How I Lost My Sight Part 6

Hinzugefügt: 2026-05-06

[00:00:00]Part six of how I lost my eyesight forever at age 17. So, a lot of you guys were DMing me and asking me some questions about my story. So, I'm going to answer your questions today. So, this is a bit of an interlude episode of a Q&A. First question, what happened between ages 8 and 11?

[00:00:17]So, I had really normal vision around this time. I don't remember feeling that different because my eyesight was just starting to change and I was so young. I think I was just beginning to be able to articulate to my mom and my dad what was actually happening in my vision. So, this is where I learned the word floaters. How I explain floaters to people are, you know, when you have a camera flash in it's a in a really dark room and the little black dot then follows your eyesight afterwards and then it dissipates. I had thousands of those in my vision.

[00:00:53]And I was starting to get them around 8, 9, 10 years old and honestly, it was the discovery of me having them more when I started my cycle, which I started 11 years old having periods. So, my eyesight would get worse at those moments. I can't emphasize enough, guys, I had such a normal childhood and I don't really remember my eyesight having any major impact to my life until I lost the sight of my right eye at age 11. I also didn't really notice it happening.

[00:01:29]Again, I would have these moments where I would see loads of floaters, but because it was such a normal part of my condition, they would just go away. They would reabsorb. Like, I would have these moments where because my eyes do bleed and the back of my eye does bleed, check the other parts for the explanation of what that means. Um it was just such a normal thing for me that I didn't have any anxiety really of my eyesight even going away because I knew that the consultants were monitoring it.

[00:02:03]So, maybe it was like a full sense of security. Maybe, I don't know, it was just childhood innocence, but I never really remember truly worrying about my sight between ages 8 and 11. So, second and final question. This commenter asks about me having mobility training and just the clarification of when I was registered visually impaired or severely sight impaired and what age because I was doing the training at that time. So, I had a lot of mobility training as a preemptive just in case I did lose my eyesight because the readings, every time I would go into my ophthalmology appointment and I'd sit down with the nurse and read the chart, it would be slightly incrementally worse. Probably most times it was stable enough to be like, she's fine, but I was starting to need glasses around 10 years old. I remember just before I lost the sight of my right eye, I would start to have mobility training with Terry, uh my mobility officer. So, I have honestly had way more understanding of how to move about the world with my ears rather than my eyes at this point sitting here at 30. So, um I I'm just way more confident. I reckon if I got my eyesight back tomorrow and someone was like, cross the road, I'd be like, what? Um I don't I feel way more confident with my ears cuz I've just been doing it since 11, but um well, 10 {slash} 11. But, all of this time, as you can probably tell because it was so long ago, it's a slight bit of a blur on the exact pinpoint of timelines. I know that it ramped up when I lost the sight of my right eye a lot.

[00:03:50]I would have way more mobility training.

[00:03:52]So, Terry would come into my house. She would help me use the slow cooker. Uh we'd go on the bus together. But, I did have like, you know, preemptive training because I remember really vividly my parents wanting to make sure that, you know, as my vision loss progressed, I would still need to get on the bus. I still wanted to walk to school, but I was also fighting the whole just going to just about to go to secondary school, like needing to feel independent, not wanting to feel different. So, um that was all happening, but to be honest, like I was properly registered as visually impaired um just before I lost the sight of my right eye um because that's when the vision chart got worse um and my eyes started bleeding a lot more. And to be honest, it did just coincide with me being more hormonal and going on my period. That's what even to this day that we've kind of put it down to that, you know, when all of that was happening in my body, uh my eyesight was getting worse. Again, I don't know the literature on that, but that's just kind of what it coincided with for me. So, yeah, come back for part seven and we'll talk more about the timeline.