#spoonie #chronicillness #lupus #mentalhealth #fibro #ehlersdanlossyndrome #potssyndrome #mcas

Hinzugefügt: 2026-05-27

[00:00:00]The worst experience I ever had with a doctor was with a rheumatologist and we were suspecting that I could have lupus which I was diagnosed with lupus by but not by this by this doctor. This doctor was very much your lab markers don't say you have it so you don't have it even though I had all the symptoms and my markers were high but not high enough.

[00:00:28]I also was already diagnosed with fibromyalgia and he looked me straight in the eyes and said that is all in your head. You just need more sleep. Fibromyalgia is not real.

[00:00:46]So it took me a year to go see another doctor again and you can only imagine how bad I deteriorated in that time.