From fear to hope !!

Ajouté : 2026-05-27

[00:00:03]Hey everybody, it's Dave. How y'all doing? I'm doing pretty good for Tuesday. We did have some bad weather.

[00:00:09]Yeah, I felt a little off. Funky. No vertigo. I've only had one attack in a year.

[00:00:15]I'm very, very happy with that. But you know, do you remember when you first had that first attack?

[00:00:26]Do you remember that? I remember mine.

[00:00:29]It was Christmas Eve 2014.

[00:00:32]I thought I was dying. I literally did.

[00:00:35]I was like, "The world was spinning. I'm vomiting. I can't stand. I'm sweating profusely. I must have lost three pounds sweat.

[00:00:44]It was awful. And and you know, I got my sister-in-law, the nurse is over and she's telling me, "Oh, it's just a virus." And I'm like, "Well, all right.

[00:00:52]Listen to the nurse." you know, and then, you know, the next day when I woke up, I felt okay. I kind of felt like I drinking all day, all all night long, like a hangover.

[00:01:04]Um, but, you know, I made it through the day and all that stuff. And then the day after that, I felt pretty good, felt fine, felt normal. So, I'm like, "Oh, yeah. Must have been a virus."

[00:01:14]And then, you know, couple of weeks later, I'm in Virginia with my son, dropped my son off at AIT training, ATI training, uh, whatever they call it. It was 10 years ago or 11 years ago. So, AIT training. And while I was down there, luckily, I was spending about four or five days doing some sightseeing and whatever. And in case he needed something, um, I had another attack. Okay. Wait a day.

[00:01:43]Okay, wait another day.

[00:01:45]I don't know what this is. The virus isn't gone yet.

[00:01:49]And then come home.

[00:01:51]We get a blizzard. I'm shoveling. I get another attack. At this point, I'm going to the doctors.

[00:01:58]Doctors. Oh, well, you know, they did that epil maneuver and I felt a little better, but you know, okay, it's BPV, benign posterial vertigo. Here's some mexal mechazine through these exercises.

[00:02:17]Okay. So, for like a year and a half, every time I had an attack, which was pretty awful, I did that. It took me I was able to make it through work. I was able to make it through the day, whatever.

[00:02:28]And then it stopped for a while and it came back with a vengeance, you know. And in 2017, after all the trips to doctors and all that stuff, I got diagnosed with miners.

[00:02:41]Now we get to that point, you know, because now at this point, you know, we're in support groups. We're listening to other people's stories.

[00:02:49]And you know, other people's stories are just that. They're stories. Not that it didn't happen to them. It did, but they're stories. And it doesn't mean it's going to happen to you.

[00:03:00]Okay? I learned that, you know, it doesn't mean it's going to happen to you. But we can get in that to that point of feeling lost, lonely, depressed.

[00:03:17]You don't want to be here anymore.

[00:03:20]And I understand that because I've been there. I've been there. This channel is called the Mania's experience.

[00:03:28]So, I've been there, you know. Luckily for me, I I met a good friend who we still talk every day, like nine years later. Um, founded groups together. Some of you may know her. Gina Gina Marie uh Santana, you might know her. Great person, great gal. I I love her to death. Um, you know, but I she pointed me. She didn't tell me exactly what to do, but she would point me in a direction.

[00:03:59]And you know, if you're having depression and thoughts and those thoughts, you need to get help. Okay?

[00:04:07]You need to get some help. Behavioral therapy, there nothing wrong with it. I did it. I still once in a while go. Um because this is a very scary thing, especially when you don't have it under control. Um and and it's hard to get it under control. And I know the only way I was able to get mine under control was surgeries.

[00:04:29]Okay. Sometimes other people, you know, other people can get under control with medications, beta histine, diuretics, low salt diet, you know, steroid shots and gentyosin shots and and and beta histine and get under control. I I couldn't and I can't take beta histine.

[00:04:46]So um the only thing that helped me get anything under control was surgeries.

[00:04:54]So when I had the surgery for the labctomy labctomy in 2019 that stopped the vertigo for a while.

[00:05:03]Okay. I still had the tonitis. I still had the earfulness. I still have the earfulness today. Um but the vertigo stopped. Then the vertigo came back few years later.

[00:05:16]Now I'm bilateral. Okay. It's the only thing you know you weren't going to go through all the shots in the g. We did the steroid shots. I will say that and that did help. I was getting one every three months but it was becoming you know I don't want to come every 3 months to get a shot in my ear. So we did the sac decompression surgery and that seemed to take care of the vertigo.

[00:05:40]One attack in a year. So the surgeries is what got me under control. When you're not having control, it's very, very easy to get to that point where you don't want to be here anymore.

[00:05:51]That's when you got to get help. Because see, over time, once you get under control, over time, you can get used to the tonitis, the deafness, all these things. And there are things out there to help you with the deafness and and tonitis. I will say this, my tonitis has calmed down quite a bit with the coar implant.

[00:06:13]Um, in this side it it's calmed down quite a bit. I still have times when it goes, but it's a lot better. But even before that, it was, hey, I got to live with it. I'm not going to stop living because I got this.

[00:06:33]This isn't a permanent thing. I mean, it's a permanent thing, but I have to learn to live with it. And that's what you have to do. And you have to learn to live with it.

[00:06:44]Sorry to say, you do.

[00:06:47]Epsilon isn't coming out anytime soon.

[00:06:49]There's no magic cure from Japan. And not everybody who has miners disease, it's TMJ. I've seen that post today, too.

[00:06:58]So, you got to learn to live with it regardless. And if you need therapy, go get it. It's I'm telling you, it's going to change your life, change mine.

[00:07:08]So remember one thing. It's kind of a new thing I've kind of got in my head. I got you. You got me. And together together we're unstoppable.

[00:07:21]On that note, I'll talk to you'all later. Bye.