Chronic health conditions like POTS (Postural Orthostatic Tachycardia Syndrome) require comprehensive medical evaluation to identify and address root causes rather than just managing symptoms with medications, as patients often experience significant daily challenges including sleep deprivation, fatigue, and physical limitations that impact their quality of life.
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Deep Dive
Sleep DeprivationAdded:
Hi everyone. What's up? Sorry in advance. I know the audio is not going to be the greatest. It is crazy hot out today, so I have to have the air running or else I'm literally going to drop over. Um, I'm definitely going to be getting a mic soon. Let's be real.
That's been a long time coming. But anyway, I'm going to go run some errands. First off, I need to get me a pickme up because I'm exhausted. I don't know what's been going on with me, but the last few nights have been agony.
Like, I have not been able to sleep. I just toss and turn. It's terrible. I only slept a couple hours last night.
And your girl needs some caffeine or else I don't know how I'm going to get through the day. Then I also need to pick up my brother and maybe do a few more things. Also, this pimple just wants to be the star of the show today.
All right, we need to go.
I got to pull myself up because short people problems. I have to be really close. Oh my. We might be a little too up close and personal.
I cannot believe that it's finally summer. I'm so happy.
Hopefully you guys can hear me. Okay, a mic is very much needed. But this is going to have to do for today because I just spontaneously decided to get the camera out and to talk to you guys a little bit because I've been neglecting you guys. Let's be real. I have not been very consistent on my channel and I don't want to keep it that way. I want to take this more seriously.
>> Oh, that's good.
Sachi 6, ladies and gentlemen, one of my favorite bands. Oh, this new album by Sachi 6 is so good. It's literally all that I've been listening to lately, and I actually got to see them live just a couple weeks ago. They were so good that I already got tickets to see them again.
I've got some merch from them coming in the mail soon, so I'm pretty excited about that.
Better also make sure I have my card. Be bad if I forgot that.
>> Thank you for stopping. Don't get me.
What can I get for you?
>> Hi. Can I please get a medium vanilla iced latte with oat milk? Thank you. We got the goods.
Hopefully this will help me wake up a bit.
Please let this wake me up. So, right now I'm just chilling in the Kohl's parking lot waiting to pick up my brother from work. No, he doesn't work at Kohl's. This is just kind of one of my go-to places because you guys know me, I love Kohl's. Resisting the urge to go in there. I do have $20 Kohl's cash.
So, like if I went in there, it's not like I'd be going in there to spend my actual money. But I think we're just gonna chill here a little bit because my brother's gonna be done with work in a little bit and then I'm gonna go get him and I'm just gonna sit here and enjoy my coffee. I left a bit early because I could not wait to get this.
So, I've got some kind of interesting stuff going on this weekend. I'm going camping with my family. We have this permanent campsite that we go to every single year. And this weekend is going to be extra interesting because my brother's girlfriend is coming along.
Um, she's amazing. I love her. So, I have a very big family. It's me, my parents, my five siblings, and now my brother's girlfriend all going camping.
And our camper, it's definitely small for the amount of people that we have. So, I'm going to be honest. I'm not sure my brother's girlfriend knows what she signed up for.
Don't get me wrong, it's not like it's a bad camper. It's just going to be very crowded. And this is going to be interesting. It's always really fun going camping, though, because there are bike trails by the campground and also just some really nice back roads. And we have ebikes, which makes it extra fun.
And I always get comments from people saying, "Ebikes? That's not real biking.
You can't get in any exercise doing that." Well, the point of the ebikes is if you want a workout, you can get one.
Those bikes are actually pretty heavy.
So, when you don't have the pedal assist on and you're not using the throttle, you're actually working harder than you would on a regular bike. But, if you want to just be able to zip around for fun, go long distances, and not have to worry about getting tired, they're great. We have them cuz they're a fun time. No shame in that. I think you guys leaving those kind of comments are just jealous, aren't you?
I'm just kidding.
There's also a pool. And you know, I'm not going to be getting tan. I'm going to slather myself up with sunscreen and hope for the best. I'm actually contemplating vlogging some at the campground. Maybe I should do that. Like I said, this is going to be interesting.
We have bunk beds in the camper, so we're able to fit quite a few people in there. But since my brother's girlfriend's coming along, I'm going to have to give up my bed and go sleep in the van. But I'm going to be so for real. The van setup is actually better than the setup in the camper. So, it's not like I'm really sacrificing anything. My dad actually put in a lot of time and effort to really set up the van to be a good place to sleep. It's got a bed in it, a heater, air conditioning. It's going to be my own private space for the weekend. Yeah, I think I'm going to have to vlog some of this, aren't I? Like I said earlier, I also really need to get a mic. I should invest a little bit into this channel. I think that my phone is okay for filming.
Like, I feel like the quality is okay.
And I also feel like for these videos that I do, the audio quality is more important. So, I need to find a mic that I can use with my phone. If you guys have any recommendations, if you know anything about any of this, comment down below because that would actually be really helpful. Update. Some time has passed. I guess my brother must be working late today. This is what I get for leaving early cuz now I'm just sitting here not knowing what to do with myself. The caffeine unfortunately hasn't really helped. I'm still just as exhausted as before. But, you know, I have not been sleeping good at all. And last night, I barely slept. So, I'm just gonna have to suffer through the day.
Hopefully, if I can just make it through the day without crashing, without giving in and taking a nap, maybe tonight I'll actually be able to sleep. Fingers crossed, right? All of this health issue stuff that I've been dealing with though has just been eating me alive. Like sometimes it really does feel like I died. Sometimes I really feel like I'm just the ghost of who I used to be. And that probably sounds so weird unless you're going through this. Every day I try to wake up and tackle the day with a positive attitude, but some days it just is really hard. I just really hope that the appointments I have coming up, I'll actually see a doctor who listens to me, who actually wants to help me, who wants to look into this and get to the root cause. Like for my POT symptoms, I do want to try some medications to see if they would help. But something else though is I feel like doctors, a lot of the time the doctors that I see, they kind of just want to throw medications at me as like a band-aid. And they're never actually interested in getting to the root cause. Like why do I have these symptoms? What's going on in my body?
Like I feel like some of the problems that I have, if I could just pinpoint what is going on, and work on fixing that, that would be great. Like I know that it's not always that simple, but I have had so many medications thrown at me for so many different things and it's like I just there's got to be a way to find the root cause. For example, some other things besides POTS that are going on with me is I deal with migraines and I get a lot of face pain like specifically around my eyes. I don't know what's causing that. I just get meds thrown my way. I got anti-depressants thrown at me and told that vitamins had no impact on anything.
I don't think that's true. I do believe that there is value in medication and there are times where they absolutely are needed and they absolutely can help.
But I do feel like for me, the less medications I'm on, the better. But I will say for my POT symptoms, I feel like a medication might be needed because this is really bad. I just got a text from my brother. I guess he's staying at work longer and he's just going to ride home with my dad when he gets done with work. So, technically, I had no reason to be in town.
It's okay. I guess I just came here to get a coffee and chat with you guys.
But, we're going to head back to my house. I'm going to blast some Sachi 6.
If you haven't heard of them, highly recommend you look them up. I had really liked them before I saw them in concert a couple weeks ago, but after seeing them, I am officially obsessed. Their new album is called Brutalist. It is straight up fire. So, if you haven't heard of them, go check them out. I'll see you guys at my house. We're back home. There's my dad's glorious shed in the background. He is so proud of that thing.
It is a very nice shed, though. It is so beautiful out here. Wow, what a nice day. I need to let Olly baby out of his crate. He's only in here cuz no one was home to watch him. Hi, baby. You want freedom?
Freedom. He was not in there very long.
Like, I was just gone a little bit.
Oh my goodness. Baby, come here. Come say hi.
Come say hi to everyone.
Ignore the tear stains under his eyes.
He does not let us clean his eyes and I don't know what to do about it. I've seen some people bleach under their dog's eyes, but that's just that can't be good for them, right? Like I just don't think we should do that to him. I don't know if it's a gut health thing. I feel like it makes us look like we're neglecting him. We're not. I promise.
and he's very fluffy right now. Um, I'm gonna take him to get his haircut on Friday. Today's Wednesday, because it's really hot out and it's too hot for him to be this fluffy.
Hello. Hello, my Olly baby.
Oh, he's sassy. I'm sitting outside right now. It's just too beautiful of a day not to be out here.
Oh no. I think Olly sees me. Olly, it's just me.
Oh, he's in the window.
Oh no.
Olly, it's just me.
Ollie's mad that I'm out here without him, so we moved. I'd bring him out here, but it's so hot. I just am not sure it's such a good idea for him until he gets his haircut. I think I'm going to wrap up the vlog, but before I go, I just wanted to say thank you so much to everyone who continues to support me. It truly does mean more than any of you guys could ever know. I love you all and I'll see you in the next
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