Autoimmune diseases that attack the brain, such as Anti-NMDAR encephalitis, can cause severe symptoms including seizures, memory loss, personality changes, and catatonia, often leading to misdiagnosis as psychiatric conditions; however, with proper medical treatment and unwavering support from loved ones, patients can recover and rebuild their lives, demonstrating that no one should face such challenges alone.
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His Wife Said: "You're Not The Man I Married" | Wady Autoimmune Warrior | OUTSIDEIN EPISODE EP 258Added:
She said that I will accept that I have married the man who is not the man I married before.
>> Yes.
>> I don't even have the mental capacity to feel sad for her.
>> That's how bad it was. Right. What my wife told me is like when she asked me a question or she's crying in front of me, right? I will give a blank stare. My wife is a doctor, right? Cannot take this kind of diagnosis. No, my husband is not depressed, >> right? There must be something else going on. Yeah, she pushed the doctors to do this uh lumbar puncture. It was positive for anti-NMD and sephilitis which is an autoimmune disease that attacks my brain.
I didn't start this company just to design homes. I started it because I saw how uncertain and stressful can be for home owners. Hi guys, I'm Ron from Dream Makers Interior Part Limited. I'm in the industry for the past 20 years. I started Dream Makers in 2017 out of passion for the designs and the works.
This industry have a very bad reputation. It is important that our ethos is about trust. Trust means being honest even when it's uncomfortable.
Telling the customer this might not be the best idea even if it cost us not overpromising just to win a job. In dream makers is always about developing talents to grow the team. We provide in-house training to ensure that our talents meet the necessary standards.
Renovation is something people do once or twice in their lives. So naturally there's uh a fear in something of the unknown. For me, it starts with clarity and transparency. I make sure clients know exactly what they are made for. No overpromising. If something is uncertain, I say it upfront.
Something will go wrong. What matters is how it's handled. Most delays happen not because of the work itself, but it's because of poor coordination. We plan it backwards from the start. We also build buffer time for critical stages and keep a tight communication loop with all parties from clients to subcontractors and also our suppliers.
>> A good renovation looks great on day one. A great renovation still works beautifully years later. It's not just design, it's for sight. Small functional details that affect daily life. For instance, number one will be powerpoint placement, door swing clearance, circulation floors, proper waterproofing transitions in wet areas, and lastly, alignment and finishing consistency.
These aren't Instagram details, but they are what make homes feel right.
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>> Trust.
>> Hey. Hey. Welcome back to another episode of Outside in with your host Yan >> and V, your go-to source for honest conversations about relationships and marriage.
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I think first and foremost we want to thank Dream Makers Interior for sponsoring this episode in Jang Looper to follow them on all of their socials on Instagram, Tik Tok, the Dream Makers Interior Private Limited.
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>> Okay. Do that. Inquire as much as you can. know anyone young ask them push dream makers to them to them from outside in inshallah with your support guys inshallah they will be able to support us also and you also will support them >> ecosystem all right >> we talking about ecosystem kind >> I like it I like it >> yeah I think we we as human beings we will always want to have a lot of um support around us >> of course ice maker >> iceaker sing but at the same time what I was saying is we we we as human beings is we thrive with the support of people around us especially from the ones that we love.
>> We thrive when we are in our hardest uh hardest state of hardest phase of our lives when when there's people around us that supports us. I >> think that's what uh the human ecosystem is built for.
>> Yes. And I feel this kind of episode it will be like I feel like it'll be a bit more um emotional inspiring inshallah to all the listeners.
But I feel like today story uh is meant to be told because um there was one lady who approached us and say like hey we are a community of so and so uh would you like to know more about our story?
So we actually did talk to them and we found out things that we we never knew existed. Mhm.
>> So today uh we have one of their members right in today he's going to tell his story and um without further ado let's introduce him >> right welcome to outside in wadi how are you doing today yeah I'm good >> so uh first and foremost thank you for coming down apart from your busy schedule is a music instructor and he has a lot of music background which is something that resonates a lot with us because musicians again. And I feel that um he's he's him being here today uh will open up our eyes to a lot more than just what autoimmune disease all about.
That's the Buddha.
>> Yeah, that is what it's going to be about today in >> Yes. So um before we actually talk about the autoimmune disease can um that is the main bulk of it. But before that we would like to know who you are like um Yanto has mentioned a little bit like you are a music instructor and things like that. So life before um you know the the the dark side happened like >> Star Wars.
>> Welcome to the dark side. Who are you?
Like can you introduce yourself, your name and maybe your anything that you want to share?
>> Okay. Um basically I'm Wii. Um close to 40 this October.
>> Oh you don't look like it.
>> So when I was growing up I was a naughty kid. uh not say very smart but I went through good schools but I just flung because I don't come to school lack of discipline >> you can say that basically I'm just not serious in life okay um and then when it comes to after NS and going to the working world I start to uh >> work my way up from being being like a forklift driver all the way to having my own shipping company You have your own shipping company. I buy and sell uh shipping containers.
>> Oh my goodness. That's not an easy thing to do. See, >> it wasn't. But what I'm trying I'm just trying to climb my way back up and trying to gain back loss time during my school time.
>> Right. Right.
>> Right. So I was at the peak of my life.
So I already had my own company. On top of that, I'm still working full-time.
>> Wow.
>> My previous company was good enough to let me run a company.
>> Mashallah.
>> So everything was great. And then on top of that, my wife also just finished her medical studies. She's a foreigner. So coming in, she need a post-graduate uh certification >> and she got accepted into Sang Hospital.
And plus I have one uh young boy that is very handsome and very smart.
>> Yeah. So my life was on the top.
>> Right. And at this point in time, how old were you and how long were you married to your wife?
>> It was in 2018.
>> 2018. Okay. M 2018 I believe my son was only three at that time. So I should be married to my wife around four or 5 years.
>> 2013 2014 your marriage.
>> Yeah.
>> My marriage was 2015.
>> 2015.
>> So my son was around three or four.
Yeah.
>> Right. Right.
>> Oh. So during that point you feel mention you had it together. You had a good career. You had a family.
>> You had a business.
I have a BTO. Right. M everything was going smooth.
>> Everything was great.
>> And then what happened?
>> Then during the covid period uh suddenly I had seizures at home.
>> Yeah. But before that I had some uh some symptoms. So it started with this thing called photophobia. So everything I see is silo. Any kind of like like even looking at my computer doing work I will see.
>> Very hard to see. like I tried to change I thought green screen or blue screen or whatever to make still is a problem for me >> right so when you when you're looking at the screen and all that it's kind but this is 24 hours like that >> wow >> oh my god >> yeah so were you thinking that >> I don't know as I said my wife is the doctor so every day I will consult her first she say so why not you as NEC. So they did every single test then they just told me that probably I just need glasses.
>> Oh >> okay. Uh were you wearing glasses at the point in time?
>> I supposed to.
>> Okay. So you thought it was just kabua >> but then again photosensitive technically you already cannot get the glare into your eyes but everything is requires light.
>> Correct. Then you were not able to go out in the sun without feeling the need to screen your eyes and all that.
>> Yeah. Correct. That's very true. Oh um once in a while okay but this one is 24/7 that is not normal already something worrying >> yeah and then and does it make your head hurt I don't feel any headache just annoying and irritating that is one then another symptom I had was uh cannot sleep at all I I went through like three four days no sleeping >> yeah I even tried like at night I will try to run for long hours come back so she cannot sleep >> just to make sure you're tired but end up Correct.
>> And that goes for almost a month.
>> Oh, over cranky.
>> Yes. Correct. I tried sleeping pill. All right.
>> But still you couldn't even if you sleep alo it's just for a few hours or like >> for a while and then you wake up feeling tired.
>> Correct.
>> And all these symptoms were okay. First you had the photosensitivity >> and then you had insomnia in a sense.
These are the two two indicators that you thought was just trying to go through a change in life.
>> Yeah. Which is you see I I already told you I'm at the top of my life and it was really good like my first year in my company I make like half a million dollar revenue.
>> Yeah. So that's very successful for like how stressed can I be? I have a nice kid who doesn't give me any problem. I have a wife who just got her job here.
>> But so there was nothing that points to stress or anything. Right. And then we went to the doctors and doctors also said you're fine. So >> right.
>> So there was no there was no indication of uh any specific disease. You just tired.
>> Okay.
>> Maybe just how long did you leave your life like that the photosensitivity?
How long?
>> It's around one month.
>> Around one month.
>> Yes. And then eventually was there a moment you this is not normal like I need to get a diagnosis or something >> considering your wife is also you know with a doctorate.
>> So what happened is that uh there was this one fateful day where we were eating. I'm not sure what my son did but my son did nothing wrong and then I just started screaming at him or maybe he did a small mistake >> and then uh my wife was like shocked also and straight away like my wife and I I'm angry she just like you go away I just go to my room >> then after that my wife find me having seizures >> like just like uh >> I have the video. I'm not recommended to watch it.
>> Yeah, but >> you guys want to show I'm I'm okay with that.
>> Oh, that's that's scary.
>> But your wife I make CCTV.
>> My wife took and that was my second CJ at the hospital.
>> Oh wow.
>> So this when you're having seizure, you technically don't have control of anything in your body.
>> I don't even remember.
>> Oh, >> you don't even remember how you got to that state?
>> I don't remember at all.
>> Correct me if I'm wrong. All you remembered was >> your wife say okay go away cool go and cool down >> you went to your room next thing you know you remember you wake up in hospital >> I don't even remember going to my room >> oh >> oh it started earlier >> yeah I don't even remember going to my room and then she found me in sees and then she called the ambulance everything and she was quite surprised because she's a foreigner right she's from Indonesia she was very surprised at the efficiency of the ambulance like she straight away call she just they don't ask any more questions they ask address they straight wake up come be careful please attention.
>> Yeah. So the next thing that I remember is I woke up in the ED and the doctor was asking me asking me stuff like uh >> you remember >> I what I remember is that I told them that I cannot sleep for a month and then after that I black out again.
>> Oh serious.
>> Okay. at a point in time when when everything was ongoing. I mean of course your wife you and whatnot >> but you were at hospital you you mentioned you break out.
>> What was that whole um timeline from from the moment you had your first seizure >> and then after that what was it that happened consecutively for the next few days that really made make the doctor do more test on you?
>> Yeah. Okay. So at the start they think was epilepsy. Yeah, epilepsy. Right. So the next day I remember I was quite conscious, right? I was I spoke to my wife. I said, "Maybe it's just a bit of stress. I'm okay." But my wife just let me talk. But I can see there's some worry on your face.
>> Of course. Of course.
>> Then I think the next day the seizure happened again. This time in the hospital.
>> Okay.
>> And the good thing is that my wife recorded it.
>> Mhm. because uh in between the doctors don't feel there is nothing wrong with me and then when the second CJ happened >> actually the first CJ happened they thought I was mingering >> mingering okaying yeah I was mingering and then after that the second time they think I was depressed >> oh No, but can depression lead to seizure though?
>> Yeah, it could actually. That that is one of the diagnosis. But as I said, my life was at the top. Like there's no depression, there's no stress.
>> You were you were comfortable where you were at the point in time. It just so happened the light sensitivity and all that. But still they thought it was something else.
>> Correct.
>> Okay. So what then led them to? So they actually wanted to send me to IMH and think that it's a psychiatric psychiatric problem.
>> Yeah. And this is common actually. It happens in with people with my disease.
There is one case in Chang General Hospital >> where they go pass around other hospital. Yeah. Pass pass.
>> Yeah. The person eventually pass away.
>> Oh lord.
>> Yeah. Because they didn't treat as quickly as they could.
>> Yeah. So my wife is a doctor, right?
Cannot take this kind of diagnosis. No.
My husband is not depressed, >> right? There must be something else going on and she >> the whole night she go and research herself.
>> After that, she pushed the doctors to do this uh lumbar puncture where they take fluid from my spine.
>> So that one also a bit like the doctor say, "Oh, don't need that kind of thing." Right? My wife don't want until they got it. And then when they got it, it was positive for anti-NMDA and sephilitis which is an autoimmune disease that attacks my brain. That's why I behave in such a manner. I had all those symptoms and so on.
>> Oh brain.
>> If not for your wife push, they would just treat you as a normal patient.
>> And it's not only that because my wife has a standing, right? If she's just a normal person pushing that, the doctors won't. Yeah.
>> Take her opinion, right?
Okay. So, so, so it's an autoimmune disease that attacks your brain.
>> Correct.
>> So, okay. It it explains the photo sensitivity because the brain is your epicenter of your your whole system like it controls your body. So much the make sense, right?
>> The brain is on overload.
>> Yeah. There is a swelling in the brain.
After a while, if you MRI, you can see it. But at the initial process, you cannot see anything.
>> Right. it really don't show any any uh physical signs that you experiencing autoimmune disease at the point >> the the physical signs also like you say like can lead to oh maybe it's an eye problem or maybe it's a stress problem >> they direct you to elsewhere >> okay >> they won't just straight away say oh this is autoimmune you know >> right >> at that point of time when you when you heard autoimmune right and when they officially diagnose you like have you heard of the term before have you heard of the illness >> because of my wife My wife took that exam. I was helping her. So that's why.
But for normal people, they wouldn't have heard this kind.
>> I wouldn't have heard of it before.
>> Because I think autoimmune in itself, I think we mentioned offcast that the autoimmune itself has a lot of different uh types. Correct.
>> And then it attacks different parts of your body or organs as and when they want to attack because it's not something specific. for example is is likening to I would say cancer cancer lung cancer, breast cancer, colon cancer is something along those lines just that um autoimmune blood uh science is not as clear as compared to like maybe other diseases.
>> Correct. Very true.
>> Wow.
>> Okay. Like this is also one of the first times that I I'm hearing about autoimmune, right? I just want to understand like how will it manifest like is it like you mark certain things and then you have autoimmune disease or how how did it came to be >> for any cause of autoimmune >> the cause >> for in general wise I'm not so studied on but on my own uh disease right it was only discovered like maybe 11 or 12 years back >> okay >> yeah so the research is not >> still limited for harm like your specific disease Correct. My specific disease and the stats are around one in a million people gets it.
>> Oh jeez.
>> Yeah. So, so that's not much. So, they do not know what's the cause, >> right? They kind of know certain steps to make it to treat it better, but there is no like cure.
>> Oh my. Okay.
>> Or how to stop it from happening, >> right?
>> So, um based on my own understanding, right, autoimmune disease is basically your body mam um attacking your own.
>> Correct. like your immune system attacking your own body and it differs from um people to people but for cases the his auto his immune system is attacking his brain.
>> Mhm.
>> Correct. Right.
>> Oh okay. So bel you when when when you found out when they finally did that lumbar lumbar puncture to to get the spinal fluid to do the test and what not >> you finally when you finally um diagnosed with this disease >> at that point in time how long were you already in the hospital?
>> I believe almost 5 days to a week already.
>> Okay.
>> How how was it like when when the doctor break the news to you and your wife? No, I was still in blackout but my wife Yeah, my wife told me the story. So actually they broke the news to her >> and she straight away cry >> in front of the doctor but the doctor say no m this is good news now we know how to treat your husband.
>> Right. Right. Okay. I mean of course you looking at it positively you find a source >> but of course as a wife collecting your partner or your spouse is facing autoimmune disease which has no cure at the point in time it's going to be devastating. Of course, >> I feel like also like as a as a normal person I I'm not versed in medicine like no like not study medicine a doctor I will be lost >> probably I will be googling and like Google will scare me that I will scare myself even more my husband down there at the hospital bed not conscious and I have a kid you know so like >> I assume it will be a lot overwhelming so um we we we would have loved to have your wife here but Um we understand that but I feel like we will get to um get to know her like her presence is very much here with us through um sharing >> sharing today inshallah.
>> Okay. I think um what what I want to know everybody I think when you uh you know >> once you you finally came became conscious and whatn not >> what was the first thing that was mentioned uh to you and between you and your wife uh with regards to your diagnosis >> so basically my wife tried to make me explain but tried to explain to me and try to make me understand what's happening to me >> uh for me I'm still I feel like I was at a loss >> uh and actually even during that recovery process says there was a lot of times I black out even though I didn't seizure.
>> Oh you no I'm talking I'm doing everything I'm like a zombie but I'm not there.
>> Oh serious.
>> It's like you are your body is moving.
You are talking. You're doing a lot of things but >> consciously you're not there.
>> Yes.
>> Oh >> that's why you don't remember a lot of things.
>> Yes.
>> Oh my goodness.
>> A lot. Yeah. A lot of things is through my wife's uh story account.
>> Okay. Oh wow. Um were there were there any incidences in the hospital?
Why what happened you don't even remember anything or is this really something young a common trait for autoimmune disease that attacked the brain for you to not remember anything?
>> Yeah, it's actually a common trait. I met two other uh anti-NMDA and sephilitis members, right? And they also face the same thing. But uh in the hospital itself, my wife was telling me that I'm always like scared that I'm going to die. I'm going to >> Oh, you said that when your unconscious state.
>> Yes. When in my unconscious state and then there was even a case where I was accused of molesting a nurse. Uh yeah. A month later then the police gave me because in my in a state of unound mind, >> right?
>> Yeah.
>> They even handcuffed me to bed.
>> Allahbar.
>> Yeah. That's why actually my wife was quite angry about that because they send me to the high I think or ICU high.
>> Yeah. Either hide or ICU. My my wife was say why don't you go send him to psychiatric w since he's uh gun.
>> Yeah. They say oh no we can handle him.
Then in the end after that they handcuff me. So my wife was very unhappy.
>> Right.
>> Wow. There's a lot of thing to to to absorb.
>> Right. I think when when at that point in time or so in terms of you know you cannot remember anything do you feel um or rather what what steps was taken for you to you know be in control back of your conscious state because >> um considering that this these episodes of blackout happens from what I see it's quite frequent and then like how then do you manage your life at a point in time to to get back on your feet? Yeah, because the thing is you are quite confused, right?
You don't know when you are conscious and when you're unconscious. Then people tell you stuff that, oh, you did this yesterday that I don't remember doing.
>> On top of that, actually now my the science of my photo is gone after the treatment of steroids in the hospital for about a week when I come back. But there is a flip opposite. So before that I cannot sleep right >> now. Every half an hour I have to sleep.
>> Oh >> wow.
>> Yeah. So I become hyper sleepy and the same thing I tried to run while running your eyes while running. Yes, dangerous happen but your eyes you start becoming >> even while running.
>> Yeah. How is that possible? Right.
>> Yeah. You're active. Say >> is it still happening now?
>> No more. Okay.
>> Yeah. So that time also I tried to go back to work. They gave me like one month hospital I try to go back. So same trying to do work I will sleep or >> do any kind of thing I would just keep sleeping and sleeping and sleeping >> because of the medication a medication >> medication >> we thought it was the medication but it wasn't when even my wife asked me to stop right medication because at the start they give me psychiatric meds even after they >> they treat me with yeah auto right they give me psychiatric my wife as me to stop eating it. Yeah but it doesn't happen. So when we go to the doctor, I went into uh the hospital a second time.
>> And the doctors still say, "Oh no, you are depressed."
>> Yeah. They give me another Yeah. They give me another round of steroid and I tell them my symptoms still the same.
And then they say, "Oh, maybe you are just depressed."
>> Ah, how can you like conclude it like that?
>> Yeah. As I said, the reason being that it's only like 11 years the disease is known. There's not much research, right?
So that the doctor was saying there is no literature stating of hyper sleepy >> right >> disease. Yeah.
>> Oh okay. This one um reminds me of like my my condition like my I I don't have like an illness like that or anything but I have this condition called foot drop.
>> Ah yeah.
>> So um I found out like 10 15 years ago.
>> So at that point of time I I didn't I I I literally realized when I was Then I realized my ankle then I started to panic >> and then the doctor maybe it's nerves maybe is this that I went for city scare and all these kind of things that they they don't know what it is >> and I I have a feeling because at that time it wasn't macham it wasn't >> it wasn't uh it wasn't well researched yet it was something that is new in the in the medicine world that they don't know how to properly treated.
>> Correct.
>> Yeah. Even after doctor does that start to you know after the whole diagnosis and then they finally mention um autoimmunity. Oh what's what is the name that you use for your >> NT NMDA >> N MDA >> uh anditis >> anti NMD basically autoimmune that attacks the brain.
>> Okay. So even after that they still this because of the lack of um field of lack of studies in the field they still want to treat it as uh depression >> psychiatric >> psychiatric psychiatric illness basically >> and and that was the time I really felt depressed >> because yeah because I was not recovering properly like of course people outside see you're normal what you're walking what you can talk you can speak >> yeah but I'm not I'm like going to sleep and then My wife was telling me that I don't behave like at one point of time she even feel that she said that I will accept that I have married the man who I have not >> who don't know >> yeah not who don't know I accept that I am marrying the man who is not the man I married before >> yes >> because you are a totally different person >> correct >> oh my goodness >> even my character because I lost a lot of uh memories that are quite near like even Some long-term memories I lost.
>> Oh >> and I died to recover >> because it's the brain.
>> It's like your hard drive computer or something.
>> Correct.
>> Corrupted.
>> Corrupted. Allahbar.
>> Yeah.
>> Yeah. So during that point like you have to research your identity again.
>> Try to remember everything again like how like my wife will try to tell me this is how you approach me during these kind of situations >> back then.
>> Yeah. To try to get back to the old me.
Hi guys, I'm Ron from Dream Makers Interior Private Limited. This is an ongoing project for a family of four. So we actually hack down every tiles in the house. Uh we actually remove all the door frames and do hidden doors including changing all new air con, new incoming piping for the plumbings and new concealed pipings and all the forcing in the house we remove and then we redo. The reason of us using the 80x 80 tiles for the house is actually uh to reduce the number of drug lines for the house. So we want to the house to actually look as big as possible.
Typically some big house actually they do work in the center. So that's the reason we actually use a lot of pointers and to actually pull the towels back.
Second thing, the woman must be good if not the four corners where the towels join right will be actually extremely visible and then when you step on it you will feel it. The bigger the tiles is harder to cut also. The margin for error is actually very very little. We do all sort of renovation project including designing the site coordinations everything not only condos we do. So basically we do Vio HDBs uh we even do BTO's we even do kitchen toilets uh that require our designing and our expertise.
We also do lender houses. Yeah, we actually will do some minor AA works. So all this is under our job scope. Let's say for example your budget is is limited but you still want a new look for the house. Instead of cutting corners using lesser cements change lower cost materials that's still very durable. Instead of hacking cows you can do overlay of vinyls. Let's say budget is constrained then reduce a bit on the carpetry works. You get a different materials but it's a good material but it's just that you don't cut corners.
Budget friendly materials are correct.
>> For all contract side we actually will prepare the work schedule. the work schedule and the payments they actually tied up to each other. So we actually go by progressive payments. For example, a commence work we actually collect a certain percentage of of uh the payments. After that when the work is done then the next payment will be the carpentry installation. We finish the work progress we collect the payment we finish progress we collect the payment.
Second thing is some IDs don't allow customer to come on site. We actually encourage or the owner can drop by the site anytime they want. It's just that site you know is in this condition. No fan no air con is very hot. So if they come site they need to be be careful about all this. It's actually a a zone I know a work zone all this. Yeah.
>> If you want to know more about renovation, you can always contact Dream Makaker Interior 91341762 or you can also follow them on Instagram, Tik Tok and Facebook at Dream Makers Interior.
>> Design people you can trust.
>> Okay. So, okay. Maybe maybe we go into uh we learn a bit about the disease right now. It attacks the brain, makes you uh go, it makes you black outer, makes you forget a lot of things, make you make you into a different person, >> character.
>> Out of character almost entirely as a person.
>> So now when we talk about your relationship, your wife, your wife and your kids.
>> Um right now I understand you have two two boys.
>> Yeah. No, one boy, one girl.
>> One boy. So two two children.
Alhamdulillah.
Alhamdulillah. Mashallah. Alhamdulillah.
>> Okay. Combine.
So um you mentioned your wife uh tried to make you remember what was it like you know prior to you being diagnosed this autoimmune disease.
>> So can you recall how was it like you know when you and your wife started dating uh how how you got into a relationship with your wife because I understand that you mentioned it um she had to remind you what it was like uh prior to you having it. So can you remember how it was like before and maybe uh what was it that changed after this?
>> So how I met was through a dating app.
>> Okay. And she was across the sea. It was across the sea. So she was doing internship at Tanjung Pinang.
>> Oh.
>> Oh internship for medical.
>> Yeah. So in Indonesia like once you complete graduate they have to do internship in the remote islands. They will choose anyone. of all islands she chose pinang.
>> Yeah.
>> She's from bandong.
>> Bandong. Okay. Nice. So you met her over there through the app. And then how was it like um you know getting to know someone through on online but how was it like you you know to fall in love with someone that you've never met at the point in time?
>> Yeah. So we started just chatting and then move on to video call. So the main thing that was made me attracted to her is her worldview basically religion >> and and how she view life as it is right. So so I made the decision to take a boat to meet her.
>> Oh my god.
>> To pinang and she and our first date we she drove me to Bintan.
>> Oh my god.
>> Drive.
>> Yeah. Because the same island.
>> Okay.
>> Quite a long drive.
>> The next day I said I want to marry her.
>> Yeah. Not only that, before that also I saw her living conditions that is not and she tell me like she can just buy one chicken, one whole chicken to eat for the whole week.
>> Yeah. So yeah like not meanwhile her view was very nice. I want to marry her and then she start crying >> on that point. Yeah. So I also got to know the story a bit later that she actually after a while she actually made a dua that she just want to find somebody he like that who straightway asked her to marry.
So what that is one part of the cry the second part of the cry she tell me you don't know who my family is then I said how bad could it be right >> so few months later I go to bandong and meet then found out that she her her grandfather is president her baby >> yeah so it's the grandmother's brother but basically the whole family is like upper class in Indonesia.
>> Just that she herself brings her her standard of living lower.
>> Correct.
>> To be normal.
>> Yes.
>> Anytime.
>> Okay. So, but then at the same at the same time, she you you fell in love with her without even knowing her background, which she speaks a lot because you you don't really care um what is the background. You just care about the person, which is what love is all about.
You fall in love with the character. You fall in love with the world views. You fall in love with the the idea of being a person's partner rather than what she has in store for you. Correct. True love.
I feel like listening to the story a bit backwards can like now. Whoa. Now we know >> about the autoimmune disease and everything and how your your wife literally fought for you. like, "No, my husband is not depressed. Like, I am a doctor. Like, please do some more test."
And she was literally fighting for you.
>> And then now we go back to when like you first met her and that character that is a foresight >> of of who who this woman is going to be in your life for you and throughout your journey, supporting you and all that.
So, I feel >> and it's beautiful to see. Yeah. So, talking about your wife, >> um I'd like to know more about how she supported you.
>> When when was it everything that stabilize a bit or gotten a bit better?
Like now we know that you hospital and then um you hospital for the second time. Then when you came back, you came back, you became hyper sleepy, you know that kind of thing that when was it young, it got better or it didn't?
>> No, it didn't. I went after the second time. Yeah. So the struggle my wife had to went through is that coming to Singapore, she was still new, right?
>> So everything I settled for, she is the kind whereby she won't even know how to go to to take the bus or take the MRT.
>> The system is different.
>> Culture shop. Correct. Yeah, it's a culture shock for her. And then she >> don't know how to pay bills.
>> So everything was me. Everything was me me until suddenly I'm gone.
>> So she had to learn everything on her own. How to go to AXS and pay bills.
Even though it's like easy for Singaporeans because we are kind of >> Exactly. So for Indonesia is totally different ball game. On top of that, still have a small boy >> to take care of. Luckily I had a helper back then.
>> Yeah. Sure.
>> So when when at the point in time um you were considered highly dependent even after you discharge at home did you have to like really rely on you know um your your wife to settle everything for you as a person since you mentioned you tried to go back to work but it wasn't easy for you and you know as a as a partner if I see my wife um you know you know facing a lot of difficulty just to maintain a normal leaving uh leaving state at home I would feel very stressed out.
>> Yeah, I understand.
>> Yeah. But um how was it that if you you know if I'm pretty sure you have talked about this thing on your wife like how up young will your wife tell you about the state of life at the point in time while you were in that condition?
>> Uh for me personally I feel I was okay because I don't have seizures. I can like you said like a normal person. It's just I'm not leaving the 90%. Maybe I'm just running around at 70 to 60%.
>> of who I was, >> right? So, of course, it's not efficient, right? And >> what my wife lost is the husband that was there to support her. It was very hard because that it was COVID period on top of that. And I believe that was her first year in Sang >> and she was also adapting to the culture at work.
>> So, she needs somebody to complain to somebody which she did not have. for that one year and of on top of that there is a son that I couldn't help much as well right because I was not functioning in my mental state physically of course I'm there but >> like almost better not there like that like having the person there but mentally is not there kind of thing so it's hard on my wife at that point of time I think it's more harder to her than myself >> right >> yeah and then at points of time during where my mental state become a bit better and then I realized That's how hard it was back then. I just like one day at a time, >> right?
>> Yeah.
>> Yeah. Then um did you do you recall um anything? Okay. Because you you you go to sleep with your wife, you know, you wake up the next day as per normal.
>> Do you have you ever seen your wife in a state where she Oh, it was even worse because I don't even have the mental capacity to feel sad for her.
>> That's how bad it was. Right. What my wife told me is like when she asked me a question or she's crying in front of me, right? I will give a blank stare or blank state.
>> Mhm.
>> Yeah. Which later on when we met a proper doctor then they tell me that oh this is normal. They call it catatonia.
>> Yeah. This is very normal in in this kind of disease. Mm-m.
>> So you see, so it's not me, it's my wife.
>> Wow.
>> Having all the burden >> to to look after you and then to express to your your partner and then your partner cannot relate or empathize with whatever that she's feeling. Correct.
>> Yeah. And >> I feel like as as a as a woman, as a wife, right? We would do a lot of things for our husband. We we want to support you. We want to be there for you. We are also woman. We have our emotional needs and in the circumstance that they were in like of course as a wife I understand like my husband is going through something >> big and serious right I have to be there for him >> but at the same time this is not the man that I married like I and I have to come to terms with that I don't know when he will come back I don't know if he will ever come back but this is the reality that I have to live >> I have to be strong for my kids I have to you know I still love my husband But it's a very tough I just trust that this is the path that you have planned out for me.
If you don't have that mentality like you know but you still to that okay this is like you know I accept this >> and maybe there is a light at the end of the tunnel but >> for right now it's tough it's very tough >> cuz considering you know like you mentioned everything she has to handle herself from looking after you looking after your son looking after the house and on top of that u managing ing her new life in Zenang. So a lot of things going through on her shoulder and and at the point in time >> you still at the point time with your condition you couldn't be able to be that support that she probably needed at the point in time. It was time also that time. So the hospitals was Yeah.
>> Wow.
>> So when was it that um I mean alhamdulillah I see you are in a much better state right now because I don't know how it was like at the point in time. Can you paint for us a picture your your daily life and your wife um how it improved generally or occasionally to be where you are today?
>> Yeah. So my wife is the no give up type of person >> and he even went beyond because she's actually a black and white so everything must be evidence- based doctor >> but because when when we met my second doctor he was supposed to be an expert in my disease they sent him to Korea to learn about it and he was the one who come back saying that there's no literature you're probably a psychiatric problem >> oh >> so that's when I become really depressed right so but my wife didn't give up you know okay fine even though we made an expert cannot My wife went out of the medical scope. Give me supplements, ask me to eat mu, tried every single thing.
>> Yeah. Which doesn't work. Of course.
>> Yeah. It doesn't work. Yeah. Until one day a friend tell her, why don't you meet this doctor at Reference Medical?
>> So I met this doctor. He talked to me for five minutes. Oh, this all normal.
Yeah. You just take this pill.
>> Oh. So this field called cell sap it it impedes your autoimmune level so that it won't continue attacking your brain >> so you will be more immune to maybe fever or something but it's safe.
>> Okay.
>> I took the pill I start recovering.
>> Oh okay.
Okay >> from that five minutes >> all that round and round >> that's why I went for steroids like this like that and not only that like how my wife helped me recover is she keep forcing me to play the guitar. So, >> oh wow.
>> Yeah. So, I played the guitar ball, right? Just I the reason I like guitar was Metallica came out on MTV when I was young.
>> Wow.
>> Correct. When I was primary four or something there was memory remains on MTV, right? Back then got MTV and then I think wow this one is very different.
Then I start picking up the guitar. But when I was recovering, right, I don't even remember how to play the guitar.
>> Oh, at all. So, I have to remind myself everything. And through the guitar and through the songs actually >> okay >> brings back all the memory. Oh during this point I played this song for my son or during this point I played this song for my wife.
>> Wow. Wow.
>> Yeah. So actually music actually made me recover a lot of my memories.
Unlocking the that memory that was hidden by by the disease.
>> Correct. Oh wow.
Maybe the the neurons are like finally connecting like he is.
>> Well, I can imagine all the musical notes he Oh my god.
>> Edit to put music.
>> But that being said, um you know when you started playing the guitar again, you started to remember moments again.
Was it is it safe to say music was I mean of course um music was also part of the um treatment for you to remember who you were back then.
>> Yeah, very true. Actually my wife said at the first when she asked me and this part I don't remember. My wife said when the first time I played the guitar I was not like singing in tune. I was not even playing properly and then I would be angry. No, I don't know. I forget how to play every time. But my wife don't give us keep playing, keep playing.
>> Wow. M >> okay I I I'm curious a bit um but cuz we alhamdulillah alhamdulillah we haven't had this kind of of of um episodes but you realize that okay did you know that you can play guitar >> uh I know >> but then when you try to play you cannot >> yes >> oh that's I frustrating very frustrating >> I want to write but I don't know how to write but I know I used to know how to write >> and the thing is it's something that he loves to do.
>> Yeah. You're a music teacher now. So, >> yeah. So, not being able to do it.
>> I I cannot imagine say I cannot imagine being in that state. But um what what was it that um really made you apart from your wife? Do you remember that first song that really click and then make you I actually remember now?
>> Yeah. the here without you because that's the first song I play for my down.
>> Yes.
>> That's a romantic song.
>> Okay. Throughout throughout this whole journey, >> can you tell us if you're comfortable >> which is the lowest point >> in throughout this whole journey?
>> Yeah, exactly. As I told you when when the doctor said that I was depressed >> and then that was really I hit like okay probably I'll just be like this >> for the rest of my life. I'll just be this person who I don't know who I am >> right. I cannot work anymore because I quit my job because I really cannot work.
>> I stopped running my company >> at all. You totally stopped.
>> Totally stopped because I was making mistakes in in the job right. I was like money mistakes >> which is big. Yeah, when it comes to shipping.
>> Correct. Yeah. So, better don't make more mistake. Maybe try to recover. So, when the doctor said then that was the lowest point of my life, then I look at my wife and I look at my kid like probably it really is depression because then I start having like physical signs.
I start having small holes on my hands.
Small like small little holes on my hands and on my feet.
>> Indentations. Yes.
Yes.
>> Yes.
>> Reason behind that is because >> that was stress induced dermatitis.
>> Yeah. So I had to like use steroid cream with gloves inside the steroid. It >> doesn't it it's not itchy.
>> It's just holes.
>> Holes.
>> Yes.
>> I don't know how to imagine it. Yes.
So it's it's manifesting physically.
>> Correct.
>> Yeah. Because at that point also I was in denial that no I'm not depressed again. But when it manifested, yes, I'm depressed. Let's do something about it.
>> Wow. One thing led to another. I mean uh depression is a mental mental issue, mental disease.
>> On top of that, you have a a disease attacking your brain.
>> Correct.
combinations >> and and then um you know yes you mentioned that that's your lowest point.
>> Oh okay I also like to ask mam >> um throughout this whole journey right you you mentioned that you are in a community >> right of the autoimmune warriors.
>> Yes.
>> So um how I would imagine for a long time you felt like that right depressed like okay I'm just going to be like this for the rest of my life. I don't know what to do like doctors are not helping in that moment which you know all these kind of emotions right >> until you meet that doctor refer >> yeah until that and and when was it that you meet people that are going through similar things like you >> probably when I'm already like 85% state where I feel I can >> recover >> communicate about my uh >> condition better that's when I reach out there's this but before that actually my wife is the one who reached out.
>> Oh, >> right. So, my wife reached out to this group and then found this lady called Deborah. She was like one of the first having antiMD and sephilitis in Singapore. Okay.
>> And she was the one who would tell my wife go to TTSH.
>> Yeah. Which is now my main doctor because the first drug expensive, right?
>> Yeah. So she was the one who reach out and then after that I found out after when I was around 85 maybe 2 years during my recovery process found out there's this autoimmune event and she will be there.
>> Yeah. So I said I offered myself I said uh I can come and perform a song if you like and then they say yeah yeah they never heard me singing or anything. So yeah, seriously the big trust they had on me.
>> Yeah.
>> Then and also um you know you mentioned your wife reach out to to all these uh autoimmune warriors.
>> What was the reason behind her doing that? Was it because she she herself was looking for the support?
>> Correct. She herself was at odds on how to make me improve.
>> Yeah. Oh, that's the sacrifice that she is doing just to make sure that she's supporting not just her husband but for herself also like when you meet these other people like for so long the doctors couldn't diagnose you see depression what not >> but when you meet these people right did you feel oh my god I wasn't crazy like >> this this actually like you know other happened to other people >> I've never thought myself as crazy because my wife herself know that I'm not crazy disease right but when I see other people actually I'm more fortunate because other people had it worse like this Deborah himself she experienced seizure while taking her final exams at university >> oh that one affect final exams >> yeah in the examination hall >> yeah so seriously I'm fortunate I am very fortunate there are a lot of other stories is even worse than me >> wow >> but okay Um uh maybe you can share also what is the um gentle you mentioned at the start uh you met someone with similar similar disease and then he passed away from from because of the lack of treatment.
>> No I have not met him I read the story.
>> You read the story. So that means the extent of this disease could lead to death.
>> Correct.
>> Treat properly.
>> Very true. And you can imagine it was 11 years ago only they known the disease.
So people before that they think it could be a mental problem >> would have been that disease >> right >> yeah when we talk about brain knee is very >> very dangerous like it controls everything everything else right >> then your heart can be pumping but if um the brain is not functioning you literally >> don't be vegetable >> yeah but just to think of it as a physical sense right the autoimmune attack the brain is not like nothing the brain will start swelling So if you keep attack then of course >> um maybe if if you don't mind me if you don't mind to share um were there moments in your life when you know when you're still recovering and all that.
>> Do you ever think about death like in your conscious state?
>> No only in my unconscious state that I think about death. Right. Right.
>> Yeah. During my conscious state, I just think about how to live the next day.
>> Positivity cuz I mean of course, but what we can do is to continue striving for our loved ones.
>> But um >> I feel like um listening to your story so far, right? It reminds me of um something that um just just nice the timing of it.
>> Okay. So um yesterday or two days ago we went to a class and we learned about Allah's 99 names >> and um the specific class that we went for the first class we were talking about um the most merciful alman right so listening to your story I cannot help think about the mercy of Allah >> like we what what maybe just a quick sharing like we learned that Rahman is all encompassing right Allah is mercy ful to everyone and anything, believers and non-believers. Like you can think however you want about him, but he will still be merciful to everyone.
>> Yeah.
>> Even to plants, to animals, everything.
>> And this is just the 1% of his mercy out of the 100 that he has.
>> Yeah. And foreim is more exclusive, right? For the non-believers, he is still merciful. But for the believers, the one that practice it, believe in him, all these kind of things there is a special kind of mercy that Allah bestow on you >> and in your story I feel like maybe you can speak for yourself why do you >> do you feel Allah's mercy in the form of your wife >> okay maybe we touch on the raim part because uh I listened to lecture from shik hamza so he was talking about rahim actually the same meaning in Arabic and Malay where is actually the womb it protects so rahim is basically Allah is protecting Yeah. So I really feel that protection from him because things would have gone a lot of wrong. So sorry back to the question that you asking.
>> Yeah. Do do you see your wife as a form of mercy of Allah's protection like you said of Allah's compassion like even I'm very sure that it was very tough to go from the top of the mountain right to literally rock bottom with this disease and everything but >> your wife is there all the way. But throughout all this mach there is still mercy >> and soon exactly >> how many husbands can say their wife saved their life.
>> Oh my standing.
>> Wow. I think that that that in itself, you know, um we really wish she could be here, but um maybe of course send our regards to hero, you know, for for helping save Wadi and and also being at every step of the way.
>> Um I think we we did talk about this, you know, uh when when the wife the wife is the one usually like protects her children, her spouse and things like that. Yes, a husband does that. A husband is supposed to be the one providing navka blah blah blah all the things that you all have probably already are familiar with that but in this particular in instance your wife was doing everything for you she saved your life she make she did all the outreach possible to make sure that you even reach 85% at the point in time >> yeah even before that she sacrificed her life in Indonesia to come here >> considering she has a connection to you >> not only connection they already had a plan for her >> oh >> just to be with you Yeah, the family own hospitals.
>> And yet for love those romantic prince movie.
>> Oh, those are really love story.
>> No, this one the wife is the hero, not the not the boy.
>> That being said, I think we we have a lot that we want to cover. Yeah, I think maybe we we see whether we can do offcast videos or something like that.
But I think right now um you know is there anything that you want to say to your wife, you know, if she to listen or to anyone going through this?
>> Yeah, maybe first to anyone going through autoimmune what what do you wish to say? Because I feel that at the point in time you were alone.
>> If not for your wife reaching out to this community, >> you probably would still be alone only with your wife. But now that you have this whole community supporting you and things like that, >> what do you have to say to others out there that probably would not know >> that this such support system exists?
>> Yes. For others out there, okay, those who are single for guy, my best advice is marry the right wife.
>> Agreed.
>> If you marry the right wife, you will get a very good life. And even though I had all my struggles, I had a very good life because of my wife. open, >> right? So, uh for those who are struggling, always try to find your support, right? It could be a family member, it could be a friend, but you cannot do it alone. And you are never alone actually in this world, right? So, always find that support then you will make through it. You will go through it.
Any kind of struggle, >> yeah, just have faith in God.
>> I think for the wife, you should sing the song >> without you.
Maybe maybe a message for your wife so that she can listen to this episode and then when she listen something for her for all the things that she has done for you all these years.
>> Yeah. To Mia um you know I love you. I always say that I love you. Yeah.
Without you I wouldn't be here today. Um thank you for accepting me as your husband. Thank you for sacrificing your life going from another country coming here seeing me as who I am. even though I wasn't who I am. So, I love you always and forever and I hope to have the best life of my years ahead with you. Thank you.
>> It's a sweet >> actually. Yeah.
>> Okay. Okay. So, uh I I we are hoping that today's episode will raise a bit of awareness about autoimmune disease but just >> to inspire others who are going through tough time that you're not alone.
>> Mhm.
>> Yeah. And also to if there's anything that you need to reach out, you can always reach out to Wadi or or reach out to us. We can connect you guys with the right people in >> Yeah.
>> But uh thank you so much for being so open and vulnerable um in sharing your story.
>> Actually Wadi prepared actually prepared song uh he wrote this song >> original song >> original song for um autoimmune is it?
>> Yeah. So there's an event at 20th June at Malayan Council, the I believe it's the first ever like open autoimmune Muslim Singapore group that did and they asked me to create a song and of course I asked them like what kind of song you want and they said this word called Jalo.
>> Yeah. So like five minutes later I give them the chorus and then they help input in the lyrics and everything. So we have a song. Right. So this this is a gathering for all autoimmune disease warriors or like open >> anyone with chronic illnesses that want to come right. It's about canvas and conversation. So it's paintings and sharings.
>> Ah so uh it's open to anyone. We can come also if you want.
>> Right. So on the 20th of June you'll be performing the song there.
>> Correct.
>> Right. So of course um that being said Wadi brought his guitar >> and he'll be performing for you guys. Uh we will do the setup later but don't don't go anywhere. Let's listen to Wadi Vuna song uh at the end of this episode.
>> Yeah.
>> Uh it's a original song combined with the all the efforts from all the other warriors also.
>> Then uh yeah hopefully you'll be able to hear it here and then it's recorded again but you'll hear it live on the 20th of June at Malay Council Street.
>> Yes.
>> Okay. Mah.
>> Yeah. So stay tuned for the performance in a bit. But um before we end the episode, we just want to say, okay, if you're looking >> for people uh design people that you can trust, >> please contact uh Dream Makers Interior, they have um a lot their team is u very I would say very diverse >> and professional >> and professional and they have um in-house training. So you can be rest assured that uh they are trained.
Can I just be transparent?
renovation like they don't really know what they're talking about.
Yeah. But this one like they are being trained.
>> Yeah. They train in house so that so that the service that they give is um standard across all of their specialists, all their renovation IDs, senior IDs and whatnot. So they they train in house and then they will always be backed up with a lot more experience.
>> Yeah.
Go if you know your know of anyone that's want that want to renovate their houses or if you want to renovate your house even if the kitchen toilet contact dream makaker interior click the link in our description below or scan the QR code.
>> Yeah, you can get a free um consultation and render too. So give them a call.
>> Give them a call. Uh click the link. Uh yeah follow them on their socials followers so that inshallah they also will see that insiders right with that being said stay tuned let's give a warm off warm off warm run >> should we end it or like >> we we we play the song and then >> what is this performance and then we'll see you guys in okay let's do proper right let's give a warm welcome no warm round of applause for Wadi with his song title >> Jalo >> Jalo and after that we'll see you guys in the next episode. Wii take it away.
Fore!
Foreign! Foreign!
Foreign speech. Foreign foreign foreign speech.
Harch.
foreign Foreign speech. Foreign speech. Foreign speech.
Haraba.
Fore!
Foreign! Foreign!
Hey I hear what Dr. This in me.
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