The internet's ADHD content often presents doom and gloom statistics (like the 13-year earlier death study and 30% rule) that mislead people into believing they are broken or doomed, when in reality these statistics are either misinterpreted (the 13-year study was a lifestyle prediction, not a biological fact) or grossly exaggerated (the 30% rule only refers to executive function, not emotional maturity), and a proper ADHD diagnosis should be a door to self-understanding rather than a verdict of brokenness.
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The ADHD Doom CycleAdded:
The internet, an amorphous blob of information, porn, and mean people.
Also, the place you have to go to find out more about what it means to have that thing we call ADHD, and it doesn't disappoint, it seems. So many things pop up when you look it up.
You just want to learn a little bit about yourself. Maybe understand why you've been doing those weird things you keep doing that nobody else seems to get. Maybe you'd even get a way to explain yourself a little better to people around you or your loved ones.
Maybe there's finally a why, but you don't find an answer to the why, do you?
Not really.
I mean, you find so many answers, but none of them feels like it's really giving you that answer you were looking for.
No. The plethora of information online about ADHD isn't helping you make more sense of yourself. If anything, it's helping you fall into a pit of despair and feel like the more you find out about yourself, the worse off everything gets.
But you can't just stop. You can't just stop caring. So you expose yourself to more and more.
And it's not like you're seeing like bad people saying mean things about you, though there's definitely some of that.
It is the internet, after all. No, it's more that you're finding real information. You're finding research results, headlines, expert advice, and explanations. And all of it proves, once and for all, you're a real [ __ ] up and you're never going to get any better.
Maybe worse, but definitely, certainly not better. That would be silly.
You're a mess, and you're always going to be a mess.
Kind of, right? The best you can do for yourself is just keep trying really, really, really hard to do better.
I guess.
Bye.
And like, what the [ __ ] is up with that?
Now, my name is Emma. I'm a licensed ADHD coach and philosopher, but most importantly, I've been studying this since I was a teenager. 20 years of research. And you guys, the internet lies. I'm going to talk about that. I'm going to talk about the doom and gloom culture of ADHD content and information.
I'm going [clears throat] to help you tell the difference between a fact set in stone and a brazen generalization.
But I'm going to start by talking about the diagnosis, because something's just not right.
I was diagnosed with ADHD in 2006, severe inattentive type, meaning trouble focusing and trouble getting myself to do things that don't naturally interest me. That's all I was given. The rest was for me to find out. And honestly, that was a gift, because back then, there wasn't much information around, which also meant not much misinformation. I got my diagnosis as a description of myself, an explanation, proof that I'm not being difficult or obnoxious. I'm just built different. My brain doesn't see things the way it was supposed to.
No wonder I've always felt like an alien in the world. Over the years, it evolved beyond an explanation into being a part of who I am. Eventually, being an ADHD-er became a badge of honor. Oh, I'm weird? Yeah, that must be my special brain. Oh, you don't have a special brain?
Must be boring. Look, ADHD can be really annoying and scary and [ __ ] up and unpleasant in a multitude of ways. But knowing all the weirdness and dittiness and quirks are really me, who I am, how my brain thinks, there's a freedom in that. This freedom of self-discovery, of self-understanding. I'm not weird, I have ADHD. I'm not a freak. I have ADHD.
I'm not intense. I have ADHD. I'm not insane. I have ADHD. The internet I was talking about over the past 20 years, it's been busy. There's a lot more research about ADHD now, and a lot of information has been filling that little the internet of ours. Also, people have a lot to say about ADHDers and to ADHDers. And a lot of it is starting to muddy the waters. I got a DM recently from a fellow ADHDer, a woman who's been diagnosed and started doing some research about it. She was looking for exactly what I'm talking about, something to help her understand herself better, to help her explain herself to her husband, maybe even something to help the relationship. What she found instead was doom and gloom. She told me the things she'd learned about ADHD made it the worst possible diagnosis to get.
It broke her heart. She came out of this feeling dumber than she'd ever felt before. That DM made me really sad. It genuinely shocked me. I've never heard anyone call ADHD the worst diagnosis they can get before, and hearing it from someone who's living it, knowing that's how it can feel for others, broke my heart. It shocked me. It is that was not how I reacted to my own diagnosis, and I think I know why. I think I know the difference. People are now walking into this drowning in misinformation. They come to this diagnosis thinking, "This is horrible. This means I'm no good. I'm behind. I'll never be as good as others.
I'll have to take meds forever. This means this. This means that." So, let me tell you what it was actually like when I got diagnosed, because I think the contrast matters. It was 2006. I was 16 and a half, freshman year, 10th grade.
My sister, who is 9 years older than me, got diagnosed, and my mom and I went, "Wait, that's sounds familiar and ran to get me tested. I got my diagnosis after a brutal week of getting my mid-term grades back and I didn't get anything above a D. Despite studying like an absolute nerd and going through hell, I was spiraling. Am I stupid? If this is what happens when I work really, really hard, then I must be stupid, right? Then I got my diagnosis and it felt incredible. Like I could breathe. Why?
Because nobody handed me a verdict.
There were no mountains of misinformation to navigate. Here I was, teenage girl with no hyperactivity whatsoever, easily dismissing the it's just boys, it's just kids, and it's just hyperactivity nonsense. What I was given was just a description, plus the implication that I could do something about it. That was it. I firmly believe that a diagnosis should never be here's what you can't do because of your disability. A diagnosis should be, here's what may have been hard for you, and here are different resources that can help you handle it. Maybe you need to build some skills that your brain doesn't develop automatically. That's it. That's the conversation. You should never be told that you don't have X or Y. That's never going to be helpful. The framing is everything. It's the difference between being handed a problem and being handed a solution to a problem. I was handed a solution. The woman in my DMs was handed a problem with no solution. Or worse, a problem framed as unfixable. And I suspect many of you watching this have been handed the same thing. That is just plain wrong. It's not true about ADHD. It just isn't. Mind you, I don't even like the term ADHD. It frames a type of brain as a pathology or a disorder. It's just a kind of brain and it's misexplained.
That's exactly what's happening online.
Anyone with ADHD who goes looking for information about themselves is running into this. Don't show you the worst of it.
There's one statistic floating around online that you may have come across.
And if you have, it may [clears throat] have hit you harder than anything.
ADHDers die 13 years earlier than everyone else. Okay, that's a wild number. Let me actually walk you through what it means because once you know what's behind it, it stops being so scary. Earlier than what, exactly?
Earlier than people without ADHD, supposedly. But based on who? Did they study every person on Earth? Of course not. They studied a group. About 200 people, mostly white men, all from Milwaukee. So already, ADHDers die 13 years earlier really means this small group of mostly white men in Milwaukee something something. Stay with me.
Here's the next thing nobody mentions.
Those people didn't die. Nobody died in the study. Not one person. So how do you write a paper about people dying earlier when nobody in the study died? You make a prediction. That's what they did. They took 14 things from each person's life.
How much they sleep, what they eat, whether they smoke, how much they exercise, whether they've had accidents, whether they've used substances, stuff like that. And they fed all of that into a life expectancy calculator, the kind life insurance companies use to decide how much to charge you. And the calculator did what calculators do. You feed it risk factors, it gives you back a shorter predicted life. That's literally what the tool is built to do.
Garbage in, garbage out. And what makes it even sillier? The calculator only knows to look at risk factors. It doesn't have a box for loves their job.
It doesn't have a box for has deep friendships. It doesn't have a box for spends time in nature or has a hobby that lights them up or is loved. None of the things that make human life long and full exist in the math, the calculator can only see the bad stuff. You had a car accident once.
Seriously, though, a shorter predicted life is the only thing it could produce.
So, the actual story is a small group of mostly white men in Milwaukee had their lifestyle data run through a tool that can only see risk factors and is designed to predict shorter lives when it sees them. And the tool said, "Shorter life." That's not the same as ADHDers die earlier. That's a prediction, not a fact. And it's a forecast about lifestyle, by the way, not ADHD itself. If 13 years are being subtracted because of how ADHD brains are wired, it's being subtracted because of how those particular people were drinking, eating, sleeping, and moving.
Things that, if your life ends up looking similar, could shorten your life, too, whether you have ADHD or not.
So, what is the study actually showing?
It shows what happens to a body when someone has ADHD and nobody ever told them. When you spend [clears throat] your whole life not knowing why everything feels harder, when the anxiety you can't explain has been running the show for 40 years, when you've been reaching for whatever turned the volume down because nothing else worked, when you've been at war with your own brain since childhood because nobody handed you a name for what was happening. That kind of life takes a toll on a body. Of course, it does. And that's heartbreaking, but it's not destiny because the second you find out you have ADHD, the entire setup changes.
Now you have a name for what's been going on. Now you can stop blaming yourself for things that were never moral failures. Now you can actually start understanding what your specific brain needs and stop fighting it. The choices you make about your sleep, your food, your stress, your relationships, all of that starts being different. And not because someone handed you a checklist, but because you can finally see what you're working with. That's what the headline doesn't tell you. The diagnosis is the thing that protects you. The study isn't measuring some unavoidable biological doom. It's measuring what happens when nobody ever got to do the work of knowing themselves. And you're doing that work right now. Just I want you this. Look at you. ADHD isn't one thing. There's no master list of skills that if you just acquired them would save you. Every ADHDer has their own version of all of this. Your brain is yours. Your life is yours. You're not trying to become the most functional version of yourself or anyone. It's about how to make the brain you have and the life you want actually fit together. That's a whole project.
You're not trying to fix stuff. You're trying to have a relationship with yourself. That 13 years earlier study is a description of what life looked like for people who never got to start that relationship. You get to start it. Here you are.
The thing that really sat with the woman who DM'd me was a thing called 30% rule.
And the way it gets passed around online, the way the woman in my DMs absorbed it, it goes something like this. If you have ADHD, you are emotionally and mentally behind your peers, years behind. So, when you're 30, you have the emotional and mental capacity of someone who's 21. Your judgment is the judgment of a 21-year-old. It's basically the adult version of being held back in school.
You watch your whole class move up without you. And now everyone's getting older and wiser, and you're still sitting at the same desk. Nobody trusts you to handle adult things, like driving their car or being alone with their baby, because you can't be the responsible one in the room, can you?
People love you. They just don't see you as a grown-up, really. And yeah, you're growing, slowly, painfully slowly, embarrassingly slowly. Everyone around you is maturing at the speed they're supposed to, and you're somewhere way back there, crawling, watching them get further away. And it's not like that ever changes. The years go by, and you keep falling behind in real time, and there's nothing you can do about it, because this is just how your brain is.
This is just who you are, forever. And honestly, when you read it that way, no wonder people are feeling that it's devastating to have ADHD. Okay, that was hard. Take a breath.
>> [gasps] >> Now, let me tell you what the rule actually says, because what you just heard, the whole thing about being emotionally and mentally behind, that's not what the rule is even claiming.
That's the doom version that the internet eroded into existence. The actual rule is about your executive function. That's the whole scope of the claim. The doom version added all that stuff about emotional age and maturity and being trusted. The rule itself isn't talking about any of that, just executive function. The brain's logistics department. Starting a task you don't want to do, keeping track of time, managing your own focus, planning ahead, keeping your emotions from spilling everywhere, not doing the impulsive thing, that whole category.
And by the way, the rule isn't even a measured law. It's one researcher's estimate based on what he noticed in his own work over the years. Take that for whatever it's worth. That's what the 30% rule is about. It's not a comment on your worth as an adult. It's a description of how you are in one specific category of brain skills, having to do with how you manage your own tasks and impulses, which, let's be honest, if you are even wondering if you have ADHD, you already knew you weren't 100% on these, right? So, already, just by getting clear on what the rule is actually talking about, the doom version starts to fall apart. The rule was never saying you have the emotional capacity of a 21-year-old. The rule is about a specific set of project management skills. Okay, here's where it actually gets good. We've been talking about this rule like it's a sentence handed down.
Like 30% behind is the same as 30% broken, or maybe even more broken than that. Maybe even like we're just 30% the person everyone else's. Now, what this rule actually adds up to is completely different from what you've been carrying. First of all, none of these numbers are hard and fast. It's all rough generalizations. The 30% isn't a precise measurement of you or anyone else. So, don't take it as a real number that says something about your brain.
But, wait. Let's play around with it.
Let's take it as is and see what we have here. Let's say you, yourself, the person with ADHD, are 30% behind your peers on executive function skills. 30% behind means you have 70% of what your peers without ADHD have. That's most of it. So, the worst-case scenario of this rule is still saying that you're working with most of the executive function other people have. There's just a small part of it all that lags for you. Maybe the planning part, or the time, or impulsivity. Whatever your specific version of this is. You probably know exactly what parts you're lagging in.
You've been navigating this your whole life. Now you have a number for this, and that number is 30%. So, you're 30% behind on whatever it is. 30% more impulsive than non-ADHDers. Maybe 30% more late than they are. Maybe 30% slower to switch between tasks.
Whatever. Now, think about how that compares to how you feel about yourself.
Living with ADHD, there's a very good chance that you've spent years feeling like if everyone else is operating at 100%, you were probably at 10%, or 5%, or broken. You felt like everyone else got an instruction manual for life you didn't even know existed. You watched yourself struggle with stuff that seemed effortless for the people around you.
And somewhere along the way, you decided you were just less, you know? Less capable, less functional, less less of a real person. And the actual claim of this rule, at its harshest, if you believe it, is that you have 70% of what they have. Think about it. You've been at 70% your whole life. Yep, that's what 70% looks like. It looks like having a job and or studying and or caring for others and or just keeping yourself alive and watching [clears throat] this video. You really think that's what 10% looks like? Nah. You really think that's broken? Nah. Look at yourself. You are a functional human being. You just have to work a little harder on some specific stuff than other people do. The proof is right there in the fact that you're already a person with a life. You've made it this far. You're not a failure.
You're not dysfunctional. You just have specific things that you're not as good at naturally as other people. That's your thing, ADHD. That's it. That's all.
The gap between what you've been believing about yourself and what's actually being claimed is enormous. You thought you were way behind. Turns [clears throat] out at most, you're just a little behind on one category of skills and you've been getting on with your life anyway. That's not bad news even when it could feel like it. That's the best news you've gotten about your brain in a long time.
So, I want to say something to the woman who wrote me that DM and also to anyone watching who's been carrying what she's been carrying with this diagnosis. You did nothing wrong by going to look up your diagnosis. You were doing the right thing. You wanted to understand yourself. That's such a normal, good instinct and the internet failed you. It gave you a story about how broken you are instead of an invitation to get to know yourself a little better. So, let me try to give you a different story than what you were given. You have ADHD.
That's it. End of sentence. Your life isn't over. You're not doomed to be behind. You just have ADHD. It's a kind of brain. You think a little different, act a little different, move a little differently. You have quirks and strengths and patterns that are going to take you some time to figure out, and that's okay. You can absolutely take your time with it. You don't have to fix yourself right now. No, you know what?
Scratch that. You don't have to fix yourself ever. You're not a project to fix. You're not a problem. You're a human being. You just have to get to know yourself a little better. And guess what? You have the rest of your life to do it. This is just the beginning of you getting to know yourself. This is the adventure. It's the fun part, I promise.
And that's what the diagnosis was supposed to give you. It should have never been a verdict. It should have always been a door. It's a way of saying, "Oh, that's why. Oh, that makes sense. Oh, I'm not broken. I'm just me."
The internet and the world has lied to you about all of it, about what the studies say, about what the rules are, what it all means, and what's ahead for you in life. But now, you have the truth, and the truth is way smaller and kinder than what you've been carrying.
So, put it down. All of it. The doom stuff, the 30% sentence, the 13-year shadow. None of that is yours. None of that is your life story. Walk away from it. Start thinking about things in terms of self-knowledge. What's actually yours is your own brain and your whole life and as much time as you need. You're unique. You're different. You're [ __ ] you. And you're going to be okay.
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