#spoonie #chronicillness #lupus #mentalhealth #fibro #ehlersdanlossyndrome #potssyndrome #mcas

本站添加: 2026-06-02

[00:00:00]Today I was reorganizing and I was just trying to keep my mind busy because I'm having a bit of a hard time. So, I started reorganizing my journals. I've journaled since I was a little girl. I have a ton of them. I just randomly chose one and opened up to any page and in this page I am talking about my journey of diagnosis and I they have told me about fibromyalgia.

[00:00:30]They thought maybe lupus.

[00:00:33]My story is a bit complicated. If I go into it, it would be way longer than this clip. But, it was just me being so hopeful that we could figure it out and everything would be okay. I really hadn't understood that this could be forever.

[00:00:50]And I was already on this journey for like two to two and a half years when I read this. This was in 2017.

[00:00:57]Long time