what is changing into therapy >> you know you can also attending therapy and you're doing old outdated therapy.

[00:47:55]>> That's true.

[00:47:56]>> And now you every day you're going and the child may not be benefiting a lot.

[00:48:00]>> Yeah. So you just have to locate it and then become a member of the project and uh you know how how many days they do for that project and you just take your child there you get trained and besides that also >> we do a lot of what we call psycho >> social education.

[00:48:17]>> Okay.

[00:48:18]>> Yeah. One of the reason why I had to go and become a counseling psychologist was that >> because I was meeting parents and you realize >> however much you are dealing with the child >> the parent has 100 plus issues that need to be >> to be dealt with. Then now we help you to be stable >> for your child and then you can now you know up and support support your child.

[00:48:41]>> I feel like we need a parture of this.

[00:48:43]Yeah, >> I feel like we need a pure of this.

[00:48:46]>> But for this episode for now, I would want us to, you know, call it a quit for now. But before then, I do want you to talk to people on that camera. Just tell them where you're located, how they can join the community cuz I know be a little bit informed at least you'll be going there. It's not they're not charging. Just go. I know sometimes it can be tough and you know, yeah, just you'll talk to him. But anyways for you doc just talk to this camera tell them where you're located how they can join the community and all that.

[00:49:16]>> Okay. So uh thank you very much for for uh tuning in.

[00:49:21]>> So personally I run a project called Nairobi intervention center but it deals with autism and other conditions. Okay.

[00:49:29]>> But for cerebop paly I'm a member of special education professionals. It's a community that if you just go online and check uh special education professionals, you will get them their they have uh social media visibility and you can be able to log into their projects depending where you are. Okay.

[00:49:48]>> But mostly they go into community. So they are big in Kbra, they are big in Mukuru, they are big in uh Kahawa. Okay.

[00:49:57]>> And then also the outcast of Nairobi. So once you lo I'm located at this place which is near me that I can be able to attend and you know get that.

[00:50:11]>> Yeah.

[00:50:12]>> Okay. Thank you so much doc. I really do appreciate. Sorry therapist Victor.

[00:50:17]Sorry. Thank you so much for coming. I really do appreciate. I know definitely these people will call for you again and again again because me personally about autism cuz I feel like I know nothing about it.

[00:50:30]So maybe the next one you come we'll talk about it for your time. I really do appreciate. May God bless you for you.

[00:50:36]>> Just to say something before I leave.

[00:50:37]>> Yes please.

[00:50:38]>> Whatever I'm sharing here >> is a little that I know. Call me for autism.

[00:50:43]>> I will.

[00:50:43]>> That is where that's what I do for the last 14 years.

[00:50:47]>> Okay. Okay. Definitely I will. I'll definitely call. Thank you so much for coming. Continue raising.

[00:50:56]You guys have been seeing the pictures as we talk. So, thank you so much for doing the good job that you're doing. We celebrate you as a mother this month.

[00:51:03]Continue doing what you're doing. Don't give up.

[00:51:09]Don't give up. Okay? It's going to be all right. It's going to be okay. I know it's not easy, but guys, for watching this episode, I know you guys have learned a lot.

[00:51:21]Imagine. So doc, I think doc will be coming frequently.

[00:51:25]But thank you so much guys for watching this episode. I hope that you guys have learned at least one or two things. Till next time. Bye.