The fertility update I wish I didn’t have to make 🌈✨ #ttc #fertility #ivf #fertilitysupport

Added: 2026-05-30

[00:00:00]It has been a while since we have given you guys a fertility update. Those of you that have been following know that I am allergic to my husband. I have this gene called cure AA and my husband has a gene called HLAC2 and when they get together they repel which then makes my body fight off everything and essentially my natural killer cells highly activate and reject any baby. So in January I was tested and after four rounds of lit therapy where they centrifuged my husband's blood and they put his blood and injected it into my shoulder, I was found that I was positive. So it was really exciting and it took a lot longer than we expected it to only because we thought it would take one or two shots and it ended up taking four. In January we were very excited and obviously things felt like they were moving quite quickly and at that time we made the decision that we wanted to consider doing another IVF round because I had tested positive. So, we consulted with a few doctors. We actually spoke to Dr. Victory and Dr. Victory took a look at some of my records. And he said, "I'm a bit concerned and I think you might have a bit of adenomiosis or adnomiiosis, however you pronounce it."

[00:01:01]So, we had run out of our medicine, our nevestim injections that I had been taking to fight off this allergy. We knew we had to fly to Greece to get more medicine. So, we flew out with the decision being that maybe we would just get more medicine, but also the decision that potentially we might be able to stay for IVF. We didn't know. We got there, spoke to the doctors, and the first thing I did was have them check me for adnomiiosis, and the doctor said, "No, you're absolutely fine." That was kind of what swayed us to do the round of IVF, if I'm honest. And these doctors in Greece had diagnosed me with PCOS.

[00:01:32]Sadly, I've been misdiagnosed and I do not have PCOS. So, my treatment was based around PCOS and this cure AA and HLAC2 mismatch. When we got there, we decided to go ahead with the IVF because there was no adnomiiosis and we said, "Okay, let's just give it a go." So things were a little bit crazy.

[00:01:53]It was very stressful obviously because we hadn't planned to stay. So I had no clothes with me, nothing. And we just said, you know what, let's just go for it. So, I stayed out there for I think it was three full weeks, did the horrible IVF stimulation, went through the whole process, and fortunately, we did end up at the end with four blasts.

[00:02:14]Now, we didn't know this, but Greece does not allow you to test your blasts.

[00:02:19]So, we were unable to test any of the four that we had, and we just had to go ahead and decide whether we were going to do a fresh transfer or a frozen transfer. However, the fresh transfer was highly highly pushed upon us. We weren't really given an option to do a frozen transfer. And to be completely honest, they were changing our transfer dates because the clinic wasn't open on certain days. So, that was a bit frustrating. We ended up extending our flight because we wanted to make sure we got to day five blast assist. Even though they wanted to put them in on day two, and we were really confused and really frustrated, but we decided to go ahead and do what the doctors told us to. We were then told because of my age that we should put two in. And we did.

[00:02:59]Sadly, again, that transfer failed. So, we have now had two failed transfers.

[00:03:04]Two failed double embryo transfers.

[00:03:06]Actually, this all happened in February.

[00:03:08]And I just knew that something was wrong. Again, I've had a really gut feeling about all of this and a really strong gut instinct about everything. I had a feeling that I had this adinomiiosis. And this can go hand in hand with endometriosis. Now, I have zero symptoms. I have zero symptoms of anything. I get a perfect period. My cycles are consistent. I'm 28 days on the dot. I have no issues. No bloating, no cramping, no pain, no nothing.

[00:03:33]However, when you have a genetic mismatch, in my head, it just made sense that I was having inflammation. So, we ended up going to the fertility show in March. It was like a week and a half after our fail for our transfer. It was very, very sad and very, very raw. And it was heartbreaking to have to go there, to be honest. And having to do that drained the absolute out of myself and Paul. But we went anyways because we had made a commitment. When we got to the fertility show, we realized there were a lot of other specialists there and we ended up meeting with Dr. Victory and we also met with a doctor called Dr. Kadruta. She's a restorative reproductive doctor. So during this time, I went around to all the stalls and I was just looking for answers as you do. We did our speech. We spoke at a couple workshops. I still had this gut feeling that I had this adeninoiis that I had this inflammation.

[00:04:18]Essentially what adeninoiis is is inflammation in the uterus that doesn't allow the baby to implant. And I was like, I think I have this. Dr. Victory had thought months before that he thought maybe I had a mild case of it.

[00:04:30]It was undiagnosed while we were in Greece and a few other things actually were diagnosed while we were in Greece.

[00:04:35]They said I had PCOS and they said I had a fibroid outside of my uterus. Again, didn't have either one of those things.

[00:04:42]Now, what's really frustrating is the fertility world is completely unregulated and everything is by opinion. So, we met up with this restorative reproductive doctor, Dr. Kucha, and he said, "Let's start charting your cycles." So, we started literally from scratch and I went and I got a full hormone panel done, all my blood's drawn, everything. And we found out that I had high levels of CRP and high levels of ASO and low levels of C4, something like that. Basically, it was saying that my body is inflamed. We went through a whole process where we thought I had strep throat. I didn't have strep throat, but I did have it as a child multiple times, so that could still be lingering in my body. We don't know. And again, we basically started from scratch. So, I charted my cycle for a full cycle. And Dr. Dr. Kjut Defon that everything was looking good, everything was pretty much above par. She decided to try a cycle of progesterone for myself because my progesterone levels were good, but they could be better. We did that for a cycle and it obviously didn't work. Then we started again from scratch where we should have started well before IVF and we did a medicated cycle of letol and we found my body responds amazing to let ovulated two follicles that month. Again, sadly, it didn't work. But we did realize that, okay, my body's working with letol. I still was feeling like something was wrong. And I was like, I really think that I have adenomiiosis. So, I booked a scan with a clinic in London, a beautiful clinic in London. I had this amazing doctor, Dr. Daniela. And within 13 seconds of the scan, she was like, "You have a denomiosis." And I was like, "You've got to be kidding me." I was so frustrated because the problem with having that is it basically changes your protocol. If we had known before the last round of IVF that I had this or even before our first round of IVF that I had this, we never would have put extra estrogen in. We would have changed the protocol completely and the medicines are completely different than what you'd be put on if you don't have it. So obviously it's been extremely frustrating and we're obviously very very sad to have lost four embryos, four potential babies that maybe might not have been my fault is like it's just absolutely devastating.

[00:06:48]And to think that doctors missed things that is quite routine and quite simple is absolutely infuriating. So, we feel like we wanted to obviously tell you guys this just because it's important that you guys know where we're at and how hard this journey is and how much of a struggle it is to have started off with nothing wrong and have on your paperwork unexplained infertility and then to travel across the world, get tested and misdiagnosed with PCOS and misdiagnosed with a fibroid here and undiagnosed adnomiiosis. And now, you know, where I am right now is so frustrating because we've just recently seen Dr. Daniela and she's like, "You do not have PCOS. There are no fibroids that we can see, especially not from a scan, and you do have adomiiosis." The next plan is to go ahead and do a pelvic MRI, which in reality won't really rule anything out. It will just tell me if there are any large lesions like endometriosis, but if I have silent endometriosis, it won't rule anything out anyways. And this is something that apparently like up to 40% of people who are struggling with fertility end up actually having. Either they have an extremely high pain tolerance for the endometriosis and don't even notice the pain like myself or they have it and it's silent and it's asymptomatic. We'll be doing some more testing, some more microbiome testing. I'm going for an MRI this week. We'll see if anything comes back on that and then we'll consider next steps moving forward which might be an IUI cycle, an IVF cycle. We don't know. We're just in the process of trying to listen to the experts. It's so frustrating. I'll be completely honest because again, fertility is not regulated. It's not like when you have a heart transplant and it's just standard care that you do ABC to fix the heart.

[00:08:33]You just don't have that here. Sadly, we do have two embryos in Greece that we will go back for at some point. But it was encouraged to us to go ahead and before we go back there to, you know, start from the beginning again and try to figure out maybe we've missed something along the way. Maybe it isn't just the allergy. Now the allergy is fixed. Maybe it's something else. We just don't know. And it sucks. and we're trying really hard to stay positive and not let this affect our lives and our marriage, but it is extremely difficult.

[00:09:05]It has been obviously 3 months since our fail. So, I'm feeling a little bit better about it, but it's devastating. Like, I don't wish this upon anybody. And going through all the hormones and the treatment and I'm still not feeling like myself. I still feel sad and confused and furious at the doctors for not listening to me and furious at people for not checking in on us and furious for just like the afterare. Just I'm I'm disgusted by some of the treatment that we've had and I'm just sad. And I know that people want to help and I know that there are good doctors out there, but I feel like it's such an unregulated system. We're just unfortunately a number. Everything is just falling short. I don't know where we're going next. We do know that we can make embryos and we do know that we have two little frozen babies in Greece, which is really sad because they feel so far away. I know it sounds crazy, but they do feel so far away. Again, we can't get them tested, so we can't tell whether or not it was the embryo's fault that it failed, whether it was this adeninoiiosis, whether it was the protocol. It's most likely looking like it was the protocol cuz I was pumped with estrogen, and estrogen is so bad if you have adenomiiosis. My husband's going away for a little while. He has an amazing job coming up that he'll be gone for a few months, so I'm on my own to do the rest of this testing and to sort things out, but it's been very difficult. And I just want to give out all this information because it was people like this that I found a lot of my information from. It was girls on here that talked about endomyiosis, endometriosis, PCOS, all these things that I educated myself on. And I just want you guys to be able to be as educated as I am. And you'll most likely find your diagnosis on the internet, which is so sad. A lot of things that come into play with doctors and egos and being in this business for a long time.

[00:11:00]I do feel like right now we've built a team of Dr. Kadruta who's my RRM doctor and Dr. Victory who's been our doctor now in Canada and Dr. Daniela who's a doctor out here in London and we're just trying to figure out the best course of action for us. We're trying to be patient. I've also started taking lowd dose nrexone. I am considering taking a trespide which is a Monaro type drug. We're just going to do our best to see if we can make this happen naturally, but if not, obviously, we will be going again to try a third round of IVF, which will be absolutely devastating to have to do, but I'm hoping that we're in better hands this time. Lot easier to talk about it now when I'm less emotional. I was extremely emotional about it and couldn't get through 30 seconds of recording a video about this. And as you can imagine, at the fertility show, I was a bit of a hot mess and I tried my best to keep it together. And I was angry at that time.

[00:11:54]Now I've just come to terms with it that sadly we do have four little embryo babies that um didn't make it here. But oh god I feel like we are on a better track now. Hopefully like fingers crossed hopefully if we have to do IVF again this will be like the last round or fingers crossed one of these drugs that I've finally been put on for the right reasons will hopefully do the right thing. The saddest bit about all of this is that every time I see a doctor as of recent, everyone keeps telling us how mismanaged we've been.

[00:12:30]And that is, I think, the saddest part of a fertility journey is we've been extremely mismanaged. And we could have a year ago been in such a different position. We met a girl this week and she's amazing. And her and her wife had a baby and their implantation day was literally the same day as our first IVF round and they have a four-month-old now. And it's really, really hard to hear that if it had worked, we'd be in such a different place in our lives.

[00:12:58]And even now, if it had worked, we'd be in such a different place. I would be, you know, four or five months pregnant right now. It is what it is. We're trying our best to stay positive, but I am pissed and I'm frustrated and I'm sad and I feel let down by a lot of doctors. And I feel like this industry of fertility, they tend to prey on the weak and the vulnerable. And I can't think of anyone more vulnerable than a woman that just wants to be a mother. So we are victim of that as well. Just because you see nice things on social media doesn't mean that we're not having the exact same stuff happen to us. And I just hope that you guys can advocate for yourselves and take the knowledge that I'm hopefully giving you and ask your doctor about it and find a really good doctor. find a doctor that will listen to you and a doctor that's willing to step outside the box and um just mostly find a doctor that wants to listen to you. That's all I can say. So yeah, I'll keep you updated as we get further along. I'll let you know what the MRI results come back as. Cross your fingers for us, say a few prayers, and thanks for caring about us.