This video documents a caregiver's daily routine with a child named Jer who has a rare disease, highlighting the importance of celebrating small wins like the child expressing discomfort, engaging in therapy activities, and showing progress in communication and motor skills, while managing medication side effects like diarrhea and upset stomach through comfort care and gas medications.
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Deep Dive
Daily Recap May 27th 2026Added:
Well, good morning. Good morning. You know you don't talk to me when there's tea here. I get a smile today. Thank you. Let her do your treatments and then she'll wash you up. Okay.
And get your mouth all clean, too. Yes.
She's going to brush your teeth. And you're going to listen to her.
Come on.
Come on. I'll help you. Put your hand up here.
She has two whip. J Bear, >> you going to eat it? Oh, >> did you like it?
You like them?
>> Did you like that?
>> Mom will have me get you a pup cup at at Starbucks.
>> At Starbucks. Yeah.
Come on.
Come on.
Come on.
Careful with those wheels. Come on. What are you doing?
Oh, you are so close.
Come on.
Go see Miss Rachel. Okay, let's go find Miss Rachel. So, you going You slowed down. Go straight to the gym.
Come on. Take your sunglasses off.
Take your sunglasses off. Come on.
Yeah.
Relax.
No.
with this here.
Right. Push. Push. Push. Push it in.
Out. Dust. Out. Push it in.
Pull it.
In. Push it in. That's out. Push it.
Push. Push. Push.
>> Show me. Let me see.
>> Couple more.
>> Oh, you think that's so funny.
>> Do your work.
>> You think that's so funny to me?
Thought while it was Rachel.
I'm waiting on you.
Come on.
Come on. And come on and park right here outside Miss Julie's office. Come on, >> my friend.
Good afternoon. How are you? It's so nice to see you.
>> Hello, handsome. Hey.
Oh, if you're using your words, tell me.
Hey, I hear it. I hear you. I hear you talking.
Hey.
Good afternoon. It's nice to see you.
Good afternoon.
>> Good afternoon.
>> It's nice to see you today. Hello.
>> Hello.
Your turn.
Got the buffalo on my pants.
>> What are you looking at over there?
>> Yeah, we always have our little chat about the weather.
What's the weather like outside today?
It's been all kind of It's been everything. I've seen how >> the weather outside >> I have seen a sunny sky.
>> I have seen a cloudy sky.
>> I have seen a clear sky.
>> Clear.
>> I've seen all of it today. But one thing I do know it is Jeremiah hurts.
Okay. Better.
Better. Oh, better.
Okay. Then Greg, get back to our our animals and our numbers. Remember you chose >> parachute game.
>> I don't have a parachute game.
>> Parachute game.
>> Pull.
>> Yep. Pull the top off. You can pull the top off. See right here?
>> Get looked >> and get it out.
Do you want to take it out?
Let's take it out. Let's get >> get >> Let's get it out.
>> Happened.
Take him out and see what animal we found. Are you not going to do it? I'll take him out. What can we find?
>> See?
>> All right. Which one are you playing with? You were playing with the >> cat. Trying to find it. No, the cat's right here.
>> Oh, you almost had it. That's right.
>> Chicken.
>> Chicken >> right here. It's a rabbit. Do you almost had rabbit? You were so close in his house. All right. So, we had number one, two, three, and now we have number four. Who's in here?
>> So, number one, >> one >> is our bunny.
>> Number two, >> two >> is our puppy.
>> Three.
>> Number three is our cat. Our Let's take a look and see who's number four. Number four is our Let's put him on top. He was our baby chick.
Let's put a farm animal and we will have baby Chick not in here. We have but we have a chicken.
>> Chicken.
>> Our baby chicken.
>> So we had a farm animal. We have chicken.
>> Chicken.
>> And we have pets. We had dog cat back in. So I need you to help me clean up the kitty cat. We're going to put the kitty. Now remember our word. We can go back here and we're going to do in.
We're going to put everything back in.
Okay.
>> More. We're cleaning up to put them in.
Oh, you want more? But we're finishing up now. He's in. Kitty is in.
>> All right. Now we have to put our bunny in.
>> Miss Julie, >> good afternoon. How's the weather outside?
>> This is everything we did at the beginning. Remember you were supposed to do?
>> Humid.
>> It's very humid. It's so humid and hot.
Yeah, the weather outside is humid.
>> Seasons dri >> clear.
>> Clear.
>> When it's time to go, we can tell each other bye.
>> Miss Julie.
>> Yep. We can say bye.
>> But Miss Julie.
>> Miss Julie. Hey, that's me.
>> Mrs. Julie.
>> Miss Julie. Goodbye.
>> Bye.
>> Somebody tell me.
>> We almost home, but I'll give you some gas meds.
Goat. GG. Goat is for mouse.
Mouse again.
This is number zero. This is number zero. This is number zero. And you write it like this.
And you go and you write it like this.
>> Are we all done right now?
Yeah.
We ready for summertime?
>> Stopped.
>> You You want to stop?
>> You want to keep going and have more school?
>> Stopping.
>> Are you ready to stop school for summer?
more songs. All right, then. Let's go back. Let's practice how we go back.
>> You okay?
I'm going to tuck them right on over.
Come on.
Come on. Ready. I know this a little bit tall for you to push over.
You want to go ahead and wash up there. Let's wash up. Okay.
>> You better now, >> huh?
A little bit better. All right. Good.
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