Kayla Elise masterfully juxtaposes the trauma of systemic illness with the precision of makeup, reclaiming her identity through a narrative of aesthetic resilience. This fusion of personal vulnerability and professional artistry serves as a powerful, humanizing medium for medical advocacy.
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My Lupus Story… kidney failure, coma, chemo | PURPLE HALO EYE + obsessed pink undereye 💜🦋Added:
Nobody driving night.
Why don't you like me?
>> Hey, Miss Ma'am. Welcome or welcome back to my channel. My name is Kayla, also known as Kayla Elise, also known as Kayla Muay. And today we got into this very special look. This is so dear and close to my heart. Anything purple is dear and close to my heart.
Um, clearly. Okay. But purple has a deeper meaning to me. If you can tell by the title, this is my lupus story. I've not like really shared this publicly on my platform. So, this is the first time you're hearing it in full. I'm really all over the place in this video. I just want to warn you. Okay, so you get a makeup tutorial, get to know me a little bit more all in one video. Well, this part of my life that I don't really disclose that much, but yeah, the look came out fire. So, even if you're not here for the story, be here for the makeup cuz yeah, and it's a pretty long video, I'm pretty sure, cuz I was all over the place.
Emotions was running high a little bit, but we made it through. I did have to fix my under eyes cuz like I said, emotions were all over the place. But look at that highlight.
Exactly. I hope you enjoyed this video.
I hope you enjoy learning a little bit about me and my lupus story. It is May.
It is lupus awareness month. I could not go through this month without giving y'all some kind of purple look. And I guess it was finally time to share my story. Anyways, keep watching if you want to see and hear my liquid story.
Enjoy, Miss Ma'am. All right, miss girl.
Let's get ready together. My skin is already prepped. Brows are already done.
So, I'mma go in with my Danessa Myrix Yummy Skin. Today is Memorial Day. So, I am actually leaving the house today. My family is having a barbecue even though it's literally raining cats and dogs outside. But, we still going to eat good. We still going to have a good time cuz rain ain't stopping nothing. But like I said, it is Memorial Day. It is also the last week before June and you didn't think that. By the way, I'm using my Danessa Mrick Yummy um not Yummy Universal Radiant Balm Powder cuz I need this glam to stay all day. But what was I saying? I still ain't got that ADHD check by the way.
Still don't have it. Anyways, oh it's the last week of May cuz June is literally next week. So, y'all didn't think I was going to let May go without it being without me letting y'all know that it is lupus awareness month. I don't really talk about it much on my channel, but I do unfortunately suffer from lupus. And of course, I had to do an expired look by lupus. I do it literally every May. I don't know if I did it last year. I think I did it on TikTok, not on YouTube, but I think around this time I was having pink eye.
But I am a lupus bdyd, a lupus warrior or whatnot. Obviously, if you can tell by my face, I'm doing a lot better. I'm going to start inserting some pics cuz let's let's get into this little story time about how I found out I had lupus and all of that. Boom. We going to take it back to 2019.
The first sign I got was I started to have these. You can still see them a little bit. You see those little dark marks? They're skin colored now. I started having these little red spots on my hands and I was like, "What the heck is this? This is not normal." And I went to the doctor for it, just like my primary care doctor. They ran some tests. Literally showed up nothing. The test they ran was BS test. Basically, they were thinking hand mountain feet disease.
They thought it was syphilis. Girl, don't play me. I was popping that cuda back then, but I wasn't popping it like that. Don't do me. I'm telling y'all my business. We friends. We home girls, right? I think I want to use my Milk Hydrogrip today. By the way, I was using the Morphe color corrector in the shade papaya. If y'all don't know, I'm undiagnosed ADHD. If you're new here, hi. We got so many new people. Hi. If you're new, can you introduce yourself down in my comments? I like to know my girls. I like to know my girls. Anyways, what was I saying? I'm ADHD, undiagnosed, so I'm all over the place.
Let's just try to keep up. If you like chaotic makeup videos, I'm that girl for you. But if you don't, I'm definitely not that girl for you. Why is this not sticking? Why do I still stick my dark circles? Am I too tan for this? What was I talking about? Oh, the hands. That was the first symptom I had. The hands. I think it was other symptoms that I just ignored cuz I was working 40 hours a week. I was fulltime then. I was working at Mo's Southwest Grill. I was a shift leader, basically a manager. Uh-oh.
Basically a manager. I was working there from straight out of high school. So I basically just worked my way up from being just normal team member and moved my way up. So mind you, 2019 I am 20 around this time. So the first time was the hands. Now we can go in with this. I guess I said this I said we going with this 5 minutes ago. I'm sorry, but this is in the shade 11. But that was the first time. I'm pretty sure I ignored all the other ones because I was working full time and I was definitely was ignoring some of the symptoms like the fatigue as far as the fatigue and whatnot cuz baby I got to go to work. I got to get up make this money on so I can be outside later. Have me some change for outside later. You know what I'm saying? And I am mixing in blue pigment just to make sure it neutralizes this foundation a tad bit.
Well, it's a skin tint but really it's giving foundation. So that happened around I want to say August is when I was paying attention to the hands. And then what happened after that? I noticed that I could not at work we have to use pens. Of course I'm a manager so I'm using pens and stuff. So I go to open a pen. I cannot open it. My hands don't work when it comes to opening stuff. I can't open a water bottle. I can't open the cap on a pen. It was crazy. What the heck? I literally broke down at work cuz what the heck is wrong with me?
And then my childhood best friend got killed in December of 2019 at a house party. She got killed. So that basically I feel like that is what really set everything off to a whole another realm because of that stress that I was that I was going through. Y'all learning a lot about me right now. We home girls for real. Anyways, I need to pay attention to my blending cuz I've been blending but not really blending lately. I'm going to go in with my Lys bronzer, but y'all knew that though. This is in the shade strength. So, boom, she got killed. And I noticed around this time that I thought it was just cuz I was doing a lot of crying, but now looking back, girl, that was another symptom. My face was swollen. My eyes were swollen.
One side of my it was just swollen. Nose just swollen. And it's not the normal swelling. It was like the cross swelling. It was like I had an allergic reaction swelling. Mind you, this is December of 2019. Shortly after that, after we had the funeral for her and whatnot, that's when everything really started to go full force. I was trying to go into work, but I was so sick. I was literally weak, physically weak. I could not stand for long. I felt like I was going to pass out. I wanted to throw up every 5 minutes. Mind you, I have a fear of throwing up, child. So, me throwing up, it ain't going to work. I think I'm going to use my Charlotte Tilbury concealer today. It's been a while. By the way, this is in the shade 11. I'm drinking a Red Bull, by the way.
That's probably also why I'm all over the place. When nobody going to tell me my bra strap was out, y'all wrong. Y'all fake. For real. Where was I in the story? Like sitting here trying to pause, make sure I don't keep doing my makeup. And I'm trying to talk and do my makeup at the same time. I'm struggling.
What was I talking about? I need some help for real. Like calling my doctor this week for real. Like, I'm not playing. Um, I need to write that down.
Hey Siri, set a reminder. Hey Siri, you don't hear me talking to you? Okay. Um, finally, this is like beginning of January now. She is buried. Um, it's proceeding on, but my health is also proceeding to decline basically. So, I'm at work and they're like, "You need to go. You need to stay home till you get better." So, I do that and once I get home, it gets worse. Girl, it gets worse. I get this sickness that reminds me of a stomach bug. Was it the stomach bug first or was it Yes, it was like a stomach bug. I just kept throwing up.
Mind you, this is around the beginning of the year. This is the whole new year.
I'm making all these plans for the new year. Let's just say that year did not go as planned at all. It started off as a stomach bug. What? What if like it was a stomach bug? Cuz like what before?
Hold up. Let me go back to the receipts so I don't give y'all wrong information.
Let me do that cuz like when I tell you this whole period is a little hazy to me and I y'all know why later on when I explain y'all know how I tell y'all I have a memory deficit. This is why.
Okay, so let me scroll all the way to January 2019. January we were still in December I think. Yes, the end of December. My ankles had swollen up. Let's see if it'll focus. My ankles had swollen up like freaking baseball. Like what the is going on here? My feet and my ankles both were swollen. Like I couldn't get my socks on all the way as you can see in that video. I couldn't even get my shoes on all the way. My tennis shoes, mind you, it's cold outside. I got to put on shoes. Um so yeah, that was December before I even, you know, got released from work. And I ended up going to urgent care. And what did they tell me? They it was like I bas I think they gave me a steroid shot and then it went down because of the steroid shot and then basically everything after that just escalated. Okay, I'm going to keep at the receipts cuz I'm getting this story all wrong. Like look how swollen my face was. Like nose, eyes swollen.
Here's video number two. Like am I You see those red spots on my face? That's kind of like the butterfly rash that lupus warriors get. Some of us do, some of us don't. Like look at who even is this like like for real. Swollen nose swollen eyes swollen shut. And then around that time where everything is swollen is when I'm having like um mind you that's January now the beginning of January. That's how I brought in my new year. Okay. So, I get stomach some kind of stomach bug. Um, and I am throwing up and pooping same time. Yeah. TMI. Oh, well, let me go get a paper towel. Hold on. I am going to take a brighter concealer. I'm going to take this HMBB concealer I just got. It's in the shade 2N. And I'm going put this in my inner corner. But what was I saying? Yeah, I'm just pooping up everything I eat. Like when I took I could not keep nothing down. Probably all of January. I kept nothing down. I had lost probably like 15 20 lbs. One month. Not healthy at all. Think I'm going to use this baby pink um Morphe blush. This in the shade a pre sky. So finally, mind you, I'm one of those people that did not I still I'm still one of those people that does not want to go to the hospital unless I'm on my deathbed basically because the hospital has never done nothing for me.
They're no help literally at all. Mind you, I'm in Alabama. Keep that in mind.
Boom. Black woman in Alabama trying to get proper health care. Okay. Um so I to the emergency room. I believe they mind y'all I don't remember none of this.
Thank god I have like I recorded like memories and saved them or I would not know none of this.
Thank god I did that cuz I wouldn't be able to give y'all this story cuz I don't remember it. My mom remembered everything. My dad has a horrible memory also. Um so yeah, now is gone. I should have wrote it all down but I didn't. Um, anyways, I think I'm going to try loose powder before pressed powder today. See how it works out for me. Oh, that's pretty. I'm taking um Huda Beauty Cherry Blossom today cuz I feel like my face needs a little bit of neutralizing.
And also, I put on pink blush, so pink powder is a must. But like I was saying, I went to the hospital for that about the constantly throwing up and whatnot.
And I can't remember what they told me.
I can't remember what they told me. And I think also around this time is when I started to see blood in my urine. I didn't really think nothing of it. I wasn't really paying it no attention. So that's honestly my fault. There's no telling how long that blood was in my urine, y'all. There's no telling. And by the time I saw it, oh, when I went to the hospital, they checked my blood work and whatnot and realized that I am anemic. So they basically put me on these iron infusions.
Let's just say my body did not agree to those iron infusions and I ended up throwing up. When I tell you I threw up so much that I started to throw up the bile at the bottom of my stomach. I could not keep nothing down.
I was just throwing up water and bile at this point.
So they put me on these iron infusions and I threw up so much that I threw the iron up. I tasted the iron coming up and I went through I think it was five rounds of the iron. I had to do two one week and three the next week or something like that.
So it was five rounds of the iron still to this day. We do not know why I just cannot keep blood in my body. I still get iron infusions to this day. I probably need one right now cuz every time I bend over now I'm getting woozy.
My saturation percentage in my blood will be 3%. My doctor be like, "What the heck, Caleb? How are you even How did you even make it here? It's really that bad." And I just be functioning off of it. Oh, let me take my forehead, too.
So, then once the stomach bug or whatever went away, I don't know. I still don't know to this day what it was. So, I'm going just call it a stomach bug. Once that went away, it went to where I can TMI. I cannot poop at all. I went a good 3 weeks without pooping. My dad went and got me magnesium citrate, which is the little liquid stuff. I actually have some over there right now. Magnesium citrate and oatmeal cookies, pears, anything that'll help me go. Nothing worked. My aunt ended up coming over and giving me an enema in our bathroom. That worked. It got a little bit out. Not all of it. But mind you, around this time is when I start to see the blood in my urine cuz I'm trying to go to the bathroom. Ain't nothing coming out but pee or die.
And then once I told my mom that there was blood in my ear, she was like, "Kayla, that's it. you don't waited long enough to go see what this is, you going to the doctor. So, I ended up going to the doctor. Finally get a physician that actually takes me serious, listens to me. Mind you, my mom and dad are both in the room cuz they both over it at this point. Everybody want to know what the heck going on with their daughter. So I go to my primary care doctor and the one I seen this time he is a man but the woman the head doctor is the one who owns the practice or whatever but he is the one that actually listened to me and listened to what well he listened to my mama cuz she was basically like my advocate baby. She was like this is going on this this cuz I'm weak at this point. I ain't got the energy to talk nothing. I ain't got nothing for you buddy. So basically they ran blood tests again and he listened and he ran an what's it called? A anti-inflammatory type of panel I guess you can say. Mind you, nobody had ever even thought to ran one of them. So he ran it and my ANA was through the roof. If I can find out what it was, if I can go chart, scroll all the way down and see what it was, I will tell y'all what it is. He suggested that because of the blood that was in my urine, he also saw that. He suggested that I go see a kidney doctor. I'mma take my Lys bronzer. This is in the shade courage. So, the kidney doctor gets me in probably that next week. No, all this happened in a month, y'all. So, it was very fastpaced. So, he suggested that I see that kidney doctor the next week. So, taking Did I tell y'all what this was? Lys bronzer in the shade courage. So, I go to the kidney doctor.
Mind you, my blood is getting my pee is getting more and more red. It's basically burgundy at this point. So, I go to the doctor. He he takes my pee again and he runs his kidney panel or whatever, but I don't get the results back for a few days. So, we go home. We think everything chill. 2 days later, me and my mom, I'll never forget this. We sitting down. We watching the resident.
She is chilling with me all day. My dad is at work at this point. He was able to go back to work. Well, it wasn't like he took off work. I don't think he took off work, but he went to work that day. I know he was cuz that man flew home after I got this phone call. I get a phone call from It's unknown number. I get a phone call. It's the kidney doctor's office, his nurse, I'm guessing. And she calls me and she was like, "Is this Miss Kayla?" I'm like, "Yes." She sounding all sweet and innocent. God knowing she about to wreck my whole world, child.
I'mma take the powder blush in this now.
So, she calls me. My mom was sitting across from me in a recliner. I'm in this recliner over here and she pauses the TV. I never forget we was watching The Resident. Like I said, that was our show back then, girl. We was binge watching it cuz I was at home now. I'm not at work. I get to chill at home, be with my mama, whatever. She calls me and she was like, "This Miss Kum, I guess."
She was like, "We got your blood test back and Dr. whatever this doctor name was, I don't remember cuz I don't see him anymore. But doctor or whoever it was wants you to go to the hospital and get admitted and immediately tears cuz I could tell she's trying to sound not alarming. I'm all about reading people's tones. I can tell she's trying not to sound alarming and not to scare me, but I'm scared. I'm terrified, actually. So, she was like, "No, she has said she would like you to go to the hospital uh like tomorrow." She was like, "No, now." I'm like, "Oh." And then the tears fall and I start crying. So my mama take the phone cuz like I said, she across from me. She take the phone, start talking to her. She's like, "We're going to need her to get admitted as soon as possible. They're going to do a kidney biopsy probably tomorrow." So she'll be staying overnight. Yada. So I go to the hospital, get my kidney biopsy.
Let me continue with the makeup. I'm just I can't talk and do stuff at the same time. So boom. I go to the hospital, get my kidney biopsy. I'm taking my Milani um make it last. Of course, I ended up staying overnight and they do the kidney biopsy the next day.
So, my dad flew home that day to take us to the hospital cuz my mom at this time she is on a walker on at this time. So, she's still able to walk, but she can't drive. So, my dad flew home. When I tell you he made it home in 20 minutes, mind you, it takes him a good 35 minutes supposed to to get from work. He made it in 20 minutes. I'm boohoo crying a hot mess. They call my grandma, call my aunt, everybody come over and basically seize me off to the hospital, whatever.
So biopsy next morning, do the biopsy, still nauseous as I don't know what.
Still constipated at this time. So they give me some a laxative. Mind you, I can't swallow a pill at this time at all. So it's a lot going on. So I do the biopsy. The biopsy results don't come back for a while. I think it was 4 days before they said they'll come back. So they keep me in the hospital this whole time.
So I remember getting the biopsy back.
My rheatologist came in who he is now my rheatologist. I didn't know what a rheatologist was at that point. But I still see him. Love him down. He don't play about me. Anyways, I don't know what I'm going to do when he retired cuz he getting ready to retire. I know it's coming. Anyways, I see him. He comes in the room, tells me the results. comes down to it. I have stage stage three or four kidney disease. One of them, girl, I want to say it was stage three at that point. No, it was stage four, I believe.
I was pretty far down on the kidney going towards kidney failure basically.
So, basically, he came to the conclusion with the blood work and plus my kidney biopsy came back as lupus nefritis. If you don't know what that is, that's basically kidney disease caused by lupus. So, now we know what I have, what's causing this. Now it's all about the treatment plan. So, I'm in the hospital. I actually think I want to use this cream today. I have not used the cream in a while, the highlighter cream in this. I just clamped the heck out of my finger. So, by this point, I'm in the hospital for about 5ish days.
This is where my memory goes out. And you going to see why. So, I think it's night five or so. I'm in the hospital.
This is what my dad tells me cuz he's the one that saw it. So, everybody, it's night time. Everybody's sleep. Mind you, I'm on the kids floor. They put me on the kids floor. I guess the hospital was packed or whatever. They put me on the kids floor. I'm not hooked up to any monitors, nothing. They just have me chilling in the bed. They're like, "She fine." So, they thought. So, middle of the night, day five, my mom and my dad both, of course, stay with me at the hospital. So my dad says he wakes up and sees me shaking violently with phone coming out my mouth and he calls my name. He's like Kayla. Not I think I had my back turned to him. He was like he just sees me shaking violently and I'm having a seizure y'all. Never had a seizure. He probably never even seen a seizure. I'm having a seizure. Why y'all didn't tell me my nose look like that?
Oh my gosh. Where is my up close mirror?
Cuz now I'm messing up. Hold up. But girl, I'm having a seizure. Not hooked up to no monitor. So the nurses had no clue I was having a seizure. So my dad runs out, goes get them, whatever. Mind you, I have my mom said that when I finally came out of it, I was saying something about there's sausages in my head or it was just like a whole bunch of gibberish. It's so funny now, but to her it was not funny at all. I was speaking a whole bunch of gibberish talking about sausages in my head and monkeys and all of this. It made no sense whatever I was saying.
So, of course, they had to put me in a room with monitors and whatever. So, I think at this time after I had that first seizure, they moved me to the ICU.
The next day, have another seizure. I think that's one, two, I think the next day I had two seizures in one day. So, I'm in ICU at this point. None of this is to my memory. So, my dad says that everybody's coming to see me in ICU. So he goes out to go get my aunt to bring me her in to see me. I got a million aunts, y'all. So it's a whole different aunt. He goes out for her to see me. I need to fix this nose cuz it's going to bother me. I promise you it. And when he steps out the room, I go into another seizure. But this seizure right here, they said that I would not come too.
They couldn't get me out of the seizure.
So where's my bronzer? Mind you, this is all the stuff my dad is telling me as they remembering. my dad and my mom as they remember because like I said, memory is gone. I don't remember none of this at all. I don't even remember being in the ICU at that point. Cute. I think I fixed it. Did I fix it?
Heck no. I'm just taking some Maybelline Fit Me pressed powder to try to fix it.
You can't see none of the freckles on my nose no more. I am hot. I'm going to start sweating. No lie. I'm going to turn this fan on. The the sound may not be as good anymore. We'll fix it up with some brightening powder later on. I guess I need some more setting spray now and put all that on my nose. I'm going just go in with a little lip liner. Do I want to use this lip liner? But he goes out the room and they give me I go into a seizure that they can't get me out of.
The seizure lasts almost 10 minutes, girl. 10 minutes. That's what he told me. I don't know how accurate that is, Sh.
So basically they put me I finally come out of it and they realized that they got to move me to a whole different hospital. This hospital is not equipped to don't want that one. This hospital is not equipped to handle the severity of my case at this point. They know that at this point I need at this point I need dialysis because my kidneys are failing.
I'm in stage four at this point. My kidneys are failing. So I need dialysis.
I need a what was it called? I forgot.
It's this plasma feresis, that's what it's called, where they recycle the plasma in my blood. And I don't know, you just gonna have to do your research on that. So, I have to go to a critical hospital. So, they sell flight me to Florida. Mind you, I'm in Alabama. They sell flight me to Florida, the next big city over, which is Pensacola. Let me read you what plasma feresis is. It is a procedure that separates blood cells from the plasma. So, they already knew that they was going to have to transfer me over once the seizure started to hit cuz now it's more than just kidney involvement. It's involving my brain.
The lupus is affecting my brain. That's the reason for the seizures, y'all. So, thank God they already had that planned out to ship me somewhere else. So, I do get to a new hospital. I'm in this ICU for a good week and a half, y'all. Mind you, it's the end of February. They put me in they induced me into a coma. I think they induced me into a coma or I went into a coma myself. One of the two.
I don't know. The stories get mixed up at that point cuz like I said, I'm telling this from my dad's point of view and his memory ain't the best child. He don't know what half of these words they say in me. My mom was the medical terminology one. So, she knew what was going on. She made all the decisions and whatnot. So, this is hospital 2. So, I start to get the plasma feresis, get a little bit better, and then I start dialysis. I think I did maybe a month of dialysis and I went they came to me in the ICU. So when I was in the ICU, they came to me, but when I went up to a normal room, I had to get transported there in a different part of the hospital. I'm using a little bit more pink powder cuz what is going on? So I go into a seizure. I'm in the seizure for about 5 days, I believe. 5 days.
Mind you, my birthday is February 27th.
I wake up February 25th or 26th, I believe. So, I wake up a couple days before my birthday. Your girl was in the hospital for her 21st birthday. I just knew I was going to be out drinking, getting towed up. Okay. Yeah. No, that didn't that didn't happen. That did not happen. Let's start on these eyes. Hold on. I'm taking my Made by Mitchell color case and I'm taking this purple shade right here. This going to be my base for my eyeshadow. And I'm not going to put it too high. And if you didn't know, purple is the color for lupus.
It's more of like a dark purple though.
But I love purple of any kind. But I'm going to incorporate some dark purple for y'all. And also butterflies is a symbol for lupus. But where was I at in the store? Dialysis. So I go through dialysis, whatever.
And then they're like, you can leave this trauma hospital now. Now we need to move you to I'm in a coma for 5 days. So I have zero strength in my legs and my arms. I'm weak as I don't know what.
Can't even get up by myself to get on the bed.
So they sent me to a rehab hospital.
Mind you, this is starting in March. So I'm in that hospital for 2 weeks maybe.
This is starting in March. They transported me in a ambulance to a rehab hospital in Pensacola also. So I go there. I do more dialysis there.
Eventually I'm able to come off of diialysis. My kidneys start to improve.
They're basically just trying to come up with a plan to get me out of whatever lupus got me in. So, we're coming up with treatment plans, this and that. And this is where I meet my neurologist, who is my kidney doctor. Love him down cuz that's also a man that don't play by me. My whole team of doctors, I went through so many doctors cuz if you had attitude or you just did not play about me as far as me being a black woman, it's hard out here. Anyways, so I finally stopped diialysis. My doctor comes in with the good news after two weeks. It was after a month of being on it, but two weeks at the rehab facility.
Mind you, at the rehab facility, I'm supposed to be getting help to be able to walk again and all this. That occupational therapist came to see me maybe twice, two or three times and actually worked with me two or three times in those two and a half weeks.
Mind you, 2020, it's 2020 at this point.
Y'all know what happened in March of 2020. So eventually they ended up sending me home because of that. They were thinking I was fine. Everything was under control. I'm going to go in with my P Louise AM to PM palette. Y'all know I've been using this in just about every video. Get this palette. Lover. I think I'm going to use these shades down here.
Let's do Let's start with this shade here. A little bit of blue. That'll be cute. A bluish purple.
And I'mma put this on this outer edge and also on this inner edge. But they end up sending me home because they saying that this disease, it literally hit the hospital that I had just left, the trauma center I had just left the day after I left. Look at God. Oh Jesus.
Cuz if I would have gotten that during this time while I am sick with lupus and they're blasting me to suppress they're blasting me with medicine to suppress my immune system. Mind you, the immune system is non-existent at this point. So I wouldn't have made it at all. Look at God. I forgot my boyfriend text me. Hold on, y'all. I'mma just continue to pack this color on and then we can get to blending it upwards and whatnot. So, they end up sending me home. I think I went through one full day of being at home. That next day, mind you, I have high blood pressure at this point. The kidney disease gave me high blood pressure. So, I'm on a very strict baby.
I couldn't eat nothing. I was so mad.
Mind y'all, I ain't never had high blood pressure. Anything spiked my blood pressure up to dangerous numbers like stroke numbers. That's what they were really keeping me in the hospital for is cuz my blood pressure. It was throat numbers. It was 180 something over 140 something. It was crazy, mind you. I'm not feeling the effects of it at all.
But towards the end is when I start to feel the effects if my blood pressure got up too high. I would get severe migraine. Head just thunk. I can literally feel my heartbeat in my head.
Anyways, so they sent me home. I'm still having to monitor my blood pressure. My mom is basically my caregiver at this point.
That's crazy how that works cuz then I ended up being her caregiver. Couple years later, but I start to blend this upwards. So, I'm home for that one full day. That day goes fine. Next day, I think I ate some ravioli. Spiked my blood pressure up cuz mind you, it is corona during this time. I don't think I can say the actual word. Y'all know what's going on during this time. So, my dad didn't really want to risk going out and risk me getting sick because of him. So, we had to eat what we had at the house.
So, that's what we had. We were playing it real safe. I'mma start winging this upward just a little bit. But, I'm sitting here. I'm in my mom's bed now. I have them sleeping on the couch. I'm in their bed. That's a whole different story. Long story. This story is already long, so I'm not going to bore y'all with the details of that. But, I'm sleeping in their bed. They're sleeping on the couch. And I'm not feeling good.
I get this pain in the back of my head.
And then I get the certain the sudden urge to have to go poop real bad and I get heat sweats. A rush of heat just runs over me. I'm in there stripping throwing clothes off. I'm going crazy because I'm literally that hot. And then I get this pain in the back of my head.
And I noticed something with that pain in the back of my head. It's like a signal. So I'm on the toilet. My mom come in there. She was like, "Kayla, go get back in the bed. Come on." So I get back in the bed half naked. Mind you, I just have on my bra and my panties at this point. And I'm laying down. Well, I try to lay down, but I'm like, I can't.
I'm hot. And then all of a sudden, I start to feel it. Come on. And my dad is laying in front of me. And I'm like, "Dad, daddy, I'm about to have a seizure." And I'm warning him at this point. He think I'm playing. He's like, "Hey, let's stop playing. Don't say that." I'm like, "No, I'm telling you, I'm about to have a seizure." So, lo and behold, not even a minute after I said that, boom, full on seizure. This is the first seizure I actually remember. And I believe at this point after that one ended, I go into another one. I tell him I'm about to have another one. So I go into another one and my mom is on the phone with the ambulance. They on the way, whatever.
And they they can't come to the hospital with me this time. So I'm at the hospital by myself. So the ambulance comes and gets me. I remember the man being like, "Do y'all have some clothes we can put on her?" Cuz mind you, I'm naked at this point. I'm like, "Bro, panties, that's it." So they throw blanket over me cuz they ain't have time to My mom was like, "Get her to the hospital now. We don't have time for all that." Y'all been working on this eye shadow forever. Hold on. I'm trying to get it right. I'm going to start to blend it out with a brush. Maybe that'll help. So the ambulance comes and gets me. I'm somewhat come to my vision is very blurry right now. I can see the man, a figure standing in front of me in uniform in my mom's bedroom. and they put me on the the gurnie and whatnot and they put me in and we go to the hospital. I don't remember much after that. I remember being in the I'm going to take a lighter shade of purple. This one right here. I remember being in the the ambulance cuz I remember him trying to talk to me to keep me coherent and not go into another one. And I remember him telling the man, "Please speed up or we going to lose her." So, cuz I was going to go into another one. So, I ended up going back to the first hospital I had to get transported from to go to a more trauma hospital cuz I'm at home at this point. It's the closest hospital. And this is where my memory deficit comes from. All these seizures when y'all think I be playing when I say I have a memory deficit. Girl, it's been horrible since then. Mind you, my memory was already horrible before then, but girl, it's now even worse. I'mma also do this little look I did on on the bottom.
So, I'm going put some of that dark purple down here. I think I just want to go all the way across with it. We're not going to make it complicated. So, I get sent back to the hospital. Don't really remember much of this day because like I said, when I come out of a seizure, like that whole an entire week is gone to my memory basically. And I remember waking up in the ICU. I remember when I came back, too. I remember waking up in the ICU. Mind you, it had been about 3 days at this point. And my ICU nurse is on the phone with my mom and she was like, "Did she eat?" And she was like, "Yeah, she had some soup." I said, "No, I didn't." Mind you, I don't remember nothing. Well, before the soup. No, I didn't. She was like, "Yes, you did." I love that ICU nurse. I love that hospital period cuz all the nurses after all the nurses that was on the kids floor they put me on, they all sent me a card. They signed a card and sent it to me hoping I got well soon and whatnot.
They were so sweet. I love all those nurses. Now, that hospital ain't worth nothing no more. But that's not what we're talking about. I don't know why, but this shadow in the middle is not cutting it. Cut it. Cut it. I think I'm going to make this a little bit more pink. So, I'm going to take this shadow right here. It is a purple, but it's more of a fuchsia purple. And I am going to I did not mean to do that. Oh, lord.
I'mma run that through the crease.
Yellow. We here now. I got to do it to the other eye. I forgot how pigmented these shadows were. For real. I'mma just have to reinforce all these shadows again. That's fine. I'm always doing something, Kayla. This just adds a little bit more depth to the look so it's not so plain jane. All right, I think I'm going to leave that alone for now cuz if I keep going it's just going to be more. So I end up back at that hospital for I think 2 weeks somewhere around there. And then I go home finally after those two weeks and I'm just basically recovering for the rest of 2022 2020. That was a long recovery process. And in order to get my lupus back on track, I did end up having to do uh chemo. Sadly, the bad thing about the chemo was the reason why they were so hesitant is because I was so young, 21, and it was known to mess with people's fertility. So, if I ever wanted to have kids, then they wouldn't really suggest it. But, I know one day I will be blessed with a child.
Oh, girl, I'm not going to cry, y'all. I did the chemo for I think that entire summer. I think it I had to do it for four months. Tears, don't you do it. And it did it. All right, girl. I'm back.
I'm running out of time on this SD card.
So, I am going to curl my lashes, add a half lash, and we're going to come back finish this look off with the lip and the finishing. I guess we'll wrap up this story, basically. All right, girl.
I am back. But the cytoxin, I ended up taking the chemotherapy drug. I ended up taking is cytotoxin. My doctor said it because I did have my period the whole time I was taking the chemo all five months. Had a period that was a good sign. So I should be good. But I'm trusting in God either way to just do God basically. All right. For this lip, I really just want to do a pale pink. So I'm taking matte creme to nude lipstick.
Putting that all over it. Cool. And I'm trying to think like dang, do I want to take a cool tone lip gloss and go over this? Think I do. I'mma take this Lawless Lip Gloss and Strawberry Milkshake. Oh, that rain is coming down now. It's crazy. I'm about to go eat some barbecue with this lip. But girl, I have been trying to recover since then.
Of course, I still have lupus. I believe I am in remission, but I've been seeing some signs and signals that I choose not to ignore. We will know next time I go get my blood work done cuz my hands are starting to bother me again. So, just keep your girl in prayers. I just wanted to make y'all aware on lupus on what I've been through. I don't look like what I've been through. Thank God is I serve a amazing God. I did not tell y'all about the dream I had before all this happened cuz I don't know maybe we can do that in another video. Let me know if you want to know about that dream. This is the finished look. Let me know what you think. Is she cute? Is she giving lupus awareness? Anyways, I think I want to take this headband off. I'm not really feeling the headband today.
Anyways, this is the finished look. I did try to draw some of my freckles back on my nose. They're a bit too prominent, but oh well. We're cute. Anyways, I hope you enjoyed this little story time. I hope this gave you a little insight on us lupus warriors, a little insight on me if you wanted to get into my business a little bit. This is probably a very emotional story time. I don't think I've ever told the whole story publicly as far as online in my content creator journey. Not being at Moles anymore is what basically started this content creator journey. So, at least something good came out of Lupus. It gave me this.
It gave me y'all. So, but anyways, I hope you enjoyed this video, Miss Fam.
If you made it this far, drop me a purple heart and a butterfly emoji. # lupusaw awareness. And I will see you in the next video. Be sure to like, comment, and subscribe. Comment that emojis if you made it this far, but be sure to comment and subscribe. And I will see you later. B is well.
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