Mayo Clinic Update - CT Scan Wasn't Good

Added: 2026-04-30

[00:00:00]There's about three times a year that I allow myself to get scared or nervous about with what I'm dealing with and that's right around now whenever we do all of our scans. So, we're we're up here in in Minnesota. We're at the Mayo Clinic. Yesterday was a full day of scan starting at 6:20 in the morning. You know, scans, brain MRIs, and the uh lots of blood work. We got our CT scans back and uh they weren't very good. Not very good at all.

[00:00:28]The last time that I had a CT scan done was back in December, I believe, back whenever I had the my lung surgery. We had planned on doing a liver surgery as well. We're going to use that new technology where they use sound waves to bust up that tumor. At that point, we realized that the tumor was actually too big for that. So, the plan was to go on some chemotherapy for a bit, knock it down, and then maybe try again later.

[00:00:52]And then, uh, you know, I had to do that emergency brain surgery to get rid of the tumor that was up there. So that put off chemotherapy for a while. So again, this was the first time I've had a CT scan since then. And now the liver, which had one tumor before, now has 30 30 new lesions.

[00:01:12]Some of them are pretty decent size, too. I believe the biggest one is 3.6 cm, but there's a couple that are around that same size. So 30. In addition to that, there's also looks like to be a tumor in my abdominal cavity, um, which is somewhat hard to treat.

[00:01:29]In addition to that, um, looks like there's one on the spleen as well. And that one's weird because just like the brain, just like the colon cancer going to the brain, there was a 1% chance of that happening, there's also 1% chance of it going to the spleen. It just doesn't do that. Like, none of this makes sense. Like, what are the odds that it goes to the brain and the spleen both? just doesn't make sense. And like the weird part about all this, I feel good. I feel real good. There was a time and like people might say that I can't do that or I wouldn't be able to do this, but like there was a time where I felt like my liver hurt like literally hurt. I don't feel that anymore. Um felt feels good. So the question for us is is the chemotherapy working? Because we know with that mutated gene that I have, the KRAZ G12A, there's no known chemotherapy drugs that work to kill the to kill the cancer, in my case, I've been lucky enough for that that the chemotherapy drugs to be able to knock it down, but not able to cure it. So, we all knew at some point it was going to stop working. And are we at that point now? I just don't know. What's promising though is my CA, my tumor marker, it was really high in the beginning. it was I can't remember now but maybe 560 570 which again anything over three is is probably cancer so a huge number and that number's been coming down matter of fact three weeks ago right before my last chemotherapy treatment it was 400 and I was happy with that but in the last 3 weeks like it's dropped to 129 so to me like I think the chemotherapy is working but I'm going to ask my oncologist that tomorrow so we'll So, tomorrow hopefully we'll come up with a game plan. I've got a huge list of questions to ask um you know about, you know, what the next steps are, like what we can do cuz it's getting pretty serious now. So, we need to figure that out.

[00:03:27]Um so, yesterday nervous, you know, obviously still nervous today as well, but today we celebrated, we celebrated life. Lisa and I had a great time today.

[00:03:35]Woke up this morning, went to Austin, Minnesota, went to a museum up there, Spam Museum. Um, I don't really care for spam that much, but I love a good history lesson. So, it was fun to to learn about spam and how the how the company got created and and all that all that fun stuff. Then after that, we went to the movies, saw the uh the movie Michael, which was fantastic.

[00:03:58]Uh enjoyed the heck out of that movie.

[00:04:00]And tonight, hopefully we're going to be watching the Pittsburgh Penguins take out the Philadelphia Flyers.

[00:04:04]Um, so tomorrow, tomorrow afternoon, I actually have an appointment with the oncology doctor and um, if I've got time, I'll I'll do a follow-up tomorrow. If not, we'll do it the next day. Um, that's all I have for now. I'll keep you updated. Thank you.