Chronic illness diagnosis often involves a complex, lengthy journey where individuals may experience initial hope for recovery before understanding that some conditions are lifelong, requiring patience and realistic expectations for managing symptoms and treatment.
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#spoonie #chronicillness #lupus #mentalhealth #fibro #ehlersdanlossyndrome #potssyndrome #mcasHinzugefügt:
Today I was reorganizing and I was just trying to keep my mind busy because I'm having a bit of a hard time. So, I started reorganizing my journals. I've journaled since I was a little girl. I have a ton of them. I just randomly chose one and opened up to any page and in this page I am talking about my journey of diagnosis and I they have told me about fibromyalgia.
They thought maybe lupus.
My story is a bit complicated. If I go into it, it would be way longer than this clip. But, it was just me being so hopeful that we could figure it out and everything would be okay. I really hadn't understood that this could be forever.
And I was already on this journey for like two to two and a half years when I read this. This was in 2017.
Long time
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