Dementia is an umbrella term for cognitive decline that interferes with daily life, while Alzheimer's is the most common type, accounting for 60-80% of all cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. When selecting charities for dementia research, organizations like the Fisher Center for Alzheimer's Research are notable for directing over 90% of revenue to research, with a four-star Charity Navigator rating and connections to Nobel scientists.
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Deep Dive
We Have Big News To Share Day 125 of 365
Added:Woo! Another day, another vlog. We have been killing it. We are on day I want to say it's 125 now. Damn. But right now, what we're going to do is we're going to go into GoFundMe together and we're going to find the next charity. Um, we talked about it yesterday on the vlog that we wanted to do a charity with uh, let's see, categories relief support. We wanted to do a fundraiser for uh people with Alzheimer's and dementia. So, we're going to look for that as a GoFundMe and see if we can get it started here.
>> So, if you are new here, uh I'm Frankie.
This is my wife, Alex, over here making the tea.
>> I'll be there in a room.
>> Yeah. Can you make me a sleepy time?
>> Uh yeah.
>> Thank you. Is that like the licorice tasting one? No, it's just um >> it's not.
>> That's fine. I still needed sleeping time. T I've been staying up way too late, especially with how late Everly's been staying up. Our daughter Everly, she's just she's almost 3 now. And uh she's been staying up to like almost 9:30 at night lately. And uh tonight seems like she went down by 900 p.m.
which is better, but still so late. And we're we're starting bedtime around 7.
So maybe we need to start it around 6.
Like it's the only thing that makes sense to me that she would uh start to go down.
>> None of it really makes sense to me.
>> Um I don't know how to spell dementia or Alzheimer's. [laughter] >> Do you want some help?
>> Yes.
Um nonprofits. [music] Let's do that first.
>> Here. You want me to look and then you can you can chat?
>> Yeah. Yeah. So, every single well, not every month, but we're trying to throughout the whole year of doing these vlogs to do a charity where we could donate up to $1,000 $1,000 or more to the charity. And so, so far we've done two charities. And actually, people donated to us as well. Uh because when we had our channel hacked, we thought that there's a potential that we could like lose our channel and our income and all that. And so we reached out and we asked a bunch of people, we asked the the people who watched the videos, uh, if we should do the GoFundMe for us that month and they said yes. And I think it brought in probably around $600 total.
Um, and then we asked everybody once we got our channel back, like, what do they want us to do with that money? Do they want us to donate it or keep it for ourselves for like a rainy day fund or if they wanted their money back? And overwhelmingly everybody, pretty sure it was everybody, said to keep it as a rainy day fund for ourselves, which we're so thankful for. So, thank you guys so much. To give you an idea of how much money we make off of like this vlog in general, uh it's like $2 to5 or anywhere. Again, it's went up to, I think, $13 for a single video. So, it's not a lot of money that comes in to us for making these 20-minute vlogs. I still enjoy making them. Doesn't matter about that so much. But that 600 bucks kind of helps us quite a bit in the sense of uh you know income coming in cuz FNA life is the channel that makes all the bread and butter for us and keeps us paying our bills and all that stuff. So very thankful for when you guys did the GoFundMe for us as well.
And uh every single month I donate $100 to the charity as well. So basically some of that money is going to wind up going actually pretty much all of it eventually if we do 12 total months of charities. All that money plus $600 more dollars of my own will go into the charities.
>> Why do you need $600 more?
>> Because if they've donated $600 to us to the channel. If I'm donating $100 every single month to a charity that's $1,200.
>> Oh, >> if I do 12 charities in a full year >> because we're giving the first >> I'm always giving the first hundred.
Yeah.
>> That's cool.
>> Yeah.
>> I was like, what are you talking about?
Um, okay. So, one thing I just learned because I was like, "Oh, like am I, >> you know, dementia versus Alzheimer's?"
Like, you know, what are we looking for?
But dementia is an umbrella term for a decline in cognitive ability such as memory, reasoning, and thinking skills that is severe enough to interfere with daily life. Alzheimer's is a disease, not a separate condition, okay? But rather the single most common type of dementia >> accounting for 60 to 80% of all cases.
[snorts] >> So dementia is the umbrella for which Alzheimer's falls under.
>> Yeah. Yeah.
>> And so there's other types of >> So there are probably charities that are only focused on Alzheimer's, >> but other common types of dementia include vascular dementia, lewd body dementia, and front totemporal dementia.
>> Okay, that sounds like a very like the front part of your brain. Yeah, if we choose a charity that is well >> if it's umbrella but if it is if it is dementia that's fine because then it does have all it's trying to encompass all of them >> and help out with study and research in all of them because they all create Alzheimer's in some type of way or >> so using AI guys I hope this doesn't bother you. I know some people are anti- AI, but we use it in our daily lives.
>> Well, it would be like doing a Google search, you know, >> but just more specific. So, basically, I highlighted every single organization that GoFundMe has here listed under dementia. And I said, I want to choose the organization that focuses the most on finding a cure because a lot of organizations.
>> You know, there is some unhappiness with the fundraising community that some organizations actually >> don't or benefit from not finding a cure.
>> Yeah. Yeah. Sure. And that's what we don't want. We want to uh find a cure so that way eventually one day nobody has to donate to any of this, you know.
>> So basically the strongest cure research focus is called the Fiser Center for Alzheimer's Research based in New York.
This is the standout. It states outright that over 90% of revenue goes directly to research. It's tied to Nobel scientists and it holds fourstar charity navigator rating in the top 1%. If your priority is cure specifically, this is the most directly matched on the list.
>> So I asked my buddies what they think of that and they said, "Forget about, you know, forget about it and just give some money to them, you know." So yeah, that's my that was my old man gangster Brooklyn guy. [laughter] >> Um, this next organization funds research, but it also spends heavily on advocacy, awareness, and care programs, which are also important. Um but a smaller share of each dollar goes to research. Okay.
>> This next one is a independent biomed research institute >> which does way more than just dementia but they do have a neurology division.
>> Okay.
>> So that's kind of like obscure.
>> Um >> American Brain Foundation >> American Brain Foundation funds research across many brain diseases ALS Alzheimer's Parkinson's etc. um prevention research consortium corporation focuses entirely on direction biomarkers, not a cure per se, more a diagnostic research. That's interesting.
Um and then this final one does training and education. So it's uh anyways >> I like the one that gives 90%. Yeah, I think that that might be >> and the nice thing about so the when we did the Paco charity, it was a little bit tricky because we had to accept the funds >> and then donate them >> because they weren't set up on GoFundMe and we contacted them and tried to get them to get set up on GoFundMe and blah blah blah just and so we were delayed trying to get them blah blah blah >> which there's also like a a transaction fee as well that's involved in that where I don't know I mean I'm guessing that the transaction fee happens no matter what, like even for these organizations that are on here. Um, but I don't know if it is less uh due to the fact that they're directly connected and they're probably bigger markets on on GoFundMe potentially.
Alex is doing a deep dive on the the Fiser Center of Alzheimer's research.
>> You know, I don't want to upset anybody.
I think the tricky thing is when you're group funding versus like if we were just like, "Oh, we're just going to give a hundred bucks and then we'll get 100 bucks."
>> Yeah.
>> But if you're doing it with other folks, you want to make sure that you're not >> One of the biggest things for me is like the wrong direction. If if you're above if you're above 85% in like donation goes to the the organization or like the the cause, I think that's excellent because anything below that, I feel like >> now people are starting to pinch the pot kind of, you know, >> I I we understand that you have to pay people in these organizations and stuff to to get people to work and to do it.
Uh not everybody that works for these organizations is not paid and that's why it's called a nonprofit because the money gets distributed to people who are working for the company but the people who have made the company don't make money is >> yeah so they've been around since 1995.
Um in 2021 85 84% of their donations were directly used for research. It's important to note that it doesn't run its own lab full of scientists. It's a fund generator. So they take their funding and then they go they give that funding mostly to a lab at Rockerfeller University though they also support researchers globally.
>> Okay.
>> More recently they've expanded fundraising to support additional labs um an NYU Gman School of Medicine uh Alzheimer's program at the end institute in Paris. So your money flows through the Fisher Center and then it goes to all these organizations all over the world that are actually doing the research. one thing to flag honestly.
the founding scientific director.
Um, okay. So, the founding the founder of the company died in 2019, >> which is not exactly a red flag. Um, since they've found a new head of the company who is a PhD um, >> novascular dysfunction and all.
>> Yeah. So, it's not run by a Nobel laureate because the Nobel laurate who was running it passed away. Okay.
>> But it's still run by a PhD.
>> Okay.
>> Which >> So basically, >> oh, the one smart person got swapped for the other smart person.
>> No charity watch red flags, no lawsuits, no fraud allegations, no sounds like a scam.
>> Um, so >> it's generally a clean record.
>> And this one is really about finding a cure.
>> Okay, I like that. Yeah, I think there's enough uh >> so what we'll do awareness >> we will we will set this up.
>> Okay.
>> Um as the as the it I feel like whenever we give everybody like a poll to vote it creates some frustration in people like because they don't know what to pick.
They think all the organizations are great.
>> So if we just kind of go through and pick the ones that we think that we want to stand for this month or so uh we could go ahead and we could do that.
Well, and also I think we're already kind of like delayed because of everything that happened and our life got busy and blah blah blah blah blah.
>> Um, >> we're definitely falling behind in the sense.
>> So, it's been a little bit of time since we were actually raising money.
>> Yeah, cuz really we should have had this one. We didn't we also didn't decide to like start doing the fundraises till at least I want to say 15 days in.
>> Yeah. So, I think it was an idea, but we didn't actually start it >> uh until a little bit in.
>> But, yeah, it's been great to be able to give back and like every year we do small things um that we don't necessarily show in videos and and uh we don't we don't uh show it to the world.
We don't publicize it. And um you know the biggest thing is that we we know that we're doing it for the causes that we we care for and we're doing things that have uh been something in our lives that have meant something to us or maybe even been a part of on the other end of it for myself. Um so yeah, we throughout the year we're always doing little things uh that go completely unseen and so this is our opportunity to to give back as a community with you guys. So, we really appreciate the fact that you all are are stepping in as well and giving back with us. And I know there's been many people who have been asking like, "What's the next charity? What's the next charity?" So, you guys are hyped to get a charity going. So are we.
And uh here we are getting on it.
>> There we go. It's done.
>> Yeah. Let's see.
>> Hold on. Let me The goal is $1,000. The goal is always $1,000.
Um, I don't know how to show you like the whole >> bucks. I'm going to donate >> support Alzheimer's research for brighter futures.
>> I'm going to donate a hundred right away so that way we can get the first donation in there before anybody else is able to donate. And uh, >> be the first to donate. Oh, I can't click right there. This is a preview.
>> Preview.
>> So like typically you could put like your own pictures and stuff like that.
>> Yeah, you could. I just clicked click click clicked when it was done. You can go in and update the info.
>> I typically don't.
>> No.
>> No.
>> Okay.
>> You don't even put the >> only one I did was for Paco. Uh, no. Cuz it's really not for >> No, but I just mean so that when people get there, they know that they're at the right place.
>> Um, >> I don't know.
>> I have to look at all the ones, but I I wrote like a little description on like, oh, we're char like we're giving back to this charity this week. And then there's like another thing that I normally do is like you can say thank you to people for donating. And so I'll set up like a a message where I could send back a message to the people that donate and say thank you. [snorts] Um yeah, so it's cool. I'm really happy that we get an opportunity to do this cuz um you know, you could use your powers for good or you could use your powers for bad >> and I feel like we're using our powers for good.
So, I hope that uh you all could appreciate that and be good with us.
>> I don't think we want to put on that credit card.
>> No, I typically just do it from my bank account.
>> Oh, yeah.
>> Mhm.
>> Okay.
>> Yeah. Credit or debit card and then I just put it on my debit card.
>> I don't have my wallet on me at this.
>> Wait, which one is that? Is that the Marriott card?
>> I think so. Yeah.
>> I don't know. Yeah, I think that's Marriott.
>> Okay. Well, whatever.
>> Yeah. So, we'll do that tonight.
>> Okay. I'm just going to click it and wherever wherever that charge comes out, it comes out.
>> Fair.
>> We actually I was just thinking I just started reading a new book called The Millionaire Next Door. Get 25 on us.
set aside $25 to add to your next No, that's like you give them 25 more and then they give you 25 more, which I guess wouldn't be a bad I don't know, whatever.
>> I'm going to give them 25 more anyway.
>> So, what were we saying about this new book?
>> Oh, it's basically like it's called The Millionaire Next Door.
>> Okay.
>> And it's about how most millionaires are actually just like average regular people who are just really good at >> money management.
>> Yeah. and like saving and investing and having a long investment horizon and investment the biggest and >> like they own pretty like bluecollar businesses like one of them was RV park owner but like >> you know and some of them are like dentists and doctors and lawyers but a lot of them are like >> diesel mechanic or like you know stuff like that. RV parks right now are the biggest cash cows. Like they just pull in profit if you're in a good area and it's established all that. Like I'm talking >> they're also very expensive to get into.
>> I'm talking 20 $40,000 a month that just come in in cash flow like profit. Um especially if you do seasonal things and you have if really the money is in the ones that are like I think it's 200 sites total. if you could have 200 available sites um whether it's uh campsite camp on sites like tents or trailer pullthroughs you know so on and so forth >> and then like there's the other thing like I've been following a couple on Tik Tok and stuff that were like [clears throat] >> we put in an ice machine it makes us an extra $30,000 a year and you're like >> yeah okay >> an ice machine >> yeah and you're like what so anyways the whole book is just about the premise of like you know it was I've barely really read any of it, but the one was like, he's a fireman and she's a school teacher and they have a better net worth than this lawyer.
>> Mhm.
>> Because the lawyer has to have fancy suits and he's got to live in the right neighborhood and he's got to be in the country club and he's so like his lifestyle costs so much more.
>> And the the firemen and the school teacher live within their means. They invest x amount every month. They like make smart choices.
>> They don't have fancy cars.
>> No. Like, so anyways, I was like, "Gh, we really need to start budgeting."
[laughter] >> You know, we were really, really good at budgeting when we first hit the road. We were able to spend I think our lives cost us like $1,000 a month.
>> Yeah. Total both of us maybe, 1500.
>> Yeah. And that was with driving everywhere. And >> we were being so frugal.
>> Obviously, cost of life is a little bit different. Also, >> I feel like you can't leave your house without spending $100 >> minimum. Yeah.
>> So, if you leave your house every day, like it's like if you fill up a tank of gas, 100 bucks gone >> in Canada.
>> If you uh go to the grocery store, 100 bucks gone.
>> If you go out to eat anywhere, 100 bucks gone.
>> Yeah.
>> So then 100, you make 10 transactions, you've spent $1,000. Yeah.
>> You're like, wait, >> what?
>> Yeah. It goes by.
>> We just spent 100 bucks. [laughter] Literally, it's like a hundred bucks no matter what. Gone.
>> We didn't even go out today. We didn't spend any money today.
>> The $100 is the new 20.
>> Yeah. So, >> like it used to be you go out, you spend 20 bucks.
>> So, anyways, like we were looking at our credit cards and stuff this morning cuz around this time of the month is when everything comes due and blah blah blah.
So, we just make sure there's enough in the bank to cover the thing and you know that you don't >> miss any payments cuz it's an auto pay or you know sometimes stuff gets mixed up or whatever. Speaking of I want to check out all the credit card just in case again to make sure that no payment on it.
>> Um but anyways we were like I lost my train of thought.
>> You were just talking about the book that you reading the millionaire and like uh millionaire.
>> Oh but so you were looking at the one credit card and you were like oh like it was only this last week but then all of our subscriptions came out.
>> Yeah.
>> And I was like oh.
>> And we have like a fair amount of subscriptions for the business. Like all of them are business related >> except maybe Spotify.
>> Yeah.
>> But Spotify is like required >> for our life.
>> Yeah. So, so like 95% of the subscription based things that we have >> are like programs that we use to do our job >> or music that we use to not have copyright or like it's amazing how many things we have that is going to be really hard for us to let go of. One of them that we probably get let go of.
Invato.
>> I use that all the time.
>> Do you?
>> Yeah, >> that's fair.
>> Cuz you don't do the second half of the video.
>> Fair.
>> I do the second half of the video.
>> I could see if Art List >> cuz Art List has a lot more AI stuff in it now, but now you need like >> credits higher subscription base, >> right? Like I have the like most basic Artless subscription.
Um Yeah. But they like so the thing that I like about Invado is that Oh, they do have a stock catalog.
>> Yeah, >> that's music, sound effects, footage.
>> Footage is what we want.
>> Footy.
>> Well, it's been 20 minutes. Well, it's been 21 minutes. So, hope you guys enjoyed the extra minute that you got today.
>> We really appreciate you all. Thank you so much for being a part of this.
Subscribe if you've made it this far in the video and you're brand new. Uh that way you don't miss a video. Turn on the notification bell and we'll see you
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